The RN in my sleep docs office warned me that if he finds I have changed any of my setting he won't see me any more. Not sure that's anything to worry about as his RN does most of the work anyhow.
"Sometimes the magic works . . . and sometimes it doesn't" -- Chief Dan George in the movie Little Big Man
Seems like a legal issue. If I were a doctor and I prescribed CPAP at certain settings, I would be nervous about my patient changing those settings.
I think I've been dropped by my sleep doctor. My last follow-up was early August last year, but his office hasn't contacted me to schedule my annual appointment.
Seriously though... I had Kaiser at the time. I realized I had sleep apnea, and when I finally gave up hoping that it would go away, I went in. They loaned me a machine that measured how red my blood was during the night. They looked at the results and said, Yeah, you've got it bad. Here's your prescription, now get out.
I no longer have Kaiser, and I certainly don't have a sleep specialist doctor. It's my understanding that 1, even if you find one, it takes three months to get an appointment, and 2, they're very expensive. And for what? I already know my problem and how to fix it.
That's OK though. All I want is a decent machine and the ability to adjust the pressure. I've had one for several years now and it's been working out well enough. About time for a replacement though.
My DR just rubber stamped whatever the sleep study titration said...the sleep study was obviously flawed..I didnt even think I fell asleep once..they told me I had and I could go home if I wanted to..found out years later I was alseep (just barely enough to even register as sleep) for a total of just 2 hours the entire study.
My Dr changed my bpm setting from 12 to 16..made my AHI skyrocket to over 50 and then looked me in the eyes and said my data looked good and I was doing great a year later...umm no...I raised cain..told him I needed and Autosv from my research..he no you dont..you need a trilogy...(a 15,000 dollar ventilator for people with respiratory diseases???)
.I demanded he help me...instead, he handed me off to the nurse practitioner in his office who was as worthless as he was.
Long story short...I stopped all communication with them....bought myself an asv online..set the pressure myself and now my AHI is sub 2.0
They dont want you to know you can help yourself and bypass them completely...
I don't believe anything I hear and only half of what I see