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Exasperated with Treatment
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trailrider Offline

Preferred Members-2

Posts: 304
Joined: Feb 2015

Machine: A10 Autoset for Her
Mask Type: Nasal mask
Mask Make & Model: Eson or P10
Humidifier: autoset
CPAP Pressure: 6-12 DME, 7-13 me
CPAP Software: SleepyHead

Other Comments: engineer. EPR at 3, unheated hose, humidity at 2. Routine hose entanglement.

Sex: Female
Location: Ontario

Post: #1
Exasperated with Treatment
I like my machine, mostly. But I'm getting exasperated with my treatment. I wake up un-refreshed. (I had a happy a feeling once, just once on awakening.) Last few days I have a headache.

My AHIs are great, varying between 0.4 and 1.7 for the past two months. My pressures feel fine to me. Sometimes I toss and turn, and I'm getting used to the mask more. I hear tales of high numbers (like 12.7 Manse Hen!) but I don't have that problem.

Three days ago (from Sleepyhead) I could see that the machine ramped up without a trigger event from 7.6 to 10.8. Then it showed a CA(!).

Any ideas oh ye sages of the PAP? Unsure
03-20-2015 10:43 AM
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worn_out_in_lebanon Offline

Advisory Members

Posts: 270
Joined: Jan 2015

Machine: Resmed A10 Autoset
Mask Type: Full face mask
Mask Make & Model: F20 (newest Resmed ffm)
Humidifier: Included, ClimateLine tubing
CPAP Pressure: 13-15, EPR:0
CPAP Software: SleepyHead

Other Comments: I.T. Project Manager. Started CPAP therapy March 16, 2015. Untreated AHI 39.

Sex: Male
Location: TN

Post: #2
RE: Exasperated with Treatment
I don't get that "refreshed" feeling yet. But I am realizing that I am also not getting that almost overwhelming feeling that I really need a nap during the middle of the day either, so for now I'm just reminding myself it's better than it was before. My AHI is still 10, mostly CA. I don't wake up gasping and heart pounding. But still waking up several times a night which can't be good for restful sleep.

The ramp up would most likely be from predictive events (flow limitation or snoring detected).

The CA is most likely because everything was working so well you didn't have enough CO2 buildup to trigger a breath. Also the CO2 threshold shuffles around if you are toggling between sleep and waking, which makes an occasional CA easier to slip in.
03-20-2015 10:55 AM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #3
RE: Exasperated with Treatment
Don't be discouraged. Your body is doing a happy dance now that you are sleeping better even if you don't actually know that when you wake up.

What is your pressure doing? Average, 90%, that sort of stuff. Also, does your flow-limit graph look like the Rocky Mountains, or Nevada's White Sands... I wonder if you might be better off if you raised the low end just a dab.

Also this just came to me: I just read where one of the causes of Altzheimers is sleep deprivation. ........................ Darn, I forgot what I was going to say.
03-20-2015 11:17 AM
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justMongo Offline

Monitors

Posts: 3,853
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #4
RE: Exasperated with Treatment
trailrider: Don't worry about an occasional CA. I bet the duration of that CA was just over 10 seconds -- am I right?
Most of us using PAP have an occasional CA of short duration.

Some people during the start of therapy have a number of pressure induced CAs that abate with time.

The machine will ramp up pressure in response to snore, flow limitation, hypoapnea and an OSA. You may not have had a OSA or hypo -- but if you look at the snore and flow limitation graphs -- I think you'll see a reason for the ramp up in pressure. Snore and flow limitation are precursors to a OSA event; and the machine tries to anticipate and prevent them.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-20-2015 11:18 AM
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Crimson Nape Offline

Monitors

Posts: 1,329
Joined: Oct 2014

Machine: ResMed S9 Autoset
Mask Type: Other
Mask Make & Model: P-10 / F&P Simplus / DreamWear
Humidifier: H5i w/Climateline
CPAP Pressure: 8 - EPR 3
CPAP Software: SleepyHead

Other Comments: CMS-50F & 50IW

Sex: Male
Location: Georgia

Post: #5
RE: Exasperated with Treatment
Trailrider, your body might just not like the change in pressure. Basically, find a "Happy Place" then work on the AHI. What is your average pressure? Somewhere around 10? If so, try a straight setting, using no ramp, of 9 to 10 and forget the AHI. See if that makes you feel any better. Go either up or down from this point until you find that "Happy Place". You can chase low AHI numbers and still feel like crap.

I hope you feel better! Sleep-well

Statistics prove that people who have more birthdays live longer.
03-20-2015 11:29 AM
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GeoffD Offline

Preferred Members-2

Posts: 194
Joined: Sep 2014

Machine: ResMed Airsense 10 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: Integral + ClimateLine
CPAP Pressure: 14-17
CPAP Software: ResScan

Other Comments:

Sex: Male
Location: New England

Post: #6
RE: Exasperated with Treatment
It also might be something completely unrelated to apnea or CPAP. I get those symptoms when I'm dehydrated.
03-20-2015 11:35 AM
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trish6hundred Offline

Advisory Members

Posts: 6,449
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: Exasperated with Treatment
Hi trailrider,
I want to encourage you to hang in there with it, sometimes it takes your body a while to get used to this new way of sleeping.
Good luck to you as you continue your CPAP therapy.

trish6hundred
03-20-2015 04:14 PM
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truetopath Offline

Preferred Members-2

Posts: 421
Joined: Feb 2015

Machine: PR system one 560p auto with a flex
Mask Type: Full face mask
Mask Make & Model: Resumed F10
Humidifier: PR system one
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Lake View, NY

Post: #8
RE: Exasperated with Treatment
Try to stick with it. Everyone adjust differently and feels different benefits at different intervals.
03-20-2015 08:44 PM
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