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Falling off the wagon, then slowly finding a way to get back on.
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mdh235 Offline

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Posts: 90
Joined: Aug 2013

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: ResMed F10
Humidifier: H5i
CPAP Pressure: 12.4 - 12.8
CPAP Software: ResScan SleepyHead

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Sex: Male
Location: West Coast U.S.

Post: #1
Falling off the wagon, then slowly finding a way to get back on.
I've been a CPAP user for around 8 months now, and until recently I thought I had adjusted to my new regimen fairly well. Then, around three weeks ago, the wheels started falling off.

First of all, I started waking up around 2:00 am, and couldn't get back to sleep. After a couple of nights like this, I just took the mask off and dozed fitfully until around 5 am or so.

Then I stopped being able to get even that far, not being able to fall asleep at all until I removed the equipment.

I'm a mouth breather, so I favor a full face mask, but had had some success using pillows and a chin strap and mouth tape. Tried that again, no joy.

I tried sleeping without using CPAP at all for a few nights, but felt so crappy in the morning I remembered why I decided to put up with it in the first place.

Finally, in desperation, I returned to my original mask, a ResMed Quattro FX, and replaced all the parts including the headgear. I removed the clutter from my room, made it dark, and turned off all of the LCD clocks I was using. Finally, last night, I was back to having a normal night with CPAP.

I don't know if this a normal occurrence for CPAP users, but in my case I just had try to get back to the mindset I had when I started CPAP, then just make it work.

I hope others, especially people new to this world of masks and hoses and machines might get some solace knowing that "old hands" at this have our problems too, but they can be overcome with a change in mindset, and possibly a refresh of equipment as well.
02-25-2014 08:52 PM
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PaulaO2 Offline
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Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: Falling off the wagon, then slowly finding a way to get back on.
Well, it's also a matter of "sleep hygiene" and that sounds like what happened in your case. Not that you're dirty but that something happened to make your sleep not as good as it should have been.

Google sleep hygiene and see if anything there can help you.

Waking up at 2am is a common thing even for folks who don't use a CPAP. It's a circadian rhythm thing and a mental thing. They've actually come out with some sleep medication that helps you sleep then kicks in at about that time to help you stay asleep. How it knows, no clue. Does it work? For some people, sure.

And it is also a wacky time of year. Sun's been gone for too long, weird weather, weird patterns, etc.

Glad you found something that is working for you. Keep it up.

And let us know if there's anything we can do to help you.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-25-2014 09:01 PM
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trish6hundred Offline

Advisory Members

Posts: 6,449
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: Falling off the wagon, then slowly finding a way to get back on.
Hi mdh235,
I'm glad you found ways to help you get back on CPAP and that you haven't given up on it.
good luck to you and hang in there for more suggestions.

trish6hundred
02-25-2014 09:05 PM
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retired_guy Offline

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Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #4
RE: Falling off the wagon, then slowly finding a way to get back on.
Good reminder stuff for everyone MDH. Any of us could experience a time when we "fall off the wagon." But like many things in life, slipping up does not mean we failed. We just need to regroup and go again. Just as you have. Good job that.
02-25-2014 09:21 PM
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herbm Offline

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Posts: 852
Joined: Jan 2014

Machine: ResMed AutoSet S9
Mask Type: Oral
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: ResMed H5i
CPAP Pressure: 11-16
CPAP Software: ResScan SleepyHead

Other Comments: Backup Mask: Innomed Hybrid FFM -- Oral+Nasal Pillows

Sex: Male
Location: Austin, TX

Post: #5
RE: Falling off the wagon, then slowly finding a way to get back on.
I still think the most reliable way would be to just "lie there quietly" until you fall asleep, always wearing the mask and eventually get tired and sleep must come.

That was my plan, and total commitment.

In my case it wasn't much necessary --- or maybe it was. I did that almost without moving during the titration study but never fell asleep.

There was an attempt to use the F & P Oracle which meant lying for hours until sleep finally came (then returning to the P10.)

Part of the trick is to relax, and accept that you are going to lie quietly and calmly without concern on whether you fall asleep or just rest. Both are good.

Count breaths, count sheep, get up if you wish, but keep the mask on ALL THE TIME.

Giving yourself outs, just encourages your mind and body to take the exit.

Your body will eventually be tired enough it will sleep -- and your unconscious mind will KNOW your commitment and ensure that sleep will come.

Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
02-25-2014 10:12 PM
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Gabby Online

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Posts: 665
Joined: Dec 2013

Machine: ResMed AirSense 10 AutoSet For Her
Mask Type: Nasal pillows
Mask Make & Model: Philips Nuance Nasal Mask
Humidifier: ResMed AirSense 10 For Her
CPAP Pressure: 8-14
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Sunshine Coast, Qld., Australia.

Post: #6
RE: Falling off the wagon, then slowly finding a way to get back on.
Thanks MDH for sharing with us. It's good to know you fell off the wagon and were able to get straight back on again. I have only just climbed on my wagon and if and when the time comes when I have my first fall, I hope I will be as successful climbing aboard again as you have been. Good luck.

Sleep Tight...
Gabby
02-25-2014 11:57 PM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #7
RE: Falling off the wagon, then slowly finding a way to get back on.
mdh235
I can relate to your story. I've been CPAPing for over 3 years, 100% compliant, numbers as good as can get but last few months been having problem going back to sleep when waking up during the night. Usually stay up, put the kettle on for a cup of tea and browse the forum for a while. Most of the time go back to sleep afterwards for couple of hours and at times take an afternoon nap, not exactly sleep hygiene text book
I,ll be having a frank talk with the doctor tomorrow, will see what he got up his sleeve
I,ll disappointed if he is just going tell me about the numbers
02-26-2014 01:35 AM
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comatose Offline

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Posts: 66
Joined: Jan 2014

Machine: ResMed s9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i
CPAP Pressure: 9.8-12.6
CPAP Software: ResScan SleepyHead

Other Comments: Now I am happy coz only some days I'm crappy, thanks to my c pappy :)

Sex: Male
Location: 1 hr from Melbourne, Australia

Post: #8
RE: Falling off the wagon, then slowly finding a way to get back on.
A point not mentioned is daytime activity and how this can relate to your sleep requirements.
I sometimes lay awake and don't sleep well, not because I didn't exhaust myself during the day but because I feel guilty because I didn't do what I should have done during the day, lol, I know, I'm crazy.........
(This post was last modified: 02-26-2014 03:07 AM by comatose.)
02-26-2014 03:00 AM
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DeepBreathing Offline
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Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

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Sex: Male
Location: Perth, Western Australia

Post: #9
RE: Falling off the wagon, then slowly finding a way to get back on.
(02-26-2014 03:00 AM)comatose Wrote:  A point not mentioned is daytime activity and how this can relate to your sleep requirements.
I sometimes lay awake and don't sleep well, not because I didn't exhaust myself during the day but because I feel guilty because I didn't do what I should have done during the day, lol, I know, I'm crazy.........

Nothing crazy about that - it used to happen to me for years. Not so much guilt but things I need to do at the office, or clients I need to face with some bad news. I'd typically wake up at 2 or 3 am and that was me done for the night.

Nowadays I take the attitude of "stuff it - tomorrow can look after itself. Right now I'm going back to sleep".

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-26-2014 04:47 AM
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Sevensox Offline

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Joined: Apr 2013

Machine: REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: ResMed Ultra Mirage Full Face Mask LG STD 60604
Humidifier: System One Heated Humidifier
CPAP Pressure: 16.7
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Missouri

Post: #10
RE: Falling off the wagon, then slowly finding a way to get back on.
It good to remember your not alone. We have all had some sort of episode in our adventure with CPAP. I have been on CPAP for over 8 years now and it is small comfort but sometime when I wake up and can't get back to sleep, I just lay there an rest. At least that is something. Good luck and thanks for sharing your very private experience with us.
02-26-2014 09:59 AM
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