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Cpap Illness?
#1
Sad 
Cpap Illness?
6 Months ago I vacationed in a dusty cabin with a dirty cpap.  I have been sick ever since every day, almost debilitating.  Started like mono, ache all over, now fatigue, sore throat, burning eyes, burn in chest, some nausea, diarrhea.  Have had every test. ER twice.  No diagnosis.  Allergy??? Immune disorder??  Any one else suffering?  Any suggestions???
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#2
RE: Cpap Illness?
Sorry about your not feeling well.  Please discuss your concerns with your physician.  I hope that you fell better.
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#3
RE: Cpap Illness?
EVERY TEST< ER TWICE
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#4
RE: Cpap Illness?
(01-09-2019, 08:56 AM)linzlea Wrote: 6 Months ago I vacationed in a dusty cabin with a dirty cpap.  I have been sick ever since every day, almost debilitating.  Started like mono, ache all over, now fatigue, sore throat, burning eyes, burn in chest, some nausea, diarrhea.  Have had every test. ER twice.  No diagnosis.  Allergy??? Immune disorder??  Any one else suffering?  Any suggestions???


Sorry you are feeling so ill.  

Was the CPAP dirty before you slept in the dusty cabin?  Have you changed out the filters, hose, and mask parts.  Have you cleaned the water chamber?  

If you have taken care of your CPAP, then it would seem like you may have been exposed to something in the dusty cabin or caught a nasty virus from someone.  

Six months is a long time to be sick.  See your doctor or an allergy specialist to get sorted out.  

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#5
RE: Cpap Illness?
A couple of questions I would ask anyone who became ill after sleeping in a dusty old cabin are:
Was there any sign that rodents were inhabiting cabin?
Did you get bitten by any ticks while vacationing?
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#6
RE: Cpap Illness?
I have seen the doctors 6 times with no diagnosis.  Having allergy tests this week.  New cpap and filters, clean more often NOW.. Some use hydrogen peroxide to clean?

NO ticks or rodents.  Roommate got strep.  Looking at Sojren/Lupus/ immune disorders.
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#7
RE: Cpap Illness?
no ticks, rodents seen. no visible bites. en lots of docs had lots of tests.. thinking immune disorder
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#8
RE: Cpap Illness?
Discuss this with your supplier. Ask if you can borrow another machine for a month or so. It is not often than something takes up residence in the machine itself but it is possible. Using another machine for a while will certainly narrow it down further.

Good luck and PLEASE let us know how it turns out? We can help others in the future.

Oh, I see above you said "new cpap and filters". Dang. What about new hose, mask, tubing, etc?
PaulaO

Take a deep breath and count to zen.




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#9
RE: Cpap Illness?
We’re you tested for Lyme Disease? If you were, I’d have it repeated.

This disease is horrible and can cause all sorts of symptoms that doctors tend to overlook.
Plus ticks aren’t readily seen. You could have easily been bitten.

I’m not in the medical profession, so not trying to diagnose you.
OpalRose
Apnea Board Administrator
www.ApneaBoard.com
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https://www.sleepfiles.com/OSCAR
http://www.apneaboard.com/wiki/index.php...ganization
Using Attachments to Post ScreenShots.
Mask Primer
Machine Choices



INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE.  ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.  INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#10
RE: Cpap Illness?
Western blot for lyme, anything else is crap, also even if its negative it doesn't mean you don't have it, it's that type of crap. Do it every month for the next 6 months, it might be that your already too late, 6 months is enough for it to go out of your blood into the tissues, avoid antibodies test for lyme its useless, on top of Western Blot do a PCR test for specific borrelia bacteria, all the types the lab does.

On the other hand the onset of your disease and symptoms and the prolonged issues your having, you might have developed ME/CFS. Theres no testing availible for it yet, you can read about it on the Open Medicine Foundation website.

Since ME/CFS can't yet be diagnosed in a lab I'd completely focus on Lyme and finding a Lyme Literate Doctor eg. at

https://www.lymedisease.org/find-lyme-literate-doctors/

Wish you all the best, it might be a long ride.
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