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[Diagnosis] help with sleep test
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kisekishiawase Offline

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Post: #1
help with sleep test
i hope theres someone whos kindly enough wanted to help me Sad

i've had 2 sleep test. 1 was long time ago in hospital but i couldn't sleep troughout the night so it would such a waste. one was recently, a home sleep test with oxymeter, 2 belt, and the nassal cannula (but it keeps getting off my nose)

i used xanax low dose so i could fall asleep easier but later i found out that benzodiazepine prevents from deep sleep and i did notice that i got only light sleep. and i feel fine trhoughout the night (no attack). the result appeared to be in normal range only says some breath flow limitation.

my symptom was started long time ago since i was a child i get awaken in the middle of the night cause i wasnt breathing and it keeps happening ever since. the problem is it happens randomly eventhough it has happened many times since the first attack but sometimes there are times when it didnt happened but sometimes its so terrible it almost killed me and causing me to stay awake. i didnt know what it was back then and when i was a child i thought i was to lazy to breathe or i should teach myself to remember to breathe and it will disappear by itself.
sometimes i also get what i learn later is breathe flow limitation. i noticed that i am breathless cause my throat was closing when i was about to relax and doze off. but then again it doesnt happen everyday 1 thing i noticed it likely to happened when my health condition worse.

and cause of all that factors it confused me how to be able to detect those 2 issues on sleep lab when the attack is happening not when it isnt. cause it happens randomly. not to mention that sleep lab costs quite a fortune here and to me.

also i read that apnea could cause heart problem and since i do have heart problem theres a possibility that it causes by that or apnea could makes it worse. i cant ignore that.

also that one issue prevents me from any operation that needs sedation/anesthesia which i might need since if the attack strikes me when im couldnt be able to awake i would die.
those 2 problems concerned me but i dont know what to do.

please give me inputs i would greatly appreciate it. Unsure
08-30-2013 12:12 AM
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Tez62 Offline

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Post: #2
RE: help with sleep test
kisekishiawase, welcome, it doesn't sound like sleep apnea, sleep apnea is more consistent, we stop breathing a number of times per hour every night. Evening people with mild sleep apnea stop breathing on average between 5 -15 times per hour. There are about 70 -80 sleep disorders out there, yours sound like more of a sleep paralysis. I think a sleep study would have picked up if you had sleep apnea. What is your doctor or specialist saying?
08-30-2013 12:24 AM
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PaulaO2 Offline
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Post: #3
RE: help with sleep test
Yes, it doesn't sound like sleep apnea. The home studies are fairly accurate.

It could be a form of panic attack or sleep paralysis. Like Tez said, there's a bunch of sleep disorders out there.

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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-30-2013 01:03 AM
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PaulaO2 Offline
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Post: #4
RE: help with sleep test
You could consider getting a cheap oximeter. Supplier #19 has the CMS50D+ for fairly cheap. You can wear it each night, tracking how low your blood oxygen gets each night. You can then use their software to view the data.
http://www.apneaboard.com/wiki/index.php?title=SpO2_software

PaulaO2
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Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-30-2013 01:05 AM
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kittyhawkchild Offline

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Post: #5
RE: help with sleep test
Hi there,

I have had the same problem since childhood. I will wake up screaming and scare the household to death. Never really knew what caused it but I was terrified to go to sleep after that.

When I started getting so sleepy that I couldn't stay awake during the day when I was in my 60s, the doctor had me tested. It showed that I had extremely low oxygen from cerebral apneas and an obstruction from a deviated septum. Maybe it is something that doesn't show up until latter in life. Not being a doctor or analyst, I can't really say for sure what's happening.

Possibly the reason that you awaken during the night is a panic attack in your sleep. Are you under any kind of stress during the times that you awaken? Maybe you could mention that to a doctor.

Hang in there,
Kate
08-30-2013 03:12 AM
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trish6hundred Offline

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Post: #6
RE: help with sleep test
Hi kisekishiawase,
WELCOME! to the forum.!
I hope you can find out what's causing your sleep problems.
Hang in there for more responses to your post.

trish6hundred
08-30-2013 08:52 AM
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MAPnea Offline

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Post: #7
RE: help with sleep test
I was interested in your symptoms kisekishiawase and in Tez62's mention of "sleep paralysis" so I googled it and found an explanation on Wikipedia. You may find this helpful, too. Here's the link: http://en.wikipedia.org/wiki/Sleep_paralysis

Good luck in finding the cause of your sleep problems.
08-30-2013 10:44 AM
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kisekishiawase Offline

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Post: #8
RE: help with sleep test
hi thanks everyone for replying here Big Grin
i know whats panic attack and sleep paralysis but its not what i experienced cause i wasnt scared at all. my symptoms was dying for not breathing. i know it very well cause ive experienced it many times.
but it does happen randomly. something that i consume can make it worse/triggers it. also when my condition drop. usually some muscle relaxant makes it worse. i also remember long ago whenever i got an injection i got more CSA. i dont know if thats related. the injection was mix of supplement, (b complex, calcium, selenium, etc)
i know its hard to believe for some people but each person body works different ways.
i just hope i could find out more about it.
@paula02 yes some people mention that i should purchase a device to test it at home myself that i can use often so when the attack happens it could be recorded/get detected. well im sure if i can have the device i will be able to detect it better but its quite expensive but i guess i should consider it. maybe an oximeter. but ive read many studies that says many apnea patients don't necessarily desaturate.
(This post was last modified: 08-30-2013 10:42 PM by kisekishiawase.)
08-30-2013 10:26 PM
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vsheline Online

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Post: #9
RE: help with sleep test
(08-30-2013 12:12 AM)kisekishiawase Wrote:  i've had 2 sleep test. 1 was long time ago in hospital but i couldn't sleep throughout the night so it would such a waste. one was recently, a home sleep test with oxymeter, 2 belt, and the nassal cannula (but it keeps getting off my nose)

i used xanax low dose so i could fall asleep easier but later i found out that benzodiazepine prevents from deep sleep and i did notice that i got only light sleep. and i feel fine throughout the night (no attack). the result appeared to be in normal range only says some breath flow limitation.

Hi kisekishiawase, welcome to the forum!

Obstructive sleep apnea is usually strongly positional. Usually, sleeping on our back is the position which most strongly causes obstructive sleep apnea.

1. If you are able to take another home sleep test, if you were to sleep on your back most of the time I think the test would probably be better able to detect obstructive apnea events and qualify you for a PAP machine if you have obstructive sleep apnea.

2. Until you have a PAP machine to protect you, you may want to do something to make sure you will not roll onto your back while asleep. For example, I wear a snug teeshirt with a tennis ball in a pocket sewn right between the shoulder blades, which keeps me from sleeping on my back.

3. I think a pulse-ox like the CMS-50D Plus or the CMS-50F would likely be very helpful for documenting your problem to your doctor, so he will become more concerned and will do more to help you.

4. You may be able to buy a used APAP machine, either from a private seller (sometimes private sellers who have no use for a machine may sell the machine for very small price) or from an Internet vendor such as Supplier #2 on our Supplier List (a link to the Supplier List is at the top of each forum page), but I would not buy one unless it is fully data-capable and has the ability to distinguish between central and obstructive apneas, such as the S9 AutoSet or the PRS1 Auto.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 09-02-2013 04:02 AM by vsheline.)
09-01-2013 05:03 AM
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kisekishiawase Offline

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Post: #10
RE: help with sleep test
i was looking through some oximeter but im confused over some issues.
the oximeter that i can find so far in my area is different than the one used on sleep test and looks like its easy to fall off and can't be wear during sleeping. also when you move around, etc when you're asleep.
i read that it won't be accurate when you move around Sad
(This post was last modified: 09-03-2013 11:48 PM by kisekishiawase.)
09-03-2013 11:45 PM
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