(03-17-2016 01:18 PM)JudgeMental Wrote: Unanswered questions seem to be in order.. Why it's taken so long to do anything. Has he refused medical treatment. Has your insurance or non-insurance required you to see this particular lackadaisical Physician.?
Hopefully, the new Physician (pulmonary) will indeed see the severity of your husbands unhealthy condition and forge ahead on the matters more quickly. Hopefully, for the best..
Great questions!! Thanks for asking
My husband has gone through many rounds of attempting to seek diagnosis and treatment. He has tried lots of western medical approaches and eastern and naturopathic approaches. He even moved to Arkansas to live full time with a friend there who is a massage therapist and reiki healer. his day was stress free with nothing to deal with other than trying to be positive and open his mind to healing .... but i have to admit, unfornutatly he does not share my spriritual view of the universe and our own roles in creating our experience in life and tends to be quite a pessimist --- he would call this being a realist! haha! I firmly believe he puts too much negative thought into his health which in turn creates a negative health experience.
Sine I have known him over the last 15 years he has circled back and forth between not wanting to see doctors because he had given up and being willing to try again. He is exhausted emotionally from being told it is all in his head, or from doctors being confused and giving up on him.
It is also complicated by chronic pain issues. we don't know what causes the chronic pain (although we have recently found evidence of calcium build-up and narrowing of the passages where nerves go through, loose joints causing frequent dislocations, cysts and other abnormalities and is seeing a physical therapist twice a week now --- i know i know, the number of symptoms are long and i havent even barely touched the surface of them all - its crazy).
Shortly after our son was born about 3 years ago he decided to go on pain medication to increase his ability to be an active and participating father. The pain management aspect of things makes it very complicated in many ways - both in terms of regulations and emotions and also potential complications. My husband has an extreme personality, is very sensitive to what he assumes other people think of him so he has refused to increase his dosage even once since he started taking the medication. he has also refused additional perscriptions for "break through pain" even though drs keep prescribing it him. he cares very much that drs not treat him like he is drug seeking - which most of them inevitably do. it causes a lot of anxiety for him. he is currently tapering off to make sure we get accurate test results and can effectively get a better view of any complications they could be causing.
But i have seen a massive shift lately (the last 5 months or so) in both his symptoms (getting much worse, very rapidly) and his attitude (improving). He has shifted from being a victim to just wanting to live a full and happy life whatever that might mean. He is "all-in" right now. Last October we even moved our family into a tiny 1 bedroom apartment in his father's attic in order to afford the health care costs of doing everything we can try find some answers.
The dr is he is seeing currently is who he was able to find that was willing to work on a pain management program with him without having a diagnosis. the dr believes him and treats him like a real person. before these latest test results he was willing to continue the pain management plan while they explored diagnosis. so he has been hesitant to insult or bypass him in any way. the only reason he started seeing this new dr was because his last pain management dr moved out of town and was a 4hr drive away.
(03-17-2016 03:00 PM)justMongo Wrote: The echocardiogram should reveal issues that might have been caused by Rheumatic Fever.
I think you're now on the right path and asking the right questions. The doctors should be able to give you better answers soon.
Thank you so much for your attention. my social circle is small right now so it is good to even just vent a bit and know that my concerns aren't necessarily over reacting!!