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[Diagnosis] Central Sleep Apnea newbie
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amnesiachick Offline

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Post: #1
Central Sleep Apnea newbie
Hi,

I am new to the boards. I have mild obstructive sleep apea. I am writing today, though, because my husband was diagnosed two days ago with severe central sleep apnea. They tried a regular cpap and a bipap machine on him during his sleep study, but they just made his apnea worse. He stopped breathing 117 times per hour that night. He only had one incident of obstructive sleep apnea the whole night. The graph showed central apneas everywhere.

He has another sleep study on Tuesday to try two other machines on him. One has the ST in the name (spontaneous/timed) and the other one is an ASV. I am still learning and this is all kind of scary to me. He has heart issues as well as chronic pain issues due to back injuries.

Any advice or suggestions for us newbies to central apnea? I've been trying to do research as I just want to know as much as I can about this and it's affect on my husband in terms of symptoms and everything else.

Thanks in advance for anything you have to share!

Cassie
(This post was last modified: 12-11-2014 11:48 AM by amnesiachick.)
12-11-2014 11:47 AM
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Crimson Nape Offline

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Post: #2
RE: Central Sleep Apnea newbie
Welcome to the board. I'm curious, was the hubby's study performed at home or in a sleep lab? The reason I ask is the lab where I had my titration study performed used equipment that could be remotely adjusted to mimic any type of device needed on the fly. At the end of the study they used the information acquired to determine what type of device I needed.

So much for any advice I have.

Wish him "Good Luck" in his study.

Statistics prove that people who have more birthdays live longer.
12-11-2014 12:43 PM
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amnesiachick Offline

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Post: #3
RE: Central Sleep Apnea newbie
Hi and thanks for your response! He was in a sleep lab. They tried a cpap partway through the night and switched to the bipap. Both did worse. I know they tried adjusting the pressures, but to no avail. It worried me that some machines could make it even worse when it is already severe. The doctor said he's pretty sure the ST will work for him, but they have the 4th machine in case it's needed to try.

Thanks again!

(12-11-2014 12:43 PM)sgearhart Wrote:  Welcome to the board. I'm curious, was the hubby's study performed at home or in a sleep lab? The reason I ask is the lab where I had my titration study performed used equipment that could be remotely adjusted to mimic any type of device needed on the fly. At the end of the study they used the information acquired to determine what type of device I needed.

So much for any advice I have.

Wish him "Good Luck" in his study.
12-11-2014 12:49 PM
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Crimson Nape Offline

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Post: #4
RE: Central Sleep Apnea newbie
From what I have gathered from reading other posts, higher inhale pressure is better for an obstructed airway and can make the body respond with an increase in central/clear events. . . basically the body forgets to breath when it encounters a high pressure, like sticking you head out the window of the car as it is speeding down the road. I'm sure my explanation is way over simplified and will be corrected by others but I hope you get the jest.

Statistics prove that people who have more birthdays live longer.
12-11-2014 01:03 PM
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amnesiachick Offline

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Post: #5
RE: Central Sleep Apnea newbie
That makes perfect sense. Thanks! So I'm guessing the other two machines they are going to try will try not to do that?

(12-11-2014 01:03 PM)sgearhart Wrote:  From what I have gathered from reading other posts, higher inhale pressure is better for an obstructed airway and can make the body respond with an increase in central/clear events. . . basically the body forgets to breath when it encounters a high pressure, like sticking you head out the window of the car as it is speeding down the road. I'm sure my explanation is way over simplified and will be corrected by others but I hope you get the jest.
12-11-2014 01:08 PM
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Crimson Nape Offline

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Post: #6
RE: Central Sleep Apnea newbie
I'm going to have to declare my ignorance at this point. To date I was only aware of the ASV being used. The ST sounds like something used for life support. . . I'm going have to research this device.


Edit: After making this post I looked up the ST and ASV's . Boy! The manufactures really think a lot about those products.

Statistics prove that people who have more birthdays live longer.
(This post was last modified: 12-11-2014 01:34 PM by Crimson Nape.)
12-11-2014 01:29 PM
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trish6hundred Offline

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Post: #7
RE: Central Sleep Apnea newbie
Hi amnesiachick,
WELCOME! to the forum.!
Hang in there for more help in understanding Adapt Servo Ventelator, (ASV,) machines. Much success to your husband as he starts his CPAP therapy.

trish6hundred
12-11-2014 01:47 PM
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amnesiachick Offline

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Post: #8
RE: Central Sleep Apnea newbie
Thanks, Trish! So that's what it stands for! I wondered.
Sgearhart, yeah they are pretty specialized by the look of them.
(This post was last modified: 12-11-2014 02:45 PM by amnesiachick.)
12-11-2014 02:44 PM
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archangle Offline
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Post: #9
RE: Central Sleep Apnea newbie
Try to get the ASV machine. My impression is that the S/T machine is what they did before they figured out ASV. An S/T mode machine might fix his central apnea, but there's a good chance you'll have to go to ASV anyway.

Don't panic. The ASV machine or even the S/T can be really tough to get used to until your brain stops fighting and lets the machine decide that it's time to inhale. Be supportive and keep trying. Usually, after a while, your brain surrenders to the machine and it becomes comfortable.

The ASV machine has a lot of adjustments in terms of timing and sensitivity to get it dialed in. If you have problems, you may have to insist that they tinker with the settings to find the right settings.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
12-11-2014 04:07 PM
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amnesiachick Offline

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Post: #10
RE: Central Sleep Apnea newbie
Thanks, Archangle! I kind of wondered about that.
12-11-2014 04:14 PM
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