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Dilemma over progress...or lack thereof
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #11
RE: Dilemma over progress...or lack thereof
cate1898,
Agree with you that everyone should be given an APAP. Even here in the US, people are given "bricks" by DME's. But at least you can advocate for yourself or get a doctor to agree to an APAP.

At least untill you can get this all worked out, try to get your pressure raised a bit. A competent doctor or DME should realize that a higher pressure is needed if you are experiencing headaches.
Good luck!

OpalRose
10-01-2015 07:45 PM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #12
RE: Dilemma over progress...or lack thereof
Thanks OpalRose. After about 2 years of these rotten morning headaches I am sooooo anxious to be rid of them!

I will try to contact the DME tomorrow a.m. after my doctors appointment. BTW only about 3% of sleep apnea patients in Ontario actually qualify for an Auto CPAP machine, and sadly I am not one of them.

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

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EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
10-01-2015 07:59 PM
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kaiasgram Offline

Advisory Members

Posts: 242
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #13
RE: Dilemma over progress...or lack thereof
(10-01-2015 07:25 PM)cate1898 Wrote:  In a perfect world, everyone would get an APAP machine as a loaner even if not medically necessary and if I understand it right, after using it for a period of 3-4 weeks or so? the machine would give data and a better idea of where a patient's pressure should be titrated to. Just my non-medical newbie opinion.

Agree. And it doesn't even need to be in a perfect world scenario. The technology is already developed and available for all machines to have treatment data. And it's always medically necessary to have a means of assessing the effectiveness of a treatment. You wouldn't give a patient thyroid medication and then never check the TSH to make sure it's the right dose for the patient...
10-01-2015 08:01 PM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #14
RE: Dilemma over progress...or lack thereof
OK so today I had an appt with my family doctor. While there I discussed the CPAP situation telling him of my symptoms still ongoing and he agree with me that I am not titrated high enough at pressure 6. He thought at least 7 or 8 might be better but he has no authority to change the settings. He said it had to be the sleep doc.

So I called the sleep doc's office back and had a nice chat with his friendly secretary who after hearing what I had to say fit me in to see him next week as it is the only week I am here before I head south. Thumbs-up-2 Banana

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

-------------------------------------------------------------------------------------------------
EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
10-02-2015 10:11 AM
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