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[Diagnosis] Just Diagnosed, getting my CPAP next week
#1
35, male, 5'10", 160 lbs. Diagnosed with ADHD at age 9, diagnosed with sleep apnea last week.

My diagnosis came as a shock. I had longstanding sleep issues that I had just learned to manage: excessive daytime sleepiness, occasional insomnia, attention/focus issues, sleep paralysis, cataplexy, forgetfulness. Then I was hit with an onslaught of new symptoms earlier this year: unrelenting insomnia, intolerance to caffeine, palpitations, HR spikes, chest pains, ED. Though the new symptoms have since relented somewhat, I got my heart checked out and I was given the same diagnosis by two doctors: you're just stressed! And so they did what any doctor does when they're flummoxed: meds. Vitamin V for the ED and Zoloft for the stress, and get off the ADHD meds.

Well, the pills worked as well as they could have, the ED went away on its own, and the Zoloft, while definitely making me happier, also made me flaky and scatterbrained above and beyond the normal ADHD (losing the Ritalin certainly didn't help either). I tried a few non-stimulant ADHD meds with my psychiatrist but nothing really clicked.

Not sure what I was expecting when I set up an appointment with a neurologist, but given my age, build, and level of exercise, I really didn't think anything would come out of a sleep study. I guess went along because I was hoping for yet another pill to make the sleepiness go away. In any case she ordered a PSG and MSLT, and the sleep apnea was so painfully obvious (AHI of 36.6!) that they canceled the MSLT.

I've got an appointment set up next week to get my CPAP. Still coping with the idea of sleeping with a mask for the rest of my life; I am currently in the denial (I was congested the night of the test! I just need an antihistamine!) and bargaining (contacting an ENT to discuss surgery) phases of acceptance.

But the denial is quickly fading: after turning my FitBit on sensitive, I discovered I'm only getting 3-4 hours of sleep per night; consistent with the 50% sleep quality finding on my PSG.

Trying to find comfort in knowing that relief -- for sleep problems and perhaps even ADHD -- is around the corner.
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#2
Hi bernerbits,
WELCOME! to the forum.!
Good luck to you as you start your CPAP journey.
Hang in there for more responses to your post.
trish6hundred
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#3
Hi bernerbits, WELCOME! to the forum.

OMG! Is there anything you don't have?

Only joking.

Good luck with the CPAP and I hope you get some good sleep.
The journey is not always straight sailing with CPAP though.
There are a few problems at the start with most people, so if you have any problems just pop back and ask the question.
There is no such thing as a stupid question.
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#4
Relax. The dangerous part is over which is not being diagnosed.

Make sure they give you a data capable AUTO cpap machine. They get paid the same but will try to stick you with a single pressure cpap brick machine.

Some folks take to cpap like a duck to water. I did. But i was used to wearing SCBA and masks, so masks didnt bother me.
Wife not so much but after trying several she uses a ESON with a chin strap.

Just a matter of getting used to it. Might as well understand going in that DMEs and Sleepdocs are of little use other than enanling you to get the equipment.
Download sleepyhead, learn to set your own machine, and avoid alot of aggrivation.

The alternative is heart attacks, strokes depression, brain damage, and some other nasties.
Hang around here you will pick up info quick.

Welcome to the hose head ho down LOL
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#5
Quote: The journey is not always straight sailing with CPAP though.
There are a few problems at the start with most people, so if you have any problems just pop back and ask the question.

Yes, google tells me that a lot of people HATE their cpap, and the medical industry's only response is "tough cookies, you have to wear it."

Quote: Make sure they give you a data capable AUTO cpap machine. They get paid the same but will try to stick you with a single pressure cpap brick machine.

This is what she ordered (one of the perks of working for a hospital, you get access to your own charts):

E0601 (CPAP): CPAP auto 4-16 cmH20 with CFLEX 3, a heated humidifier, an AHI recorder and a download in one month. A mask fit to the patient's comfort.

So looks like maybe data capable, and definitely auto is what she ordered.

DMEs? Sleepdocs? I realize being on a forum means learning the inside lingo, but hopefully you have a cheat sheet?
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#6
DME = Durable Medical Equipment aka the company that actually gives you the machine
SleepDocs = Physicians specialized in Sleep Medicine usually along with something else.

That looks like a Philips Respironics machine, hopefully a DreamStation. Make sure it is a Pro model.

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#7
Hello, bernerbits. Welcome to the forum.

Here is a link to Definitions & Glossary - Sleep Apnea and CPAP Terms

Best of luck with your new journey.
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#8
Welcome aboard. It's a journey and there is quite a learning curve, but worth it if you stick with it. Learn all you can. I learned so much about it I ended up writing my own prescription that my doc just rubber stamped. He realized I knew more than he did and was smart enough to let me run with it. If I had just followed the guidance of the sleep lab, I'd still be suffering and probably would have given up. Empower yourself by learning everything you can. This is a great place to start.
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#9
Got a DreamStation Auto yesterday and plugged the data into SleepyHead from last night. AHI 9, down from 36 in the sleep study.

OK, I can't post links or upload images but it's:

http (colon-slash-slash) i (dot) imgur (dot) com (slash) shzLVNl (dot) png
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#10
Allow me:

[Image: shzLVNl.png]

My first thought is Wow, that is a lot of centrals (see the CA events)! Were you sleeping at that time? Keep an eye on these. This might just be your mind and body getting used to this, but it also might indicate other problems and that this is not the right machine for you.
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