I don't have a "sleep doctor". My doc is an internal medicine specialist, so he doesn't really have any vested interest in the sustained subordination of apneacs. He's not really the kind of person who would be like that even if he did have a vested interest anyway.
I can't remember if I ever mentioned Apnea Board by name, but I told him about on-line support and finding out how to change my own pressure, etc. He is 100% supportive.
What's a sleep doc?
I had a PCP who initially diagnosed my apnea and sent me to the sleep lab.
I got my sleep study results from the sleep lab as I was leaving town, they came out in their parking lot and handed it to me through the drivers window.
I got a prescription and referral to a DME from a friend who happened to be a doc.
I did my research here and told the DME what I wanted.
Moved again recently, new insurance and new PCP. Told the new doc what I wanted, jumped through some hoops, told the DME what I wanted, had to convince the RT to give me what I asked for (he might have been right in not recommending the Quatro FX).
I did have one visit with a sleep doctor about a year ago. He looked at my S9 and a printout. We chated for a few minutes. He didn't tell me anything I hadn't already learned here.
So I guess this board is my sleep doctor and no one here has complained yet.
I didn't mention Apnea Board by name, but I told my doctor that I bought my machine on Craigslist and then searched the internet for the instructions so I could do my own setup. My doctor didn't say anything but he didn't seem too happy about it.
I, too, haven't mentioned this forum by name, but I've told my doc about doing some self-educating online via an apnea group. He knows that the forum has given me the ability to use ResScan software, make printouts from it and change pressures on my machine. So, he has been able to see that although I know how, I have restrained myself from making pressure changes without his input. It's sort of an unspoken gentleman's agreement we have. He has expressed his concern about possible negative results of a pressure change without his involvement, and that's OK with me.
At the same time, he has made positive observations about my being a well-informed and involved patient (I thought his tone was also saying he wished some of his other pts. were too).
When I showed him how a forum member gave me the idea of using earplug silicone to add to my mask's seal to eliminate leaks at my higher pressure, he was quite interested and took me to see the sleep lab director to share the idea with her.
I have seen my "sleep doc" a grand total of just 3 times in..how many years? 12?
Anyway, I told my GP about how I got a dumb brick machine and then bought another out of pocket. I told her of this list (not by name I don't think). She was shocked to find out there are CPAP machines that collect no data. She compared it to an insulin pump that just injects without telling the patient what it was doing. So the patient could do nothing to assist in their own treatment.
She's a cool doc and has agreed to help me with my sleep apnea in any way I need. We both agree that she can do the same thing the sleep doc does - nod and say "continue on". We laughed.
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