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Doc visit update
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Charlie Sue Offline

Preferred Members

Posts: 23
Joined: Oct 2015

Machine: ResMed AirSense10 autoset
Mask Type: Nasal pillows
Mask Make & Model: Airfit p10
Humidifier: integrated with machine
CPAP Pressure: 8-12
CPAP Software: ResScan SleepyHead

Other Comments: struggling...but working on it

Sex: Female
Location: Ohio

Post: #1
Doc visit update
Had a follow up with my sleep doc today. It has been 6 months on apap with some struggle. I think I finally reached the slighly angry, stick up for myself phase of this process. I still do not always know exactly what I am looking at in Rescan and Sleepyhead, but thanks to all of you I am getting a better understanding.

I really do like my doc. He is former military, he does a good job of listening, and I don't find that he is dismissive. For me, it has been sorting through everything to decide what to talk to him about--or point out.

We agreed changing too many variables at once wouldn't tell us what worked or didn't. We agreed I'd finish titrating off a sleep med I have been on for 25 years, I'd try a new mask, and we try a teensy 1cm H20 EPR, then wait a month and consider a small bump in minimum pressure if I still think I need it. Doc knows I can get into the clinician menu to adjust and that did not seem to be a big problem.

Then it was off to the devil--err I mean durable medical equipment company. I bought an Amara View mask and will give that a try for a month. Seems like a good idea with allergy season looming here in Ohio.

Bottom line...feeling more empowered and not giving upI-love-Apnea-Board

Thanks for listening.

Charlie Sue
03-22-2016 01:37 PM
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OpalRose Offline

Monitors

Posts: 3,155
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Doc visit update
Charlie Sue,
Glad your appointment went well and you have a good relationship with your doctor.
I like your nickname for your DME. Got a chuckle out of that.

Mine just sent me the wrong size nasal pillows again. You would think after 16 months, they would get it right! Oh-jeez

OpalRose
03-22-2016 01:53 PM
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PoolQ Online

Advisory Members

Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Sillicon Valley

Post: #3
RE: Doc visit update
Personally I love the Amara View even though there are some tricks to using it. Guessing that most masks have tricks to get them right.
Do not over tighten, it will hurt your nose.
When you look at where your nose goes you will see a slot to breathe through and a silicon strap part the goes against your face. This strap lies flat against your upper lip and not the underside of you nose.
The mask should just cover the very end of your nose.

Good luck and enjoy
03-22-2016 02:43 PM
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Charlie Sue Offline

Preferred Members

Posts: 23
Joined: Oct 2015

Machine: ResMed AirSense10 autoset
Mask Type: Nasal pillows
Mask Make & Model: Airfit p10
Humidifier: integrated with machine
CPAP Pressure: 8-12
CPAP Software: ResScan SleepyHead

Other Comments: struggling...but working on it

Sex: Female
Location: Ohio

Post: #4
RE: Doc visit update
(03-22-2016 02:43 PM)PoolQ Wrote:  Personally I love the Amara View even though there are some tricks to using it. Guessing that most masks have tricks to get them right.
Do not over tighten, it will hurt your nose.
When you look at where your nose goes you will see a slot to breathe through and a silicon strap part the goes against your face. This strap lies flat against your upper lip and not the underside of you nose.
The mask should just cover the very end of your nose.

Good luck and enjoy

Thanks for the tips!

Charlie Sue
03-22-2016 03:19 PM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: Doc visit update
Hi Charlie Sue,
It’s great to hear your appointment went well and that your Dr. listens and doesn’t dismiss what you have to say.
Keep up the good work.

trish6hundred
03-22-2016 07:31 PM
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