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[Equipment] P's fun with FFM
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PaulaO2 Offline
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Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #51
RE: P's fun with FFM
(12-14-2014 12:30 AM)Galactus Wrote:  I have to say I can't imagine how you guys and gals do it with the ffm. I could barely bear the nasal mask that I was initially using, I hate to say I don't know if I could be compliant with an ffm but just the thought of having to use one makes me feel like I'd be buried alive.

How do you even sleep on your side and not have it push against your face and leak? I'm sitting here thought typing and the walls are getting closer and closer....

It's not as bad as I thought it would be. There's a lot of room inside there. I feel less crowded wearing a FFM than I do wearing a nasal pillow w/ headgear and a chinstrap or the PAPcap.

PaulaO2
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Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-14-2014 12:47 AM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #52
RE: P's fun with FFM
Okay, called Bless His Stoopid Heart Ron and left a message. I asked for the FlexiFit 432. I also asked if he could go ahead and send me the next one so we could get this over with. I asked for the Simplus.

If these two don't work and continue to leak into my eyes, I'll give up and return to the chin strap and nasal pillow set up. Looking at last night's data, I had no leaks w/ the chin strap. Tomorrow I'll go without it and see how that is. I went the night before without it but didn't have the freakin' card in. Gah, I hate ResMed sometimes.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-15-2014 01:23 PM
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Ghost1958 Offline

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Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #53
RE: P's fun with FFM
Paula the leak into your eyes thing. Please note when and if you try the Simplus it will ride a bit lower on your nose by design, than the Mirage etc. If you position like a Mirage itll be high on you nose bridge to seal well. Let that roll cushion do its thing. The top of the mask frame really shouldnt even touch your forehead though the straps are cushy enough to pad it if it happens too at some point.

You could always cut a mask liner out of a tshirt and that will stop any percieved leaking into your eyes. I dont use em. Though I read about em and cut my own out of curiosity loosened the mask at the top until it couldnt help but seep air to my eyes the put the mask liner in and though I know it had to seeping air there I couldnt feel it at all.

I weird that way. I like to take something that is working perfectly mess it up on purpose and then try the stuff they say will fix it LOL
12-15-2014 02:30 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #54
RE: P's fun with FFM
I tried the tshirt thing with two different shirts. I cried as I cut them up, too!

The first was too thick and did nothing. The second was a well worn, well loved shirt (but I was no longer allowed to wear it in public). I just could not get it to be without wrinkles so it leaked, too. The Remzzz must be somewhere inbetween.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-15-2014 02:49 PM
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Ghost1958 Offline

Advisory Members

Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #55
RE: P's fun with FFM
Paula the trick to the tshirt thing is the same as the Remzzz. You need a min of 1/4inch outside and cut a small hole in the center. enough to get your nose thru but not enough open up both mouth and nose. Then once the mask is on go all around the edge and stretch you homemade liner all around until the hole opens up enough for your mouth and nose.

I goofed that part up a few times trying to cut the liner to fit the seal with some to spare inside and out and had the wrinkling bunching thing too. But when you cut a small hole in the center a bit bigger than your nose but not much and stretch it the wrinkles disappear and the excess outside the mask curls forward away from your eyes and face so you dont have the material against your face and eyes outside the mask.

Nothing works for everyone but that method worked for me very well when I tried it.

But like I said with the Simplus I dont need it LOL
12-15-2014 02:58 PM
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Peter_C Offline

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Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #56
RE: P's fun with FFM
It is also a good idea to use a man's white cotton undershirt-type T-shirt.

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
12-16-2014 05:20 PM
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becker44a Offline

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Posts: 181
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus Lg
Humidifier: ResMed H5i
CPAP Pressure: Rx 10 - 20cm, Usually 10-14cm
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: NE Ohio, USA

Post: #57
RE: P's fun with FFM
(12-14-2014 12:30 AM)Galactus Wrote:  I have to say I can't imagine how you guys and gals do it with the ffm. I could barely bear the nasal mask that I was initially using, I hate to say I don't know if I could be compliant with an ffm but just the thought of having to use one makes me feel like I'd be buried alive.

How do you even sleep on your side and not have it push against your face and leak? I'm sitting here thought typing and the walls are getting closer and closer....

Hi Galactus,
I *MUST* sleep on my side, or I get lots of nasty clusters, so I wear a backpack stuffed with light but lumpy items. To deal with the mask, I just roll my head pillow in half, and sleep with the mask sort of "hanging" over the edge of the pillow. I can sleep on either side, and the same approach works for the mask.

BTW, I am using Remzzz liners with the Simplus, and that all works very well too. I don't subscribe to the "Use it once and throw it away" method either. I use each liner several times, then they get laundered in a net bag. I'm on the 3rd or 4th round for some of these liners, still working fine.

A.Becker
PAPing in NE Ohio, with a pack of Cairn terriers
12-17-2014 03:35 PM
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AshSF Offline

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Posts: 356
Joined: Oct 2014

Machine: PRS1 D560TS
Mask Type: Nasal pillows
Mask Make & Model: ResMed P10, Bkup: Airfit F10 & Quattro Air
Humidifier: PRS1 60 series with Heated Tube
CPAP Pressure: 8 - 8 w/ Aflex 3
CPAP Software: SleepyHead

Other Comments: Using APAP mode with fixed pressure

Sex: Male
Location:

Post: #58
RE: P's fun with FFM
I am a cpap newbie. Got Airfit F10 as my first mask. I got a Quattro Air a few weeks ago. I wear the Quattro Air and F10 alternately. I am a side sleeper. I use a pretty hard memory foam pillow from Costco. Somehow, I never have to worry about the pillow shifting my F10 or Quattro Air. I wear the mask loose. So loose that the bottom straps actually have some play in them. I use a DIY mask liner too.

I put the mask on, lie down. Switch on the machine, lift the mask up a bit to let the cushion inflate. I then dig my mask into the pillow on both sides, to make sure they will not leak. And they don't. Somehow the air cushion flexes and maintains the seal. I am ultra impressed by the physics behind this. My leak no. on SH, over the last 80+ days have been:

Average: 0.95L/min
95%: 3L/min
% over Threshold: 0.94%

Started APAP 4-20, Closed range to 7.5-14, then straight 8.0 w/ Aflex 3
RDI always below 1. But sleep much much better at straight pressure.
Started on F10, Tried Quattro Air successfully. Finally settled on P10.
12-17-2014 03:59 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #59
RE: P's fun with FFM
I decided to put Ghost out of my misery and tried the Simplus next, skipping over the Flexifit. I picked it up yesterday morning, had a nap with it, then slept last night with it.

While the leaks aren't bad, about the same as the Air, I have to tighten it down a lot to get them to stop. Then I have to tighten it further because the mask literally floats on my face. As in it moves kind of floats. If I don't tighten it, I lay there and it will travel about. Kinda funny, kinda creepy. And as it moves, it starts leaking again. I'm using the small and wondering if I need the medium? Most of the leaks are into my eyes which is what I expected when I started this fun. But I'm afraid the medium would just make it worse. Not sure.

The other problem is my AHI was 8.54 for last night. I'm thinking it is because the air blows my mouth open which pushes my tongue back. I wake up with my mouth dry dry dry, cheeks puffed out in the breeze, and my tongue all the way back. It is not because I am snoring with my mouth open, that's not something I have ever done.

And to add, I was exhausted last night. I've been having a lot of trouble falling asleep plus in a lot of pain. In addition to the exhaustion, I had also taken a Vicodin. Normally, I don't see a rise with this medication. I see prolonged sleep, like the 12hrs I just got, but not the increase in AHI. But it could be the combination of the three (tired, pain, drugged) added with the open mouth dry thing increased the AHI a freakin' amount.

Nap:
       

Night:
       

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-18-2014 02:46 PM
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Kadenz Offline

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Posts: 69
Joined: Apr 2012

Machine: ResMed AirSense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: AirFit F10
Humidifier: AirSense 10 HumidAir
CPAP Pressure: Auto-CPAP
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: England

Post: #60
RE: P's fun with FFM
Hi Paula

My advice on FFMs is to try the Quattro FX. Because it doesn't have a forehead rest, it's less prone to leaks than the Quattro Air.

The F10 also doesn't have a forehead rest, but (in my experience) has to be adjusted with greater care than the Quatro FX.

Although I like the Quattro FX, I prefer to use the F10 because it's lighter and the mask has only three parts which makes it easier to clean.

I've found both to be better than the Quattro Air.

One advantage of the F10 is that the mask and elbow are the same as, and interchangeable with, the Quattro Air.

So if you got an F10, you'd be able to use the cushion and elbow from the Air as spares.

The headgear on the Quattro FX and F10 are different from the one on the Quattro Air.

Re swallowed air, I only very occasionally get that and don't therefore think it's endemic to FFMs.

Good luck with your search for a FFM that works for you.
12-18-2014 02:55 PM
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