Post Reply 
Feel worse, AHI the same
Author Message
Daisylouu Offline

Preferred Members

Posts: 69
Joined: Jun 2015

Machine: Philips Respironics Rem star Auto
Mask Type: Hybrid
Mask Make & Model: Mirage Liberty
Humidifier: unsure
CPAP Pressure: 8-16
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #1
Feel worse, AHI the same
I feel worse now that when I was first diagnosed. My original sleep study showed AHI of 19 and 31 during REM sleep. 1 central, the rest obstructive.

My next titration study I only slept 1.5 hours because of mask issues, took 4 until I settled on Mirage Liberty. They set me at a constant 8, and said I did not respond any differently when they raised pressure any higher, I was still having hypopneas.

Came home on constant 8, was still having high AHI, and they changed it to a flex of 8-14.....but still no change. Always above 10.....Last night my AHI was 20. (Had periodic breathing 0f 3-5% when I was at Constant 8....now my periodic breathing is usually 0, although last night it was 3%)

I FEEL WORSE than when this whole thing started, I am so tired during the day!

I adjusted to my mask well, use it all night.....have no leaks. I snore less on the flex setting (I would snore EVERY night on 8) but my AHI still not budging.

How long do I wait to adjust to the flex setting of 8-14? It's been almost 2 weeks with no change.

What would my next step be??

I only have an ipad, I am awaiting shipment of a computer so I can download software and maybe look at my own info on the disk.
(This post was last modified: 07-13-2015 08:12 AM by Daisylouu.)
07-13-2015 08:09 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Feel worse, AHI the same
Welcom Daisylouu,
Can you look at your display on your machine and tell us what your 90% pressure reading has been for days 1, 7, and 30? Trying to see if your 90% number is at 14 or close to that. Once your can Download sleepyhead, you will be able to see more data and post some images here for us to look at.

Also let us know what your leak rate is. Thanks.

OpalRose
(This post was last modified: 07-13-2015 08:29 AM by OpalRose.)
07-13-2015 08:27 AM
Find all posts by this user Post Reply Quote this message in a reply
AlanE Online

Advisory Members

Posts: 1,498
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #3
RE: Feel worse, AHI the same
Yes we'll need to see numbers so we don't just guess. Guessing is not helpful.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
07-13-2015 10:34 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
quiescence at last Offline

Advisory Members

Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #4
RE: Feel worse, AHI the same
while waiting for computer, hope you have gotten the cpap setup manual, so you'll know how to make adjustments on your own [in case you wish to].

you Wrote:above 8 "still having hypopneas."

hypopneas can be either obstructive or responsive (driven by central nervous system.)

Hope to hear from you what the 90% pressure is. This would tailor my guess and prediction.

QAL

guessing may not be helpful, but it is fun.

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
07-13-2015 02:03 PM
Find all posts by this user Post Reply Quote this message in a reply
TyroneShoes Offline

Preferred Members-2

Posts: 505
Joined: Oct 2014

Machine: Resmed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: Resmed H5i
CPAP Pressure: 10-14
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location:

Post: #5
RE: Feel worse, AHI the same
Please.

Guessing can be very helpful. It can help you think outside the box, for one thing. Guessing, or proposing something not thought through, is critical to creative thinking and problem solving, even when the guess is wrong. The iPhone did not appear because everyone at Apple was afraid to hazard a guess. Crossword puzzles are often solved by guessing (at least the ones on the internet that tell you when a letter is wrong); if you guess, you know what letters work and what letters don't, and even if only some letters in a guess are correct, or if none are, that can help you find the actual solution. So of course, guessing can be helpful.

But (and you knew there was a "but" coming) a guess should be regarded as a guess, and not scripture. If you can't tell the difference, that will not be helpful at all.
(This post was last modified: 07-13-2015 02:19 PM by TyroneShoes.)
07-13-2015 02:19 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Daisylouu Offline

Preferred Members

Posts: 69
Joined: Jun 2015

Machine: Philips Respironics Rem star Auto
Mask Type: Hybrid
Mask Make & Model: Mirage Liberty
Humidifier: unsure
CPAP Pressure: 8-16
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #6
RE: Feel worse, AHI the same
My 90% is always 14. Please guess.
07-13-2015 02:29 PM
Find all posts by this user Post Reply Quote this message in a reply
Daisylouu Offline

Preferred Members

Posts: 69
Joined: Jun 2015

Machine: Philips Respironics Rem star Auto
Mask Type: Hybrid
Mask Make & Model: Mirage Liberty
Humidifier: unsure
CPAP Pressure: 8-16
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #7
RE: Feel worse, AHI the same
What does that 90% mean? That I'm at the max 90% of the time?
07-13-2015 05:11 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
AlanE Online

Advisory Members

Posts: 1,498
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #8
RE: Feel worse, AHI the same
(07-13-2015 02:19 PM)TyroneShoes Wrote:  Please.

Guessing can be very helpful. It can help you think outside the box, for one thing. Guessing, or proposing something not thought through, is critical to creative thinking and problem solving, even when the guess is wrong. The iPhone did not appear because everyone at Apple was afraid to hazard a guess. Crossword puzzles are often solved by guessing (at least the ones on the internet that tell you when a letter is wrong); if you guess, you know what letters work and what letters don't, and even if only some letters in a guess are correct, or if none are, that can help you find the actual solution. So of course, guessing can be helpful.

But (and you knew there was a "but" coming) a guess should be regarded as a guess, and not scripture. If you can't tell the difference, that will not be helpful at all.

Sure, guessing at something iPhone related or a puzzle is one thing. But neither an iPhone nor a puzzle will assist you with sleep apnea. May help you fall asleep if it is a boring puzzle though Smile



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
(This post was last modified: 07-13-2015 05:46 PM by AlanE.)
07-13-2015 05:39 PM
Find all posts by this user Post Reply Quote this message in a reply
AlanE Online

Advisory Members

Posts: 1,498
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #9
RE: Feel worse, AHI the same
(07-13-2015 05:11 PM)Daisylouu Wrote:  What does that 90% mean? That I'm at the max 90% of the time?

"90%" means that 90% of the time your pressure was at 14 or less (minimum to 14) and 10% of the time your pressure was at 14 or above. If it is not set to go higher than 14 then 10% of the time you were at max pressure of 14.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
(This post was last modified: 07-13-2015 05:45 PM by AlanE.)
07-13-2015 05:42 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
tedburnsIII Offline

Members

Posts: 196
Joined: Mar 2015

Machine: 3B RESmart APAP
Mask Type: Nasal mask
Mask Make & Model: Wisp nasal; ResMed FX nasal
Humidifier: came with unit-I vary it, currently set at '3', '5' is max
CPAP Pressure: 10 cm CPAP
CPAP Software: Other Software

Other Comments: Dx moderately severe OSA. Overnight pulse oximeter-CMS50D Plus

Sex: Male
Location: San Diego

Post: #10
Foundational questions
What was OP's total RDI diagnostic?
What was OP's total AHI diagnostic?
Also, I don't understand her titration comments. It would be good to see the titration study and charts, if they met the guidelines. A person must sleep to have a valid titration.
(This post was last modified: 07-13-2015 05:57 PM by tedburnsIII.)
07-13-2015 05:49 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Lack of progress and getting worse. Pudel 7 409 11-07-2016 02:37 PM
Last Post: Sleeprider
  1 night off of cpap.....feel great! duece12345 6 535 10-31-2016 08:55 AM
Last Post: robysue
  I Feel So Dumb - Climateline Hose Violetskyye 14 878 10-08-2016 11:15 PM
Last Post: Violetskyye
  Insomnia getting worse 3 months into therapy baconjurer 3 521 10-05-2016 11:50 PM
Last Post: PoolQ
  MAOI/antidepressant patient feeling worse with CPAP CPAPstruggler 15 1,959 10-05-2016 08:49 AM
Last Post: jbsix
  New AHI Low but Didn't Feel That Great holden4th 1 273 09-09-2016 04:59 AM
Last Post: DeepBreathing
  I have gained 10 lbs and I never feel rested on cpap Lalae 18 1,064 09-08-2016 05:59 PM
Last Post: doll

Forum Jump:

Who's Online (Complete List)