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[Diagnosis] Just Diagnosed, getting my CPAP next week
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Maskup Sleepwell Offline

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Posts: 55
Joined: Aug 2016

Machine: Respironics Dreamstation Auto BiPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit F10 FFM
Humidifier: Dreamstation Heated Humidifier
CPAP Pressure: EP 16-20 IP 17.5-20 PS 1.5-4.0
CPAP Software: SleepyHead EncorePro

Other Comments: Untreated AHI 48.0 - Treated AHI 1.1 (30 day average)

Sex: Male
Location: Santa Clarita, California

Post: #11
RE: Just Diagnosed, getting my CPAP next week
Looks like pressure induced CAs above 11 to me. Maybe a range of 8-11 might be worth trying?
09-07-2016 12:29 PM
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bernerbits Offline

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Posts: 102
Joined: Aug 2016

Machine: DreamStation Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: DreamStation Auto Humidifier
CPAP Pressure: 8.5-14
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Nashville

Post: #12
RE: Just Diagnosed, getting my CPAP next week
Zero CAs on my sleep study. They mostly coincide with the higher pressure. I'm gonna wait until I'm sleeping through the night with it before I adjust pressure settings.
09-07-2016 12:36 PM
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Maskup Sleepwell Offline

Preferred Members

Posts: 55
Joined: Aug 2016

Machine: Respironics Dreamstation Auto BiPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit F10 FFM
Humidifier: Dreamstation Heated Humidifier
CPAP Pressure: EP 16-20 IP 17.5-20 PS 1.5-4.0
CPAP Software: SleepyHead EncorePro

Other Comments: Untreated AHI 48.0 - Treated AHI 1.1 (30 day average)

Sex: Male
Location: Santa Clarita, California

Post: #13
RE: Just Diagnosed, getting my CPAP next week
That may be a catch 22
09-07-2016 12:51 PM
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bernerbits Offline

Advisory Members

Posts: 102
Joined: Aug 2016

Machine: DreamStation Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: DreamStation Auto Humidifier
CPAP Pressure: 8.5-14
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Nashville

Post: #14
RE: Just Diagnosed, getting my CPAP next week
I put it up to 7-16 last night, and my DME therapist sent me an angry email the next day saying she was setting it back and not to do it again, and that a doctor's order was required. So I emailed my doctor, who sent a note to my DME and now I'm 8-16. Roundabout but whatever works.
(This post was last modified: 09-08-2016 02:48 PM by bernerbits.)
09-08-2016 02:42 PM
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Sleeprider Online
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Posts: 3,390
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #15
RE: Just Diagnosed, getting my CPAP next week
Pretty funny. I have no problem involving the doctor, but the idea that the DME therapist playing cop is a hoot.

I suspect the data you posted the other day will quickly improve. New users often have CA from distrupted sleep until they get accustomed to the therapy. Also, your starting pressure of 4.0 was not doing you any favors. Best of luck as you continue.

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09-08-2016 02:48 PM
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Maskup Sleepwell Offline

Preferred Members

Posts: 55
Joined: Aug 2016

Machine: Respironics Dreamstation Auto BiPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit F10 FFM
Humidifier: Dreamstation Heated Humidifier
CPAP Pressure: EP 16-20 IP 17.5-20 PS 1.5-4.0
CPAP Software: SleepyHead EncorePro

Other Comments: Untreated AHI 48.0 - Treated AHI 1.1 (30 day average)

Sex: Male
Location: Santa Clarita, California

Post: #16
RE: Just Diagnosed, getting my CPAP next week
Sleeprider is right, it takes some time to adjust to the therapy so patience is key. It's a feedback loop, make a change, look at data for a week and see what impact it had, then repeat the process. You'll get there with some time.

Curious is the doctor a sleep apnea doc or some other general practitioner or something?

I ask because my doc who is an internal medicine guy didn't know as much about OSA treatment as I did, and I ended up writing my own prescription which he rubber stamped that basically gave me free reign to do as I saw fit. I get the sense that non sleep docs generally don't know enough to effectively prescribe pressures, which is why they defer to sleep labs. But, if a pressure is not working, either one has to talk the doc into letting you adjust it (or have free reign as in my case), or defer you back to the sleep lab to get the pressures fixed.

I think it was a combination of things that convinced him to let me do my own thing, one was he realized I knew more than he did and the other he was tired of me repeatedly hounding him to get pressure issues resolved. The options were back to the sleep lab which does not provide the same quantity of data as you get night after night at home on a data capable machine, or back to the sleep lab for a new titration. I convinced him to let me do things my way, and glad he realized what was in my best interest. :-)

Knowledge is a weapon!
(This post was last modified: 09-08-2016 03:36 PM by Maskup Sleepwell.)
09-08-2016 03:24 PM
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bernerbits Offline

Advisory Members

Posts: 102
Joined: Aug 2016

Machine: DreamStation Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: DreamStation Auto Humidifier
CPAP Pressure: 8.5-14
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Nashville

Post: #17
RE: Just Diagnosed, getting my CPAP next week
She's a neurologist, specializing in sleep disorders.

My internist didn't even *consider* sleep apnea. I had to set up the specialist appointment myself. Yay for PPOs.
(This post was last modified: 09-08-2016 03:30 PM by bernerbits.)
09-08-2016 03:27 PM
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Maskup Sleepwell Offline

Preferred Members

Posts: 55
Joined: Aug 2016

Machine: Respironics Dreamstation Auto BiPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit F10 FFM
Humidifier: Dreamstation Heated Humidifier
CPAP Pressure: EP 16-20 IP 17.5-20 PS 1.5-4.0
CPAP Software: SleepyHead EncorePro

Other Comments: Untreated AHI 48.0 - Treated AHI 1.1 (30 day average)

Sex: Male
Location: Santa Clarita, California

Post: #18
RE: Just Diagnosed, getting my CPAP next week
So can you avoid the whole DME cop thing and work directly with your doc in getting your machine dialed in?
09-08-2016 05:11 PM
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bernerbits Offline

Advisory Members

Posts: 102
Joined: Aug 2016

Machine: DreamStation Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: DreamStation Auto Humidifier
CPAP Pressure: 8.5-14
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Nashville

Post: #19
RE: Just Diagnosed, getting my CPAP next week
Possibly. I can ask at my next appointment. I don't mind going through the doctor for now if it's always less than 24 hours to make a change.

Last night I didn't fall asleep until 2. The nasal pillows felt loose, so I tightened the headgear slightly. This made it too difficult to breathe through the mask and I would stop breathing as soon as I started to fall asleep. This happened several times and the machine picked these up as Hypopneas/Centrals. Once I realized it was too tight I loosened my straps and fell asleep quickly.

The good news is that even though I'm getting less sleep due to the adjustment, it's of much better quality, so I don't wake up feeling like I only slept 4 hours.
(This post was last modified: 09-09-2016 07:19 AM by bernerbits.)
09-09-2016 07:16 AM
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Maskup Sleepwell Offline

Preferred Members

Posts: 55
Joined: Aug 2016

Machine: Respironics Dreamstation Auto BiPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit F10 FFM
Humidifier: Dreamstation Heated Humidifier
CPAP Pressure: EP 16-20 IP 17.5-20 PS 1.5-4.0
CPAP Software: SleepyHead EncorePro

Other Comments: Untreated AHI 48.0 - Treated AHI 1.1 (30 day average)

Sex: Male
Location: Santa Clarita, California

Post: #20
RE: Just Diagnosed, getting my CPAP next week
Feeling better is definitely a big step in the right direction!
09-09-2016 12:03 PM
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