There is no question about it - forums, especially this Board are of great benefit. In fact, I waited a year after my sleep study to actually get a machine and start treatment. I would never had gotten started if it had not been for this Board and some other websites that I checked. I was able to determine which machine I wanted and which masks I wanted to try in which order. If I had not read the posts on this board, gotten the software etc. I would not have started treatment and certainly would not have had a clue what I was doing or whether the treatment was working or not. The doctor wasn't very helpful and the DME folks are nice but they really don't know how this stuff works. Since I wasn't feeling terrible during the day, I probably would not have started treatment until my BP got terrible and I felt bad. Keep up the good work.
The things they "hide" in the clinician's menu are for the most part silly and the user should have access to them. When the machine (System One) came from the DME, I could check the hours, AHI etc. The sleep Dr changed the pressure and then I could no longer see those numbers.That was when I started looking for the ability to change things. Don't really want to change the pressure, but I want to see the daily numbers, there was even a mask fit check function that I knew nothing about. Since there was discussion whether the mask was leaking (partner said it was and I said it wasn't), I entered the clinician's menu and turned that function on and the discussion was ended with authority. I found a lot of things in that menu that had very little to do with treatment and much to do with comfort (default setting on the humidifier, default ramp times, c-flex and a-flex settings). Access to these has made the treatment easier to live with. Thanks for the Forum!
This forum is the reason I was able to retry using CPAP and be successful this time. The pressure setting they originally gave me was too high for me to sleep. It was 14 and I actually had to reset it to 6 and work my way up to 9. I have used my CPAP every night all night for about 5 months now. I have tried to up the pressure to 10 but as yet can not sleep at that rate. For me its either 9 or nothing and at nine I am sleeping good and not snoring and as my wife hasn't witnessed a stop breathing occurence in me since I went back on the CPAP. Again, I have tried 10 but it is overpowering for me and I end up fighting it and can't sleep. To those against the forum all I can say is I feel good now and am getting rest finally, if I hadn't seen this forum and lowered my pressure I would have just unplugged and given up.