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Fear of Suffocation
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wasserware Offline

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Joined: Jan 2013

Machine: Resmed S9 Elite
Mask Type: Nasal mask
Mask Make & Model: Wisp
Humidifier: H5i
CPAP Pressure: 7
CPAP Software: ResScan SleepyHead

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Sex: Male
Location:

Post: #11
RE: Fear of Suffocation
With the S9 escape, you cannot retrieve any useful data from the machine to monitor your treatment progress with the free software out there. If possible, please exchange the unit to either the Elite or Autoset model which are both data-capable machine. We are very interested in seeing how much better you are going to get with the CPAP therapy and dont give up!
02-13-2013 12:03 PM
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PaulaO2 Offline
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Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #12
RE: Fear of Suffocation
Try taking a nap during the day. Or lay down in bed with it on to acclimatize.

And if you have not had the machine for long, push to get another one. The Escape, like others have said, is a blank machine. No recording of data except for hours used.

Avoid any ResMed with 'Escape' in the name and any Phillips-Respironics with the word "Plus" in the name.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-13-2013 12:22 PM
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Cleome Offline

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Posts: 6
Joined: Feb 2013

Machine: Resmed s9 Escape
Mask Type: Nasal mask
Mask Make & Model: Eson
Humidifier: H5i
CPAP Pressure: 7
CPAP Software: Other Software

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Sex: Female
Location: USA

Post: #13
RE: Fear of Suffocation
The Escape isn't a good machine? Oh dear I have an appt tomorrow to see how I'm doing, and they asked me to bring the machine, it has a SD card in it, I thought it recorded leakage and usage etc..

I slept for 5.5 hours last night, with my relaxation music, I woke up once, and started the music again, and I was fine, I hope I keep it up.
02-13-2013 02:37 PM
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Shastzi Offline

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Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #14
RE: Fear of Suffocation
Cleome, I dont think it means your machine is *bad*.
The Autoset collects a rich set of data each night so you can tell what is happening.
what the folks here mean is that if you can get an Autoset model you can get all your own data off it and more people here will be able to help you adapt better and faster.

Wink
(This post was last modified: 02-13-2013 03:48 PM by Shastzi.)
02-13-2013 03:46 PM
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PaulaO2 Offline
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Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #15
RE: Fear of Suffocation
Yes, all they want to see is the usage hours, what they call "compliance".

As a CPAP, the Escape works, but you have no way of knowing how well it is working other than how you feel. Yes, you could get an oximeter but that's not going to help much. You'll know your blood O2 is dropping but not why or even if it was due to an event.

If you tell them you want a data capable machine, they'll probably tell you the information is useless to you as a patient and only the doctor or them can interpret. That would be false. They will probably tell you there's no way you can even view the data. That would be false, too. It would be on the screen as well as there are two software programs you can use to view it.

But, if you are more comfortable not keeping track of everything, then stick with what you have. And if you would prefer more control, then insist on another.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-13-2013 04:20 PM
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zonk Offline

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Posts: 7,908
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Machine: A10 AutoSet
Mask Type: Nasal mask
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CPAP Pressure: 9/13
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Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #16
RE: Fear of Suffocation
yes the Escape is bad and all same basic machines are bad too and should be banned
and any DME who flog these types of machines to unsuspected sleep deprived ought to have their license revoked or/and sent to the Gulags

cpap is a medical equipment not just a blower
data is very useful tool and necessary part of the treatment
not some bells and whistle or optional extra
02-13-2013 04:52 PM
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Cleome Offline

Members

Posts: 6
Joined: Feb 2013

Machine: Resmed s9 Escape
Mask Type: Nasal mask
Mask Make & Model: Eson
Humidifier: H5i
CPAP Pressure: 7
CPAP Software: Other Software

Other Comments:

Sex: Female
Location: USA

Post: #17
RE: Fear of Suffocation
If there are better machines available then why don't they give them out? My insurance is paying for it and I have a high end insurance. Being new to this I don't know all of the aspects. My appointment to review the progress was pushed back 2 weeks, we had a blizzard here and was without power for a few days, and I also have a severely stuffed up nose right now that had gotten worse throughout the day.

The sleep center said I have to be within "70%" compliance, which means they probably will check how much use my machine has on the SIM card.

When I go in I am going to ask if I can have the Elite or the Autoset...

Why not right? It won't hurt to ask!!!
02-13-2013 07:22 PM
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archangle Offline
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Machine: ResMed S9 AutoSet
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CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

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Location: USA

Post: #18
RE: Fear of Suffocation
(02-13-2013 02:37 PM)Cleome Wrote:  The Escape isn't a good machine? Oh dear I have an appt tomorrow to see how I'm doing, and they asked me to bring the machine, it has a SD card in it, I thought it recorded leakage and usage etc..

I slept for 5.5 hours last night, with my relaxation music, I woke up once, and started the music again, and I was fine, I hope I keep it up.

Not only can YOU not monitor your therapy, neither the DME NOR YOUR DOCTOR can tell ANYTHING about how well your therapy is going, other than when you turned it on and off and what the pressure settings are.

No record of leak data
No record of how many apneas you have etc.

They only collect enough data to get the insurance to pay. That's why it's called "compliance" data. They get paid the same for any CPAP machine, so they're willing to screw you with a less capable machine for a few bucks.

With an S9 Elite or AutoSet, you'll have a record of every breath you take, every apnea, plus an "AHI" number that gives you a good idea if it's working. For instance, AHI less than 5 is "good." AHI greater than 5 is "bad."

In my opinion, using a dataless CPAP is like treating a diabetic without monitoring blood sugar except during a yearly in-lab test. You need to monitor your therapy in the home while you're getting CPAP therapy.

With a data capable machine, you or your doctor can see graphs like the one below. With a dataless CPAP machine, you get nothing like that.

[Image: 318873.jpg]

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
02-13-2013 07:34 PM
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Cleome Offline

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Posts: 6
Joined: Feb 2013

Machine: Resmed s9 Escape
Mask Type: Nasal mask
Mask Make & Model: Eson
Humidifier: H5i
CPAP Pressure: 7
CPAP Software: Other Software

Other Comments:

Sex: Female
Location: USA

Post: #19
RE: Fear of Suffocation
Well the more I hear about this I want the better machine. There doesn't seem to bea such a great price differnce so why don't they just go with the best.

I have been on the Resmed site and have been looking at the differences in the machines. The Escape is listed as "Economy" and the Elite is listed as "Superior"

The Elite is stated as having". Designed for a more natural breathing experience"

Thay sounds good to me. Does anyone think that the Elite will make it easier for me to exhale? It seems as if I concentrate a lot on exhaling, and if the Elite makes it easier, then I want it, and also i will be able to see how my treatment is going!!
02-13-2013 07:45 PM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #20
RE: Fear of Suffocation
(02-13-2013 07:45 PM)Cleome Wrote:  Does anyone think that the Elite will make it easier for me to exhale?
all the S9 series machines comes with EPR even the Escape have that feature too

some find hard to exhale at full pressure which is normal to feel that way at first
and breathing out at lower pressure more comfortable

I started out with EPR and Ramp but after a while as get used to pressure,
turned them off and prefer to start at full pressure but everyone is different
02-13-2013 08:19 PM
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