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Do any doctors care about the data on my auto cpap
#1
I was wondering if any doctors care about the detailed info on the card in a cpap other than compliance? My doctor could care less about the AHI or anything else on my data card other than compliance if my machine wasn't paid for yet by insurance. I think he doesn't think the machine is accurate at all. I don't care what he thinks I find it useful and it keeps me involved with my treatment. I think he should care. It can tell him that it is working for me or not. If it wasn't for that data I may think it is working but it may not be. So then I guess you make an appointment and say hey I don't feel any better why do you suppose that is? Then my doctor might jump at the chance to send me to the sleep lab again for another $2,000 dollar charge for a follow up. Maybe this is why they don't like using the data on the card?
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#2
You hit the nail on the head

Coffee
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#3
I found that to be a true statement. My doctor doesn't read the data. She only looked at the compliant summary the first month. Otherwise, "see you at the follow up in 6 moths." I happen to think the only reason she wanted me to send her my monthly summaries is because she knew I could produce them after showing her the SH graphs. Not the SH graphs mind you... the summary from ResScan.

Basically this:

[Image: monthlycpapsummary.PNG]

As long as you're compliant (summary data) and the RT or DME keeps getting paid, you're 'on your own' to help yourself.

Happy Father's Day.


Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie

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#4
My Sleep Doctor/Pulmonologist told me he couldn't get information off my SD card.Crazy He didn't even ask what my AHI was! Then I handed him a printout summary of sleepyhead and he barely looked at it. His finger landed on the line that shows compliance, then he said that was good.

I pointed out to him how I tweeted my pressure settings from the 4-20 that he started me with to a narrower range, and how my AHI dropped significantly, and he said it was rare to have an AHI reading of 1 or under. Huhsign

The DME never calls me or asks for my SD card. My insurance doesn't seem to care, they just keep paying.

Your hit the "Nail on the Head" AlanE; you're on your own! Well, except for this Forum! Thanks
OpalRose
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#5
(06-21-2015, 08:08 AM)OpalRose Wrote: AlanE; you're on your own! Well, except for this Forum!

Yes, that is true. This forum is awesome and I spend entirely too much time here. Smile



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie

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#6
Hey, thanks for all the comments. I wanted to think that my doctor was the only one and most would be happy to see that it is working and things look good. I do recall one thread that a person mentioned that they showed the SH graphs to their doctor and their doctor was impressed by the info. That physician asked him to keep bringing them. I just can't understand why the manufacturers of these machines would go through the trouble and expense to make a smart machine when the doctors don't seem to care. I like the idea because I want to know how well it is working for me and I don't want to pay for another lab test to find out if my cpap is working for me or not.
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#7
(06-20-2015, 11:50 PM)Adoniscmj Wrote: I was wondering if any doctors care about the detailed info on the card in a cpap other than compliance? My doctor could care less about the AHI or anything else on my data card other than compliance if my machine wasn't paid for yet by insurance. I think he doesn't think the machine is accurate at all. I don't care what he thinks I find it useful and it keeps me involved with my treatment. I think he should care. It can tell him that it is working for me or not. If it wasn't for that data I may think it is working but it may not be. So then I guess you make an appointment and say hey I don't feel any better why do you suppose that is? Then my doctor might jump at the chance to send me to the sleep lab again for another $2,000 dollar charge for a follow up. Maybe this is why they don't like using the data on the card?

The last time I saw the doctor he didn't even pull the summary data that is sent to him every day. He looked in my sinuses, my throat, lamented again that I didn't want to spend $2500 out of pocket to have my palate burned into submission and said he'd see me in a year.

When he got me the machine in Feb, he left it at 4-20 apap. I've since raised it to 9.6 starting (left the top at 20 though I don't really need it that high. 15 would probably do it.

As afraid as I was to do this, no one has ever said a thing to me about it. I'm like OK I'm a doctor now WHOOO HOOOO.
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#8
(06-21-2015, 11:20 AM)Adoniscmj Wrote: Hey, thanks for all the comments. I wanted to think that my doctor was the only one and most would be happy to see that it is working and things look good. I do recall one thread that a person mentioned that they showed the SH graphs to their doctor and their doctor was impressed by the info. That physician asked him to keep bringing them. I just can't understand why the manufacturers of these machines would go through the trouble and expense to make a smart machine when the doctors don't seem to care. I like the idea because I want to know how well it is working for me and I don't want to pay for another lab test to find out if my cpap is working for me or not.

That was me I believe and was my PCP, Dr. B, and not a sleep doc.
He also wrote me a new machine specific Rx.
He became an ME before adding MD so his perhaps his interest is more understandable.
Not gonna say who he is or everyone in Cincinnasty will clog his schedule Big Grin
I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
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#9
perhaps it was you not sure, but the fact is if you have a doctor that is interested in the SH data I believe you have a good doctor. I wish my doctor was at least a little interested in my data other than compliance. Not to say that my doctor is bad he may just not be very progressive.
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#10
The old adage is applicable here, "The world doesn't want to see your sore thumb, it wants to show you its sore thumb". You are the first responder and the person most interested when it comes to your health care. You have to press others to get them interested. Be forceful and insist on getting an opinion on your data. If the doctor still doesn't look at it with interest, consider replacing him/her with someone more attentive. Keep in mind that your doctor probably doesn't have sleep apnea and you may have to educate him/her as to the value of the data you have mined.
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