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Feel worse, not better
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KarenK Offline

Members

Posts: 16
Joined: Jul 2013

Machine: Resmed S9 escape Auto
Mask Type: Nasal pillows
Mask Make & Model: Pilairo
Humidifier: Pilairo
CPAP Pressure: 8
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #1
Feel worse, not better
After 2 weeks of therapy, I am more tired than I have been in a while. I have mask leaks during the night. Tomorrow I am going to my DME and inquire about options.
08-11-2013 12:37 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: Feel worse, not better
It is probably just your brain and body adjusting to everything. It is normal. The mask leaks could be fixed with proper fitting (mask sizes, strap placement, etc) or a different mask. Not all masks of the same type are the same! Try several to find one you can sleep with.

Keep at it. Keep working. It isn't easy. Living with many illnesses, diseases, and conditions isn't easy. There's always some sort of adjustment that has to be made.

Let us know how it goes with the supplier. And let us know if there's anyway we can help you!

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-11-2013 01:06 PM
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samurai Offline

Members

Posts: 9
Joined: Aug 2013

Machine: Philips REMstar Auto A-Flex
Mask Type: Nasal pillows
Mask Make & Model: Respironics REMstar
Humidifier: Included on machine
CPAP Pressure: 4-20 Auto
CPAP Software: Other Software

Other Comments:

Sex: Female
Location: Texas

Post: #3
RE: Feel worse, not better
I felt worse for the first 3 days, and then gradually better.
08-11-2013 02:21 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #4
RE: Feel worse, not better
(08-11-2013 12:37 PM)KarenK Wrote:  After 2 weeks of therapy, I am more tired than I have been in a while. I have mask leaks during the night. Tomorrow I am going to my DME and inquire about options.

KarenK, going back to the DME is the best thing to do, keep going back till you get the right mask that fits and suits you, I went through 5 in the first month until I found the best one for me and then it took months to get it right. Some people are lucky and can get it right the first night, for other it can take weeks or months. The most important thing is that you keep trying.
08-11-2013 03:19 PM
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skyler Offline

Preferred Members

Posts: 75
Joined: May 2013

Machine: Respironics ASV
Mask Type: Nasal mask
Mask Make & Model: Respironics Wisp
Humidifier: System One Respironics
CPAP Pressure: 8-12-20
CPAP Software: Not using software SleepyHead

Other Comments: Diagnosed February 2008

Sex: Undisclosed
Location: Norfolk, Virginia

Post: #5
RE: Feel worse, not better
Hang in there, Karen. Wish I had a nickel every time I heard this. For some reason many people do feel worse just having starting therapy. Are you getting good sleep, or are you subconsciously
sleeping lightly because you're monitoring mask fit all night? It's a two pronged approach to treat sleep apnea. Using the machine 100% of sleep time (yes, even naps) and getting good quality sleep where you sleep through the night and usually feel refreshed in the morning. Keep us posted.
Mary
08-11-2013 03:38 PM
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trish6hundred Offline

Advisory Members

Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: Feel worse, not better
Hi KarenK,
I know you are having a rough time with CPAP therapy.
I want to encourage you to stick with it, don't give up.
it does get better. Just keep trying different masks 'til you get one that works right for you.
Hang in there and keep us posted.

trish6hundred
08-11-2013 04:31 PM
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SleepEZ Offline

Preferred Members

Posts: 37
Joined: Jul 2013

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed H5i
CPAP Pressure: Autoset (7 - 13)
CPAP Software: SleepyHead

Other Comments: Respironics Premium Chinstrap. Had to buy myself. My DME ignored prescription and many requests.

Sex: Male
Location: Des Plaines, IL

Post: #7
RE: Feel worse, not better
Tonight is night #3 for me. First night included shallow sleep and mouth leaks (using nasal pillows). After making adjustments, last night was 100% better, based on software reporting and how I felt. Anxious to keep working at it. Don't give up. It's a lifestyle change that is very unique to each of us. Smile
08-11-2013 07:48 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #8
RE: Feel worse, not better
(08-11-2013 07:48 PM)SleepEZ Wrote:  Tonight is night #3 for me. First night included shallow sleep and mouth leaks (using nasal pillows). After making adjustments, last night was 100% better, based on software reporting and how I felt. Anxious to keep working at it. Don't give up. It's a lifestyle change that is very unique to each of us. Smile

SleepEZ, in the end, you just chuck it on and don't even know its there Wink
08-11-2013 07:57 PM
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SleepEZ Offline

Preferred Members

Posts: 37
Joined: Jul 2013

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed H5i
CPAP Pressure: Autoset (7 - 13)
CPAP Software: SleepyHead

Other Comments: Respironics Premium Chinstrap. Had to buy myself. My DME ignored prescription and many requests.

Sex: Male
Location: Des Plaines, IL

Post: #9
RE: Feel worse, not better
(08-11-2013 07:57 PM)Tez62 Wrote:  
(08-11-2013 07:48 PM)SleepEZ Wrote:  Tonight is night #3 for me. First night included shallow sleep and mouth leaks (using nasal pillows). After making adjustments, last night was 100% better, based on software reporting and how I felt. Anxious to keep working at it. Don't give up. It's a lifestyle change that is very unique to each of us. Smile

SleepEZ, in the end, you just chuck it on and don't even know its there Wink

I really am feeling that way already. Guess I'm one of the lucky ones. Smile
08-11-2013 08:41 PM
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