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Feel worse
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loudnoise1 Offline

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Posts: 7
Joined: Feb 2013

Machine: unsure
Mask Type: Nasal mask
Mask Make & Model: usure
Humidifier: unsure
CPAP Pressure: 8
CPAP Software: Other Software

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Sex: Female
Location:

Post: #1
Ohmy Feel worse
:unsure:;)

Hello,
I am a relatively new CPAP user...got my machine about 6 weeks ago and slowing have been trying to tolerate this new experience. Tried nose mask but experienced chest and back pain, and then pain in all sinus areas as well as headaches. Was switch to a nostral pillow type but would not stay in place properly and felt wasn't getting proper air flow. Went back to nose mask and loosened a bit. Doctor ordered oxygen to be added several days ago...getting to be overwhelming for me. Went from 15 minutes of tolerating it to now a maximum of 3-4 hours... However, I have rarely drifted off to sleep while wearing it, and when I did it was only for a maximum time of 20 minutes. Past four days I have tried desperately to wear it for the four hours per day needed for my insurance to pay for it but afraid I am not going to make it. I suffer from a lot of anxiety in general so I have been experiencing panic attacks and have to remove the mask. I am at a loss because I have many health problems and don't need to feel more ill from using the CPAP. And, does anyone know if I don't make the required time use if my insurance won't pay for the machine..and can I return it it if I can't use it ? I do plan to continue and give it a fair try for another 3 weeks. Thank you for your time.
02-23-2013 12:50 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #2
RE: Feel worse
Hi loudnoise and welcome to Apnea Board.

Here's what I think you should focus on: You have already noticed that you are able to adapt to this therapy. At first you could wear it for only a few minutes and now you can wear it for a few hours.

This is happening because the human body has the amazing ability to adapt.

If you keep at it you will continue to make progress and you will be successful.

Here's some light for you at the end of the tunnel: You can't see it yet but it's there and soon you will. Anxiety is at least aggravated, if not outright caused, by a lack of quality sleep. CPAP therapy will reduce or eliminate your anxiety.

Try wearing the mask and turning on the machine while you are not trying to sleep. Wear it while you're reading, watching TV, listening to music, or whatever it is you can enjoy doing while relaxing. This will help you adapt to the mask and it will also help you reach that time quota.

Before long you'll be sleeping, you'll wake up and wonder if the machine has stopped. You'll check it and find that it is indeed running but you've relaxed to the point that your breathing is so slow and gentle that you don't even notice the CPAP machine running.

Keep trying different masks. Giving up is not an option because you are fighting for your life. And the reward is that your quality of life will improve dramatically. You just have to be patient.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-23-2013 01:02 PM
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loudnoise1 Offline

Members

Posts: 7
Joined: Feb 2013

Machine: unsure
Mask Type: Nasal mask
Mask Make & Model: usure
Humidifier: unsure
CPAP Pressure: 8
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #3
RE: Feel worse
(02-23-2013 01:02 PM)Sleepster Wrote:  Hi loudnoise and welcome to Apnea Board.

Here's what I think you should focus on: You have already noticed that you are able to adapt to this therapy. At first you could wear it for only a few minutes and now you can wear it for a few hours.

This is happening because the human body has the amazing ability to adapt.

If you keep at it you will continue to make progress and you will be successful.

Here's some light for you at the end of the tunnel: You can't see it yet but it's there and soon you will. Anxiety is at least aggravated, if not outright caused, by a lack of quality sleep. CPAP therapy will reduce or eliminate your anxiety.

Try wearing the mask and turning on the machine while you are not trying to sleep. Wear it while you're reading, watching TV, listening to music, or whatever it is you can enjoy doing while relaxing. This will help you adapt to the mask and it will also help you reach that time quota.

Before long you'll be sleeping, you'll wake up and wonder if the machine has stopped. You'll check it and find that it is indeed running but you've relaxed to the point that your breathing is so slow and gentle that you don't even notice the CPAP machine running.

Keep trying different masks. Giving up is not an option because you are fighting for your life. And the reward is that your quality of life will improve dramatically. You just have to be patient.

:bigwink:Thank you for your reply sleepster. I will do as you suggest. What about being ill after using it. I have read several blogs of users also feeling ill, nausea, headaches etc. I worry that some germ will go into my lungs and give me another infection..one of the worst things I have gone through in the past. Have you heard of this before??

Thank you for your reply. I will give your suggestions a try. I am worried that a germ will go into my lungs again and give me another infection..I was so ill and thought it was the end for me before. Should I be concerned.
(This post was last modified: 02-23-2013 01:24 PM by loudnoise1.)
02-23-2013 01:22 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #4
RE: Feel worse
You are getting a supply of air now that's cleaner and better conditioned. It's filtered and humidified and you're not breathing air that passes over dust mites and other nasties in the bedding.

Feeling ill, having nausea or headaches are all possible side effects of just about any stressful experience in life. Just keep doing what you've been doing and give your body a chance to adapt. Focus on what's going on while you're awake and find something you like to do to keep yourself occupied.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-23-2013 01:28 PM
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zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #5
RE: Feel worse
loudnoise1, some people find that when their anxiety is overwhelming a sedative or mild tranquilizer is necessary in the first days or weeks. Talk to your doctor. Have the doctor
document that you are making the effort to use the machine, but because of the anxiety and panic attacks are having difficulty. Your insurance company will be
better able to work with you if your problems are documented. Express your concerns with the doctor.
Yes you can return the machine if you need to do that, but three weeks may not be enough time to adjust. Try not to worry about the machine and insurance or set time limits. Easier said that done I well know. How well do you sleep without the CPAP? I have a relaxing CD that I can listen to through headphones- I concentraate on the music-rarely stay awake to the end. It's not recommended to watch TV when you're trying to sleep, but my partner needs the TV to reduce stres. I have gotten used to the noise and find it relaxes me, too. We set the sleep timer to turn the TV off in an hour and I'm rarely awake when the screen goes black. I don't watch, but don my mask (after a nice cuddle), turn over and go to sleep.
Please keep us posted, write every day for encouragement if need be. Talk out your problems.
It's not unusual to be overwhelmed- you just found out you have a chronic illness that causes you to stop breathing for shrt times during the night. You will go through the stages of grief. If you allow yourself you will work through the stages to acceptance. It can be difficult, but like many things in our lives it makes acceptance and success all the sweeter.
Keep us posted, good luck. Please discuss this with your sleep doctor, print out your post so you don't have trouble expressing yourself.
Mary
(This post was last modified: 02-23-2013 02:28 PM by zimlich.)
02-23-2013 02:26 PM
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Shastzi Offline

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Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #6
RE: Feel worse
I have been on CPAP for four months and more painful/annoying side effects have all but faded away.
Hang in there and try to go for a couple of months time on the hose.

Cheers and best of luck!

=^.^=

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
02-23-2013 03:00 PM
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zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #7
RE: Feel worse
To your query about germs. You should not be concerned about getting a germ from your CPAP, the air is filtered and you should be the only one using the machine. You can buy an additional bacteria filter to put inline with your hose. I have never used one so I don't know quite how it works. There is no guarantee you will not get a lung infection while using CPAP if you are prone to such infections. You will not get an infection from the CPAP in all liklihood.
02-23-2013 03:57 PM
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PaulaO2 Offline
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Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #8
RE: Feel worse
The air from the CPAP is probably better than the air you breathe without the mask.

To allay any fears about germs, just clean the mask daily with a mild soap (cleaning directions should be in the mask's manual).

If I have a cold or flu, I continue to use the mask and machine because I need the sleep to heal. I just make sure I clean the mask daily and air it out. After I am better, I like to do an extra good cleaning more for mental health than an actual need.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-23-2013 05:19 PM
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loudnoise1 Offline

Members

Posts: 7
Joined: Feb 2013

Machine: unsure
Mask Type: Nasal mask
Mask Make & Model: usure
Humidifier: unsure
CPAP Pressure: 8
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #9
RE: Feel worse
Thank you all for your responses and suggestions. It is much appreciated.
02-23-2013 11:01 PM
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Bompa Offline

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Posts: 854
Joined: Mar 2012

Machine: DreamStation Pro
Mask Type: Nasal pillows
Mask Make & Model: Nuance Pro
Humidifier: DreamStation Heated Humidifer
CPAP Pressure: 12.0
CPAP Software: SleepyHead Other Software

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Sex: Male
Location: Falkenburg,

Post: #10
RE: Feel worse
You are certainly getting good advice here. hang in there and don't give up!
Believe me..it will get better and I can attest to that.
Sleep-well
02-24-2013 03:36 AM
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