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Doubting Diagnosis
#11
(12-02-2014, 10:47 PM)eviltim Wrote: Make sure you are monitoring the vitamin D with blood tests. It's dangerous to take too much.

"Severe" merely refers to your AHI number. There are a variety of other factors (oxygen saturation for instance) that play into how bad the apnea makes you personally feel.

Yup. All good. Vitamin D is still under lower limit. Was 21, is now 53. Normal range is 60 to 160. my immunologist wants me at 100. The tests were exacerbated by my condition, but the severe label is stuck now for the transport people.
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#12
Oh, I get it. I didn't realize the severe label has implications for your job. So are you under some regulations stricter than someone with mild/moderate would be? That sucks.
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#13
Sorry if I caused confusion by moving this discussion from the Success Stories thread to here and creating the thread title Doubting Diagnosis.

In your first post, Mike, you were wondering if the data you posted looks like the stats of a severe apnea case. I thought that by moving that query here to a new thread you'd be able to get better responses. We want the Success Stories thread to be a place where people can go for inspiration. It's better if the type of back-and-forth discussions that naturally arise when people ask for help occurs in separate threads.

So, anyway, if you set your machine to a fixed pressure of 4 and get a AHI of 30 or more that will confirm the diagnosis.

I still think it would be better if you just used the machine the way it's intended for a month and experience the benefits. There's a greater impact on your health than can be measured by the AHI. Things like oxygen desaturation, length of apneas, and number of awakenings that are not measured by the AHI but have an impact on your health and on how you feel.

You will begin to experience a clarity of thought that you haven't had in years. We attribute the brain fog to a natural part of getting old, but in fact it's caused by a lack of high-quality sleep.
Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#14
(12-02-2014, 11:04 PM)eviltim Wrote: Oh, I get it. I didn't realize the severe label has implications for your job. So are you under some regulations stricter than someone with mild/moderate would be? That sucks.


Yup. That's it exactly. Ordinarily I would be able to print and post or email a report to them, to show compliance etc. Now I will have to visit a specialist and do sleep tests etc or change jobs. No more truck license, and I'm guessing no more dogging or working with cranes which would suck, as I like my job. Up until 2 days ago I was worried that they would take it off me anyway. It has been somewhat stressful to say the least.
(12-03-2014, 12:38 AM)Sleepster Wrote: Sorry if I caused confusion by moving this discussion from the Success Stories thread to here and creating the thread title Doubting Diagnosis.

In your first post, Mike, you were wondering if the data you posted looks like the stats of a severe apnea case. I thought that by moving that query here to a new thread you'd be able to get better responses. We want the Success Stories thread to be a place where people can go for inspiration. It's better if the type of back-and-forth discussions that naturally arise when people ask for help occurs in separate threads.

So, anyway, if you set your machine to a fixed pressure of 4 and get a AHI of 30 or more that will confirm the diagnosis.

I still think it would be better if you just used the machine the way it's intended for a month and experience the benefits. There's a greater impact on your health than can be measured by the AHI. Things like oxygen desaturation, length of apneas, and number of awakenings that are not measured by the AHI but have an impact on your health and on how you feel.

You will begin to experience a clarity of thought that you haven't had in years. We attribute the brain fog to a natural part of getting old, but in fact it's caused by a lack of high-quality sleep.


Lol. I never paid any attention to the title, and was beginning to wonder how I had been so unclear. No dramas. As for the using of the machine...I have just about gotten into the habit now. I will have to anyway for compliance. As for the clarity of thought, hand/eye coordination and alertness, these are actually fine. I can still problem solve well, can keep on top of multi-tasking, and still feel totally relaxed drifting a bike on one wheel through a 25 kmph corner at 80 kays with my wrist as wheelie/traction control (at the track of course).

I probably get less uninterrupted sleep caused by the itching that goes with my psoriasis than anything else (BTW all these issues began to manifest in 1992...the year after I came back from the first Gulf War. It seems likely that one or more or a combination of the injections has caused a lot of Gulf War vets to no longer be able to produce Vitamin D. Vitamin D affects a surprising number of things. Unfortunately there is so much conflicting information it seems it must be taken on a case by case basis.
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#15
Dancing Winner! Winner! Chicken dinner! (Actually, I did have a chicken dinner. Dielaughing ) I got my letter. I will get to keep my Truck license etc, and the specialist took one glance at my report, and printed charts, and was well pleased with how it was working. Told me I would need my SD card, which I promptly reached into my pocket for.Cool 190 bucks once a year I can live with. Might have to start a thread for other people with truck licenses etc, so they can have a read, and don't need to freak out about their livelihood for 12 months. It has not been pleasant. Well relieved.
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#16
(12-05-2014, 08:23 AM)ozzydudemike Wrote: Might have to start a thread for other people with truck licenses etc, so they can have a read, and don't need to freak out about their livelihood for 12 months.

That's a good idea. How much of that information applies to people who operate in other countries and states?

Quote:It has not been pleasant. Well relieved.

Glad it all worked out for you. You'll also get the benefit of a longer, happier, and healthier life.
Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#17
(12-03-2014, 05:30 AM)ozzydudemike Wrote: Lol. I never paid any attention to the title, and was beginning to wonder how I had been so unclear. No dramas. As for the using of the machine...I have just about gotten into the habit now. I will have to anyway for compliance. As for the clarity of thought, hand/eye coordination and alertness, these are actually fine. I can still problem solve well, can keep on top of multi-tasking, and still feel totally relaxed drifting a bike on one wheel through a 25 kmph corner at 80 kays with my wrist as wheelie/traction control (at the track of course).

I probably get less uninterrupted sleep caused by the itching that goes with my psoriasis than anything else (BTW all these issues began to manifest in 1992...the year after I came back from the first Gulf War. It seems likely that one or more or a combination of the injections has caused a lot of Gulf War vets to no longer be able to produce Vitamin D. Vitamin D affects a surprising number of things. Unfortunately there is so much conflicting information it seems it must be taken on a case by case basis.

Regardless of the job, you should keep using your machine and get it adjusted if necessary. You're entitled to feel really good and if it takes a hose with a blower on the end, that's what it takes.

You'll feel like a completely new person and live longer, and if you drive a truck, won't be one of the guys who spend their time trying to keep it between the lines.

Terry
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#18
I'm a bit late to dinner on this one Ozzy, but the thing that really stands out to me is your ability to eliminate Prednisone. Good job that! Not chronically taking prednisone more than just about anything else will help protect your ongoing health. It's good for a short course when you need it, but it's hard to get rid of it once your body is accustomed to it.

oh, and good job on your S9 results too! Wouldn't want to minimize that.
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#19
(12-05-2014, 02:34 PM)Sleepster Wrote: That's a good idea. How much of that information applies to people who operate in other countries and states?

Good question. Thinking-about I've got to call on Monday, and I'll see what I can find out.

(12-05-2014, 03:17 PM)Terry Wrote: Regardless of the job, you should keep using your machine and get it adjusted if necessary. You're entitled to feel really good and if it takes a hose with a blower on the end, that's what it takes.

You'll feel like a completely new person and live longer, and if you drive a truck, won't be one of the guys who spend their time trying to keep it between the lines.

Terry

The machine at this point is less of a hassle for me than other problems hampering sleep. Psoriasis being number one on the list. If someone told me tomorrow that licking a cane toad while balancing a poodle on my head would get rid of it, I'd be onto it like stink on...rice. Bigwink (Might have gotten that saying wrong).

As for keeping my truck between the lines...The way it bounces around there is little danger of nodding off.

(12-05-2014, 04:27 PM)retired_guy Wrote: I'm a bit late to dinner on this one Ozzy, but the thing that really stands out to me is your ability to eliminate Prednisone. Good job that! Not chronically taking prednisone more than just about anything else will help protect your ongoing health. It's good for a short course when you need it, but it's hard to get rid of it once your body is accustomed to it.

10 years of that nasty gear at a reasonably high dose. Stuff nearly killed me in the end. And I hate taking pills anyway, so being drug free again is liberating! I don't drink,smoke, or take drugs. I don't do caffeine either.
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#20
At least you had a valid reason for being concerned about the severity of your diagnosis. I see many threads where people are annoyed as to the level of their diagnosis, and I was just about to say what I normally say, which is "having SA is like being pregnant, whether you're a month or 9, you're still pregnant, so whether severe, moderate, or itty bitty, it's still SA, so stop worrying about it", then I read that last bit where you were saying it impacted your livelihood and that makes sense. Glad to hear you have your license, and now the severity is no longer an issue. the main focus should be on having the baby. I mean on getting the best treatment possible. All the best, sleep well.
If everyone thinks alike, then someone isn't thinking.
Everyone knows something, together we could know everything.
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