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[Equipment] FFM turning the corner for me!
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PaulaO2 Offline
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Moderators

Posts: 8,068
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #1
FFM turning the corner for me!
I had resigned myself to always having a higher AHI because I have to use a FFM now. I miss using nasal pillows so very very much. But I just could not figure out why I started with the cheek puffing and the lip leaking. I tried chin straps, the PAPcap, all sorts of stuff (I refuse to even discuss lip taping). And while the PAPcap worked (when it was in place) and to some degree the chin strap did too (my skin could not tolerate the material), it just was not working out. I had a line marked in the Sandman's Sand and they crossed it.

I tried several FFMs and settled on the Simplus. Then I tried the Remzzz liners and that fixed the biggest problem (slight leaking into my eyes). But then I went down in size on the mask and continued using the larger size liners. Had lots of leaks. Got the right size liner and boom, gone. The leaks are minimal. I still get sudden spikes 'cause the hose pops off. And I need to make the Woozle to stop some others, but wow. This is amazing.

Then something happened. I dunno what changed. But the AHI dropped. As in dropped from the 3-5 range to the .8-2 range. And I get more .something than ever.

I am sleeping better. I had several nights where I had weird dreams, probably because I was sleeping deeper, getting better REM. I also slept longer than usual but am now back to my usual 8-9hrs.

[Image: SH-results01_zpspdtmg4yr.jpg]

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-23-2015 02:58 PM
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MobileBasset Offline

Advisory Members

Posts: 198
Joined: May 2015

Machine: ResMed AIRCURVE 10 V Auto
Mask Type: Nasal mask
Mask Make & Model: Fisher Paykel Zest
Humidifier: Integrated
CPAP Pressure: 10 (minE 6,maxI 12, PS 3)
CPAP Software: ResScan SleepyHead Other Software

Other Comments:

Sex: Female
Location: Florida

Post: #2
RE: FFM turning the corner for me!
You've done a lot of work. Thank goodness it paid off! I think this is a good lesson for us all.

if you can't decide then you don't have enough data.
07-23-2015 03:05 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,828
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #3
RE: FFM turning the corner for me!
Great story! Proof that having a comfortable solution counts! And that persistence pays!

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
07-23-2015 03:12 PM
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GrammaBear Offline

Advisory Members

Posts: 381
Joined: May 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Air Fit P10
Humidifier: ResMed H5i heated humidifier
CPAP Pressure: 12.2 - 16.2
CPAP Software: SleepyHead

Other Comments: Type 1 diabetes - using Tandem T-slim insulin pump, Dexcom G4 CGM

Sex: Female
Location: northern Illinois

Post: #4
RE: FFM turning the corner for me!
A really encouraging story Paula. I remember you encountered problems with leaks just about the time I signed on with the forum. Your persistence has really paid off and I am happy for you. A good night's sleep is priceless in my opinion. Here is hoping for continued good luck at your place.
07-23-2015 03:22 PM
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #5
RE: FFM turning the corner for me!
Paula,
Your determination in doing whatever is necessary in making that mask work for you has paid off. Thumbs-up-2

I think new folk should be encouraged by your efforts. I remember reading many a post by you and the troubles you've had with different masks. Good for you!

OpalRose
07-23-2015 04:26 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #6
RE: FFM turning the corner for me!
I too started feeling more rested after to switching to a FFM seven months ago. I also wake up less often. Haven't noticed any improvement in my AHI, though.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-23-2015 05:30 PM
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AlanE Offline

Advisory Members

Posts: 1,496
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #7
RE: FFM turning the corner for me!
Good job! I hope to follow in your footsteps some day. I had a nice thread going but I digress. I too will be trying FFM. I like the liberty but lately I cannot keep the pillows in place. Last night was a classic 3am, rip the mask off, storm out of the room, trip over the dog, bang my knee on the door casing... Annoyed-and-disappointed Perturbed

"Alexa, shuffle symphony orchestra playlist"



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
07-23-2015 06:16 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,068
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #8
RE: FFM turning the corner for me!
I've been at this a while. Nasal pillows worked for me for years and I really miss them. But the lip leaking started and nothing I did would stop it.

To have the AHI this low is just amazing. It's not been this low in forever, even with the nasal pillows. That's why my pressure is so high.

But yeah, stick with it. Keep going. Keep gathering data then figuring out what needs to be changed. Keep a record of what changes you make.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-23-2015 07:48 PM
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PaytonA Offline
Wiki Editor
Monitors

Posts: 3,016
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #9
RE: FFM turning the corner for me!
I am very glad for you Paula. It is great when your effort pays off and it sure sounds like yours did.
BananaBananaBananaBananaBananaBananaBananaBananaBananaBanana

Best Regards,

PaytonA
07-23-2015 08:30 PM
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OB-Left Offline

Preferred Members

Posts: 39
Joined: May 2015

Machine: ResMed Airsence 10 Auto
Mask Type: Full face mask
Mask Make & Model: AirFit F10, Mirage Quatro
Humidifier: Integrated
CPAP Pressure: 6 - 12
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Michigan

Post: #10
RE: FFM turning the corner for me!
I too am a firm believer in the FFM cult. Too-funnyBigwink
07-23-2015 09:19 PM
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