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[Diagnosis] Frustrated
#31
RE: Frustrated
(12-04-2018, 09:22 AM)Sleeprider Wrote:
(12-04-2018, 07:55 AM)Gary K Wrote:
(12-03-2018, 11:28 AM)Gary K Wrote: Okay Thanks. Will move to those settings tonight and see what happens. I have sent messages to my doctor to see what he will suggest or support and I have not yet heard back from him, hopefully today I will.

Worse

If you are willing, try  range of 6 to 10 and shut off EPR.  You still need ASV.
Okay, by shutting off EPR you mean PS to zero? if not please explain.
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#32
RE: Frustrated
(12-04-2018, 11:41 AM)Gary K Wrote:
(12-04-2018, 09:22 AM)Sleeprider Wrote:
(12-04-2018, 07:55 AM)Gary K Wrote: Worse

If you are willing, try  range of 6 to 10 and shut off EPR.  You still need ASV.
Okay, by shutting off EPR you mean PS to zero? if not please explain.

Still struggling, have telephone appointment with sleep doctor on Monday. Have been mining data from sleepyhead. Can anyone explain why all of the sudden between Nov 3 and 4 sleepyhead quit reporting all the machine settings. See the two images attached
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#33
RE: Frustrated
Gary, we have been pushing a bit for an ASV because we feel that in the long run it will provide you with the best therapy, but it is really your choice.  

1: Optimize your current machine for you.
2: Help you qualify for an ASV

Read the following Wiki article
Justifying Advanced PAP machines

And let us know which path you want to go down.

Fred
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#34
RE: Frustrated
(12-06-2018, 01:49 PM)Gary K Wrote:
(12-04-2018, 11:41 AM)Gary K Wrote:
(12-04-2018, 09:22 AM)Sleeprider Wrote: If you are willing, try  range of 6 to 10 and shut off EPR.  You still need ASV.
Okay, by shutting off EPR you mean PS to zero? if not please explain.

Still struggling, have telephone appointment with sleep doctor on Monday. Have been mining data from sleepyhead. Can anyone explain why all of the sudden between Nov 3 and 4 sleepyhead quit reporting all the machine settings. See the two images attached

The slide bar for the left margin is in a different position when the screen shot was taken, the info is still there.
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#35
RE: Frustrated
(12-06-2018, 03:10 PM)bonjour Wrote:
(12-06-2018, 01:49 PM)Gary K Wrote:
(12-04-2018, 11:41 AM)Gary K Wrote: Okay, by shutting off EPR you mean PS to zero? if not please explain.

Still struggling, have telephone appointment with sleep doctor on Monday. Have been mining data from sleepyhead. Can anyone explain why all of the sudden between Nov 3 and 4 sleepyhead quit reporting all the machine settings. See the two images attached

The slide bar for the left margin is in a different position when the screen shot was taken, the info is still there.
No, it is not. For some reason between Nov 4th to Nov 12th only the first four lines of machine settings is shown. Then magically on Nov 13th all 14 lines reappear.
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#36
RE: Frustrated
(12-06-2018, 03:08 PM)bonjour Wrote: Gary, we have been pushing a bit for an ASV because we feel that in the long run it will provide you with the best therapy, but it is really your choice.  

1: Optimize your current machine for you.
2: Help you qualify for an ASV

Read the following Wiki article
Justifying Advanced PAP machines

And let us know which path you want to go down.

Fred
I have heard back from my doctor via email and we have a telephone appointment next Monday. He is suggesting that if I want to pursue the ASV option I can go have another sleep study and/or have a loaner ASV Machine for a month to see if that helps, however, his opinion is that my Clearway apnea is very mild and my problem is obstructive apnea and he does not think that an ASV machine will help my sleeping comfort and that will will have the same issues with a ASV machine. I will have to decide after I speak with him on Monday. He was rather turned off about the EERS thing. He had never heard of it, I did send him the link to learn about it. Will discuss it on Monday.
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#37
RE: Frustrated
(12-06-2018, 03:23 PM)Gary K Wrote:
(12-06-2018, 03:10 PM)bonjour Wrote:
(12-06-2018, 01:49 PM)Gary K Wrote: Still struggling, have telephone appointment with sleep doctor on Monday. Have been mining data from sleepyhead. Can anyone explain why all of the sudden between Nov 3 and 4 sleepyhead quit reporting all the machine settings. See the two images attached

The slide bar for the left margin is in a different position when the screen shot was taken, the info is still there.
No, it is not. For some reason between Nov 4th to Nov 12th only the first four lines of machine settings is shown. Then magically on Nov 13th all 14 lines reappear.
Note that all but the bottom 1/3 line of hypopnea event percentage and all events above it are hidden on Nov3 and the and the slide bar is nearly mid screen.
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#38
RE: Frustrated
Hands down grab a loaner ASV. Great option that I have not heard of anyone else being offered.
Sleeprider
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#39
RE: Frustrated
(12-06-2018, 03:44 PM)Sleeprider Wrote: Hands down grab a loaner ASV. Great option that I have not heard of anyone else being offered.
+1  

That will provide a definitive answer as to whether that will benefit you.  I would ask for the ResMed ASV vs the Respironics because you know more people using one.  Wait, I doubt that would fly bu SR I've seen you post the right words before.
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#40
RE: Frustrated
I am baaaack

I received my rental ResMed AirCurve 10 ASV machine two days ago and have used it for two nights now. Things have definitely changed. My AHI had been running around 10 (mostly Central, Obstructive mostly under 5). First night total AHI both nights AHI was 1.58 with all being unclassified, no central or obstructive. However, stuffiness has been worse. Only able to sleep an hour or two at a time. After being in bed (up and down) for 8 hours only had mask (nasal pillow) on 5 and 1/2 hours. Have appointment with sleep doc in a month to review results. Old machine was ResMed AirCurve 10 VAuto.
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