Now please understand I have severe apnea and am an extreme case... I have been running my cpap prescribed at 17-20 for over tenyears. . There are issues with running that high most are mask and pillow related (they simply aren't designed to work at that pressure) but as someone who has had to go that high ( and no bipap doesn't work for me) if you are running at a high pressure get checked out as often as possible. I haven't had a night sleep without my machine since I picked it up it is my original machine it does get checked and cleaned regularly. The thing with sleep apnea that most people forget. Is how it affects the rest of your body. Having sleep studies is a good start but you need to get a physical done as well. And keep getting them as often as you can afford. I have had 3sleep studies and probably 10 physicals I know my heart is bad and not getting better but its not getting worse yet. But as I need that pressure I have had no ill effects. I will say if you turn your machine up past what your mask can take it will make your machine useless as when you need the pressure most it won't be there
I am new to CPAP. I have had type 1 diabetes for 35 years. I adjust my insulin my self and have very good control of my blood sugars. I think no one knows your body as well as yourself. I plan to educate myself on CPAP and think I can regulate my theropy best myself since the results I am looking for is to feel better. For now I will follow my doctors directions and learn all I can about how to sleep better.
I am more concerned about the danger of not using CPAP/BIPAP/ASV if diagnosed with apnea.
10-09-2014, 09:23 AM
(This post was last modified: 10-09-2014, 09:24 AM by wheaton4prez.)
I came across this thread because I am scheduled to get a CPAP machine in a few days and I wanted to see if there were any risks.
I see that all of the discussion has been over too much pressure. I hadn't even considered that to be a danger. I was concerned more with being suffocated by having the mask on and the machine going off or malfunctioning. Is that a possibility or is there some fail-safe design feature that would allow you to breathe with the mask on and the machine off?
Over the several years that I have been involved with sleep apnea, forums, etc., I have yet to hear of one single case of ANY ill effects arising from the use of a CPAP/XPAP machine operating under normal conditions. I have never heard of any XPAP machines "taking off" on their own and pushing more than, say, 20 cmH2O pressure. I would have to say that the Rx issue is one of control as most XPAP users are totally ignorant of what their blower does and how to deal with it and cannot be bothered. Hence, you are going to have to be supervised like a 4 year old. I find it very curious that I was able to produce better results than the sleep docs for myself, my wife, etc., after simply participating in the forums and reading the clinician manuals and materials online. For instance... sleep doc end result until we get to see him in another 4.5 years AHI=85+. MY results after looking at one week of data from XPAP and pulse oximeter and adjusting things accordingly? AHI=<5 and still working on it. My AHI runs <1. Sleep doc scratches his head. So.. I have no idea as to why an Rx is required and I have never heard of anyone being injured by XPAP except I once had mine fall on my toe and my toenail turned slightly purple. Just my two cents worth FWIW. Oh, and IMHO? The adverse effects of NOT using XPAP when it is indicated is far, far, far worse and far more prevalent. Of this I am sure and can produce a list.
Educate, Advocate, Contemplate.
Herein lies personal opinion, no professional advice, which ALL are well advised to seek.