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Does Your Sleep Doc Approve of Us?
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PollCat Offline
Apnea Board Polling Administrator
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Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
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Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #1
Does Your Sleep Doc Approve of Us?
When I told my current sleep doctor about my involvement with this website/support group, he was all for it. I'm wondering whether you've told your doc about us and if so, what his/her reaction was.

RATS!!! Oh-jeez Now I remember why we started using the LimeSurvey software: polling does not handle multiple questions. Perturbed Guess you can provide written comments here or wait until I can create a new survey/poll for this discussion.Thinking-about


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.
INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(This post was last modified: 05-16-2013 03:12 PM by PollCat.)
05-16-2013 03:02 PM
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Vince Green Offline

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Location: London England

Post: #2
RE: Does Your Sleep Doc Approve of Us?
They should be in favour, its saving them work.They have to give out the same instructions and answer the same questions over and over. If there is a forum that answers the questions it means they don't have to.
(This post was last modified: 05-16-2013 03:15 PM by Vince Green.)
05-16-2013 03:13 PM
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PollCat Offline
Apnea Board Polling Administrator
Monitors

Posts: 1,576
Joined: Feb 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #3
RE: Does Your Sleep Doc Approve of Us?
Some aren't too crazy about patients knowing how to change their own pressure(s) among other things. You missed the first part of the question, did you tell your doc about us?
05-16-2013 03:20 PM
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LolaBelle Offline

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Sex: Female
Location: Pennsylvania

Post: #4
RE: Does Your Sleep Doc Approve of Us?
I love this forum Smile Ive received tons of help already! And once I get my machine I know ill be back with more questions and you amazing people will be there!

And I already took that survey but I didn't mention you guys to my doctor I don't plan on see her again tho Im planning on moving to the sleep specialist in PA where I live so I will mention you guys when I do Smile
(This post was last modified: 05-16-2013 04:23 PM by LolaBelle.)
05-16-2013 04:21 PM
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jgjones1972 Offline

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Posts: 516
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Machine: ResMed S9 AutoSet
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CPAP Pressure: 18 - 20
CPAP Software: ResScan SleepyHead

Other Comments: CMS50I PulseOx

Sex: Male
Location: Ohio - USA

Post: #5
RE: Does Your Sleep Doc Approve of Us?
I don't have a "sleep doctor". My doc is an internal medicine specialist, so he doesn't really have any vested interest in the sustained subordination of apneacs. He's not really the kind of person who would be like that even if he did have a vested interest anyway.

I can't remember if I ever mentioned Apnea Board by name, but I told him about on-line support and finding out how to change my own pressure, etc. He is 100% supportive.
05-16-2013 05:22 PM
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bwexler Offline

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Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
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CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #6
RE: Does Your Sleep Doc Approve of Us?
What's a sleep doc?
I had a PCP who initially diagnosed my apnea and sent me to the sleep lab.
I got my sleep study results from the sleep lab as I was leaving town, they came out in their parking lot and handed it to me through the drivers window.
I got a prescription and referral to a DME from a friend who happened to be a doc.
I did my research here and told the DME what I wanted.
Moved again recently, new insurance and new PCP. Told the new doc what I wanted, jumped through some hoops, told the DME what I wanted, had to convince the RT to give me what I asked for (he might have been right in not recommending the Quatro FX).
I did have one visit with a sleep doctor about a year ago. He looked at my S9 and a printout. We chated for a few minutes. He didn't tell me anything I hadn't already learned here.

So I guess this board is my sleep doctor and no one here has complained yet.
05-16-2013 05:40 PM
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big_dave Online

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CPAP Software: SleepyHead

Other Comments: Former ResMed S8 Autoset II user

Sex: Male
Location: Eugene, Oregon

Post: #7
RE: Does Your Sleep Doc Approve of Us?
I didn't mention Apnea Board by name, but I told my doctor that I bought my machine on Craigslist and then searched the internet for the instructions so I could do my own setup. My doctor didn't say anything but he didn't seem too happy about it.
05-16-2013 06:34 PM
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Dawei Offline

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Machine: ResMed S9 AutoSet
Mask Type: Other
Mask Make & Model: Respironics "FitLife"
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CPAP Pressure: 10-20
CPAP Software: ResScan SleepyHead

Other Comments: Began CPAP in 2006; spent the first 6 years with a "brick"

Sex: Male
Location: Western North Carolina

Post: #8
RE: Does Your Sleep Doc Approve of Us?
I, too, haven't mentioned this forum by name, but I've told my doc about doing some self-educating online via an apnea group. He knows that the forum has given me the ability to use ResScan software, make printouts from it and change pressures on my machine. So, he has been able to see that although I know how, I have restrained myself from making pressure changes without his input. It's sort of an unspoken gentleman's agreement we have. He has expressed his concern about possible negative results of a pressure change without his involvement, and that's OK with me.
At the same time, he has made positive observations about my being a well-informed and involved patient (I thought his tone was also saying he wished some of his other pts. were too).
When I showed him how a forum member gave me the idea of using earplug silicone to add to my mask's seal to eliminate leaks at my higher pressure, he was quite interested and took me to see the sleep lab director to share the idea with her.
05-16-2013 08:06 PM
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SuperSleeper Offline

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CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #9
RE: Does Your Sleep Doc Approve of Us?
If memory serves (which is a big "if"), it's been years since I went to any doctor at all, so I haven't mentioned Apnea Board to any physician in person. I have handed out the Apnea Board Handout Flyers to my local sleep center, but that was the only time I've been there since being diagnosed back in 2004.

Coffee

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

05-16-2013 08:32 PM
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PaulaO2 Offline
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Machine: S9 Autoset
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CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #10
RE: Does Your Sleep Doc Approve of Us?
I have seen my "sleep doc" a grand total of just 3 times in..how many years? 12?

Anyway, I told my GP about how I got a dumb brick machine and then bought another out of pocket. I told her of this list (not by name I don't think). She was shocked to find out there are CPAP machines that collect no data. She compared it to an insulin pump that just injects without telling the patient what it was doing. So the patient could do nothing to assist in their own treatment.

She's a cool doc and has agreed to help me with my sleep apnea in any way I need. We both agree that she can do the same thing the sleep doc does - nod and say "continue on". We laughed.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-17-2013 11:05 AM
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