Post Reply 
[Diagnosis] Got my results and am now afraid to go to sleep
Author Message
EPSAHM2 Offline

Members

Posts: 5
Joined: Apr 2012

Machine: unsure
Mask Type: Full face mask
Mask Make & Model:
Humidifier: unsure
CPAP Pressure: unsure
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #1
Got my results and am now afraid to go to sleep
Today, I saw the pulmonary dr. We went over my results. They are not good. First, I NEVER get into REM sleep. It took me 3 hours to even get into a measurable sleep level. Then, I would stop breathing an average of 35 times an hour....between 20-40 times an hour all night (well from 3-6).

I am going to have my CPAP titration next tuesday. I was fitted for a mask today. I am very very very concerned. Even my dr was very concerned. But, I suppose, my question is.....WHY arnt they moving faster to get me a machine. I am so scared to fall asleep....that tonight will be the night I stop breathing and NOT wake myself up (which I had no Idea was happening anyway).
Is this a normal feeling after getting results?
04-25-2012 09:25 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: Got my results and am now afraid to go to sleep
Amen Sister!

Yes, freaking is normal.

Your AHI (that's the 35 times an hour) is slightly above the moderate level. (see chart here) I wish they would re-do those because it just causes people to freak more. I got a call from the sleep doc's office. I had an AHI of 69, a low O2 of 83%, twitched like mad, and could hold my breath an average of 35 seconds with the longest being 45 seconds.

So I turn to the wonderful Internet and almost immediately freaked. If a "severe" is over 30 and mine was what?? And the O2 should stay above 95%??

Yeah, I panicked. Absolutely freaked. It was hard sleeping for several nights. I kept waking up (I'd been waking up umpteen times a night for a very long time, only now I noticed them since I was hyper-aware of them) and not being able to go to sleep.

But I survived. And you will too. Try to keep calm. Just go to sleep and know that you'll get your machine soon and all will be well.

Push for a data capable machine, one that keeps track of stuff other than hours used. Don't let them tell you the data would be over your head. It might be at first but you'll learn it all. Honest.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
04-25-2012 09:35 PM
Find all posts by this user Post Reply Quote this message in a reply
pk6301 Offline

Preferred Members

Posts: 31
Joined: Mar 2012

Machine: Respironics System One Model 550
Mask Type: Full face mask
Mask Make & Model:
Humidifier: Respironics
CPAP Pressure: 6-20
CPAP Software: SleepyHead EncoreViewer

Other Comments: cms 50D Plus

Sex: Male
Location: Erie, Pennsylvania

Post: #3
RE: Got my results and am now afraid to go to sleep
I am glad you have taken the first steps in fixing your sleep problems. I understand your inital aprehensions about going to sleep now that you know how severe your sleep problems are. If you have a recliner you might try sleeping in that for a week or so until you get your triation study and machine. That way your airway will stay open better..
It is just a suggestion

Someone once asked me how I adjusted to CPAP so well--I thought for a moment and said I had two choices CPAP or DEATH..The choice was easy..
04-25-2012 09:36 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
jdireton Offline

Preferred Members-2

Posts: 149
Joined: Feb 2012

Machine: Resmed S9 Elite
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage FX
Humidifier: Resmed H5i
CPAP Pressure: 12
CPAP Software: ResScan

Other Comments: ClimateLine Hose

Sex: Male
Location: Florida

Post: #4
RE: Got my results and am now afraid to go to sleep
I'm not abnormal here, 107 events per hour during my sleep study and O2 sats down to 60%.

You have some adjustment ahead! Keep us up to date and maybe we can help. Anyway, we're here to listen or provide a tip or two.
04-25-2012 10:00 PM
Find all posts by this user Post Reply Quote this message in a reply
CHanlon Offline

Advisory Members

Posts: 292
Joined: Mar 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: ResMed Activa LT
Humidifier: ResMed Hi5
CPAP Pressure: 12 -20
CPAP Software: ResScan SleepyHead

Other Comments: Mirage Activa LT nasal mask

Sex: Male
Location: Ontario, Canada

Post: #5
RE: Got my results and am now afraid to go to sleep
Yeah, freaking is pretty normal. I didn't - believe it or not, I'd done my research before I ever went to my GP for a referral to a sleep specialist. I knew what I had... and honestly, when the lab tech woke me up in the morning and said "I'm going to rush your results to your dr, and suggest they get you on a loaner machine, like, tomorrow..." I really wasn't surprised.

Even when I found out that I was having 68 events an hour... well... honestly that surprised me. I figured it was low - must have been a good night for my study. :-)

Where I freaked was a few months later, when the power went off, and I discovered that there was no way at all that I could sleep *without* the machine. Good thing I have a generator... slept on the couch that night, where I had access to power from the generator.
04-25-2012 10:06 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #6
RE: Got my results and am now afraid to go to sleep
Why you have been fitted with full face mask? imo full face mask shouldn't be first choice you,ll do better with a nasal or pillows.
I understand your concern about getting a machine sooner but suggest take the time to look at various types of machines and your insurance cover especially for periodically replacement parts (masks, cushions, hoses, etc...)
Good luck with next Tuseday titration.
04-25-2012 10:40 PM
Find all posts by this user Post Reply Quote this message in a reply
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #7
RE: Got my results and am now afraid to go to sleep
I would say the mask is more important than the machine. The machine could have all the bells and whistles in the world but be useless if you can't tolerate the mask.

Ask the supplier what their trial period is. Some it is a week, others 30 days. Not every nasal mask is the same, not ever nasal pillow is the same either. Keep trying until you find one you like or at least can tolerate.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
04-25-2012 10:58 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Abearir Offline

Preferred Members

Posts: 22
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model:
Humidifier: H5i
CPAP Pressure: 15
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location:

Post: #8
RE: Got my results and am now afraid to go to sleep
(04-25-2012 09:25 PM)EPSAHM2 Wrote:  Today, I saw the pulmonary dr. We went over my results. They are not good. First, I NEVER get into REM sleep. It took me 3 hours to even get into a measurable sleep level. Then, I would stop breathing an average of 35 times an hour....between 20-40 times an hour all night (well from 3-6).

I am going to have my CPAP titration next tuesday. I was fitted for a mask today. I am very very very concerned. Even my dr was very concerned. But, I suppose, my question is.....WHY arnt they moving faster to get me a machine. I am so scared to fall asleep....that tonight will be the night I stop breathing and NOT wake myself up (which I had no Idea was happening anyway).
Is this a normal feeling after getting results?


Don't sweat it. My AHI was 94 and my O2 levels dropped to 72%..... I made it until I got a machine.

You will be ok.
04-26-2012 07:59 AM
Find all posts by this user Post Reply Quote this message in a reply
greatunclebill Offline

Members-b

Posts: 549
Joined: Feb 2012

Machine: Respironics System one Auto A-Flex
Mask Type: Full face mask
Mask Make & Model:
Humidifier: System one
CPAP Pressure: 8-12
CPAP Software: SleepyHead EncoreViewer

Other Comments: quattro fx full face

Sex: Male
Location: L.A. (Lower Alabama)

Post: #9
RE: Got my results and am now afraid to go to sleep
(04-25-2012 09:25 PM)EPSAHM2 Wrote:  that tonight will be the night I stop breathing and NOT wake myself up

nothing has changed since you had your test. you always, at least in the foreseeable past, have slept with this condition and didn't die. if people stopped breathing and didn't wake up, none of us would be here to help you. the main problem with apnea is not dying in your sleep. the main problem with apnea is the long term negative effects on your heart and other internal organs that can lead to some bad things.
04-26-2012 08:09 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
EPSAHM2 Offline

Members

Posts: 5
Joined: Apr 2012

Machine: unsure
Mask Type: Full face mask
Mask Make & Model:
Humidifier: unsure
CPAP Pressure: unsure
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #10
RE: Got my results and am now afraid to go to sleep
(04-25-2012 10:40 PM)zonk Wrote:  Why you have been fitted with full face mask? imo full face mask shouldn't be first choice you,ll do better with a nasal or pillows.
I understand your concern about getting a machine sooner but suggest take the time to look at various types of machines and your insurance cover especially for periodically replacement parts (masks, cushions, hoses, etc...)
Good luck with next Tuseday titration.


I did try the other two. I actually would prefer the full face mask. I felt like I couldnt breath with the other 2 around my nose.....AND, I know I sleep with my mouth open and would have air leak out my mouth.
04-26-2012 10:22 AM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Sleep latency -study results Dagmar 1 75 Yesterday 10:04 PM
Last Post: chill
  [Diagnosis] Waiting for sleep study results...got Pulse Ox in the meanwhile jds2001 10 308 12-01-2016 03:13 AM
Last Post: kwhenrykerr
Question First Machine, First Night, First results..Help please? SJGino 9 394 11-18-2016 11:55 PM
Last Post: SJGino
  Results Intrepretation GrahamSA 5 350 10-26-2016 08:52 AM
Last Post: Beej
  newbie questions re sleep test results Frances 4 333 10-20-2016 08:21 AM
Last Post: cate1898
  Relative Newby. Need Help w/ Sleepyhead Results Violetskyye 11 614 10-02-2016 10:44 PM
Last Post: Violetskyye
  Resmed MYAIR Events per hr results ressler76 6 1,550 10-01-2016 11:07 PM
Last Post: Sleepster

Forum Jump:

Who's Online (Complete List)