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Feeling shattered
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Gaspnea Offline

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Posts: 27
Joined: Aug 2012

Machine: ResMed S9 Elite
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: ResMed H5i
CPAP Pressure: 12.4
CPAP Software: SleepyHead

Other Comments: My pressure was prescribed by my doctor at 11 but I've upped it to 12.4 on my own.

Sex: Female
Location: Florida, USA

Post: #1
Feeling shattered
Hello wonderful people! What is the average length of time before one can expect to feel better with CPAP therapy? OK, I have only been using it since 9/20/12 but my pattern is weird. I can sleep 7+ hours every night with the mask on but I wake up feeling like I haven't slept at all. Then I'll take the mask off and fall into a great sleep, even dream, for only an additional hour and then wake up feeling fantastic. One would think this would indicate that I don't have sleep apnea and that's why I sleep great when I take the mask off. But I know I have it because I've run a voice recorder in the room with me and I gasp, snore, etc...plus my doctor says I have it, Rolleyes. Does anyone else have this pattern?
09-28-2012 09:59 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: Feeling shattered
It can take a while. Weeks or even months. You've only been using it for 8 days.

Think of it this way: for a long time, your body has gotten used to the damage happening. It thinks it is normal to have, for example, 85% blood O2. The human body (especially the brain) has a great memory. Even if it is something bad (like weight) it gets used to that as being normal. Trying to teach it a new normal takes time.

Now add in that you are using a mask. And have air being pushed into your nose. And the noise of the machine. And the stress of having this diagnosis. It's a wonder you get any sleep at all!

Look up "Sleep debt".

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-28-2012 10:10 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: Feeling shattered
Hi Gaspnea, What PaulaO2 said.! I just encourage you to stick with it, I know CPAP therapy can be discouraging when you don't notice much right away but sometimes it takes quite a while. Hang in there.

trish6hundred
09-28-2012 10:48 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #4
RE: Feeling shattered
do you sleep right through those 7+ hours with the mask?
feeling better can be misleading. every time sleeping w.o the mask your oxygen drop and causing great damage to your heart and brain.
beside it would make getting used to PAP therapy take longer also its slippery slope as you,re telling yourself its Ok NOT to use the mask for an hour and eventually the machine end up in the closet. As for how long it take .. its the million dollar question. everyone is different. I've been using PAP for nearly 2 years - would not sleep or nap w.o PAP. I don,t wake up feeling ready to run marathon and don,t feel as if ran a one either
09-28-2012 11:10 PM
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Gaspnea Offline

Preferred Members

Posts: 27
Joined: Aug 2012

Machine: ResMed S9 Elite
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: ResMed H5i
CPAP Pressure: 12.4
CPAP Software: SleepyHead

Other Comments: My pressure was prescribed by my doctor at 11 but I've upped it to 12.4 on my own.

Sex: Female
Location: Florida, USA

Post: #5
Gross RE: Feeling shattered
OK, thanks. Yes, I'm being impatient. I admit it. What is confusing about it is that yes, I sleep straight through the 7+ hours and usually don't wake up until the alarm goes off. But I feel as though I never even fell asleep at all. Then I'm a zombie at work all day.
09-29-2012 08:44 AM
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zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #6
RE: Feeling shattered
I assume you had a lab or home sleep test. What was your AHI and O2 sats? There is a sleep debt to be repaid sometime after we first start therapy. Insurance companies don't pay for these machines unless you need them. What you're going through is both normal and very hard. Stick with it. Work up to using it all night if you feel like you need that time in the morning without the machine.
Best of luck.
09-29-2012 08:50 AM
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Gaspnea Offline

Preferred Members

Posts: 27
Joined: Aug 2012

Machine: ResMed S9 Elite
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: ResMed H5i
CPAP Pressure: 12.4
CPAP Software: SleepyHead

Other Comments: My pressure was prescribed by my doctor at 11 but I've upped it to 12.4 on my own.

Sex: Female
Location: Florida, USA

Post: #7
RE: Feeling shattered
I had a home study and titration. What the report says is:
AHI/RDI @4% criteria: 13.26. That's the average over the 3 nights. The actual AHI's for each night were 9.6, 9.8 and 20.3. This doesn't seem that bad to me except for that one night with 20.3.
09-29-2012 09:48 AM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #8
RE: Feeling shattered
you need to followup with the sleep doc
the machine cannot tell if you were awake or asleep
whats the breakdown of AHI and leak?
you need to download ResScan software to see whats going on
(This post was last modified: 09-29-2012 04:15 PM by zonk.)
09-29-2012 04:14 PM
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Gaspnea Offline

Preferred Members

Posts: 27
Joined: Aug 2012

Machine: ResMed S9 Elite
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: ResMed H5i
CPAP Pressure: 12.4
CPAP Software: SleepyHead

Other Comments: My pressure was prescribed by my doctor at 11 but I've upped it to 12.4 on my own.

Sex: Female
Location: Florida, USA

Post: #9
RE: Feeling shattered
Hi zonk. I can't take the data off of the SD card because I'm still in the 3 month compliance period for the insurance company. I know some people here gave me suggestions on how to copy the data to my computer but I'm just going to wait 'til the 3 months is up and I can do whatever I want with the machine. I have Sleepy Head software on my computer but have not used it, of course.
The 3 AHI numbers I gave were from the sleep study. The lab diagnosed me as having "moderate sleep apnea." My oxygen saturation was as low as 70% five times over those 3 nights.
09-29-2012 04:28 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #10
RE: Feeling shattered
do you have the clinical manual .. if not, its available by Email (section three)
http://www.apneaboard.com/adjust-cpap-pr...tup-manual

unlike other machines, the S9 shows efficacy data (including breakdown of AHI and leak) on the machine lcd screen
standard info menu: press the info button for 3 sec- allows you to view your sleep stats for last night but you need to check before noon -
after noon it reset to zero

advanced info menu: press and hold info/setup buttons for sec - it allows you to view machine settings and stats/compliance data (as in standard info menu but with more details)
[Image: s9-pic2.jpg]
http://www.apneaboard.com/resmed-s9-cpap-setup
09-29-2012 05:17 PM
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