Post Reply 
Don't know what I would do ...
Author Message
OMyMyOHellYes Offline

Advisory Members

Posts: 913
Joined: Mar 2013

Machine: Respironics 560 Auto
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage FX
Humidifier: Respironics System One (no heated hose)
CPAP Pressure: 08.0-15.0 cm/H2O
CPAP Software: EncoreBasic

Other Comments:

Sex: Male
Location: Texas

Post: #1
Don't know what I would do ...
I was thinking this evening about how frickin absolutely dependent I am on the PAP therapy.

Since getting my first S8 - I don't know for sure - maybe 10 years back - I can absolutely name every night that I tried to go without PAP. Once was probably about at the year to two year mark and I had to get to Vegas for a conference. I was running late, and slap forgot the machine. Worst four nights in memory. Next one was when I went in for a sleep study and they denied me the use of the machine for testing. Good sleep drugs were the only way I could get to any form of (bad) sleep that night. I know ...

So, for that entire period, I have tried sleeping without the machine for five nights. Four and a half, really, as the last three hours of the sleep study were titration.

The thought of doing without causes a level of deep anxiety.

OMM
(This post was last modified: 12-10-2014 06:31 AM by OMyMyOHellYes.)
12-09-2014 10:23 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Ghost1958 Offline

Advisory Members

Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #2
RE: Don't know what I would do ...
I cant and wouldnt sleep without my machine. My O2 is fine on it but drops like a rock during sleep without it. Think awakened confused, unable to focus old hibernating grizzly bear in a bad mood and you about have the scenario for around four hours of the morning.

Weather has not turned horrible yet, so I could get by with a car battery right now if I simply had too. But a generator is the xmas present the wife and I are giving each other to supply power for both our cpaps for when the power does go down for days which it invariably does in the winter here.

Have no desire to sleep without it nor does the wife to sleep without hers and wont if it can be helped at all.
12-09-2014 11:00 PM
Find all posts by this user Post Reply Quote this message in a reply
Galactus Offline

Advisory Members

Posts: 1,384
Joined: Jan 2014

Machine: Phillips Respironics System One PRS1 DS760P Auto BiPAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: System One Heated Humidifier + Climate Line
CPAP Pressure: E/I 13/20 PS 4/7 BiFlex 3
CPAP Software: SleepyHead EncoreBasic

Other Comments: Sleep can be a good thing.

Sex: Male
Location: USA

Post: #3
RE: Don't know what I would do ...
Since getting to drive at about 13 I have not had any desire to walk 2 miles into town and get a candy bar or a soda. I feel the same about my PAP machine. So many speak of how "they can't do this or that" I'm thankful that this horrible situation is so easily treated. Kudos to all those that were diagnosed 10-15 years ago when the equipment was far more primitive than it is now, and there were far less options and support for you, and yet you still managed to persevere and get treatment.

If everyone thinks alike, then someone isn't thinking.
Everyone knows something, together we could know everything.
12-10-2014 09:12 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #4
RE: Don't know what I would do ...
I too am one who is worried enough about even napping without my 'dream machine', that I have multiple spares of everything. I even have my old 'brick' unit that only blows one pressure with no other bells-whistles (but still works great) to fall back on if needed.

I traveled once for work to a conference, and forgot my mask~! Had everything else. Was a 3 day deal so had my lovely wife overnight my mask to me at a vast expense.

And yes, the dark early days of CPAP were something else to be sure~!

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
12-11-2014 08:22 PM
Find all posts by this user Post Reply Quote this message in a reply
OMyMyOHellYes Offline

Advisory Members

Posts: 913
Joined: Mar 2013

Machine: Respironics 560 Auto
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage FX
Humidifier: Respironics System One (no heated hose)
CPAP Pressure: 08.0-15.0 cm/H2O
CPAP Software: EncoreBasic

Other Comments:

Sex: Male
Location: Texas

Post: #5
RE: Don't know what I would do ...
(12-11-2014 08:22 PM)Peter_C Wrote:  I too am one who is worried enough about even napping without my 'dream machine', that I have multiple spares of everything.

The DeVillbiss Intellipap that I "stole" from a pawnshop is, in addition to being a primary backup, stationed on the coffee table next to the recliner. On weekends, I put that mask on , turn the TV to whatever show is something that I can tolerate watching for a while, and then sleep. Sometimes for a few hours.

I think maybe I should change the name on the unit to Intellinap.

On nights when I can't get sleep in the bed, the recliner and that Intellipap are often the solution.

OMM
12-11-2014 10:02 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Post Reply 


Forum Jump:

Who's Online (Complete List)