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Finding New Provider
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djjwilly Offline

Preferred Members-2

Posts: 62
Joined: Mar 2013

Machine: Elite S9
Mask Type: Nasal pillows
Mask Make & Model: Resmed AirFit P10 and chinstrap
Humidifier: Resmed Elite H 5i
CPAP Pressure: 10
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #1
Finding New Provider
Hi all; I haven't posted in a while because my story is too darn depressing to really want to share it and bring anyone down. In a nutshell, I'm having a terrible time with CPAP. I suddenly realized my doctor and DME just might have something to do with it. The lack of respect at the "doctor's" office has been stunning. I don't even see him, haven't met him. I see his nurse practitioner. She makes me wait over two hours. I've been to plenty of doctors in my time and only one kept me that long, the rheumatologist that helped me get workmens compensation. I am just mortified that this nurse keeps me dangling like that. I could go on and on. The DME is in cahoots with her, being as how their offices are almost on an umbilical cord from each other. I just came to the decision that it was time to look elsewhere. My doc is working on a referral for me. Sometimes we must make a stand. It took a lot for me to realize the care was the problem and not me. I blamed myself for a lot up until a while go when I woke up to reality. I'll let you know what happens. I went from really caring about doing it all right to not even using the machine. Now you know something made that happen. It's depressing after all these months to have to start over, but I consider it starting fresh. Love, DJ
02-06-2014 09:48 PM
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eviltim Offline

Advisory Members

Posts: 408
Joined: Aug 2013

Machine: Resmed S9 VPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit F10
Humidifier: H5i heated humidifer
CPAP Pressure: 5 exhale/9 inhale
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #2
RE: Finding New Provider
Good luck. Finding a good doctor is a pain, but it's totally worth the effort.

And get back on the machine! Smile
02-06-2014 10:26 PM
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SnuffySleeper Offline

Preferred Members-2

Posts: 187
Joined: Jan 2014

Machine: s9 elite
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i
CPAP Pressure: 9
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Ontario

Post: #3
RE: Finding New Provider
Yes, some Doctor's offices have a culture of treating people poorly. Just curious, what about the therapy is your doctor not addressing?
02-06-2014 10:26 PM
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trish6hundred Offline

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: Finding New Provider
Hi djjwilly,
I'm sorry you have had such a rough time of things right now.
I wish you much luck trying to find a new dock and provider who will really look after your needs.
I encourage you to stick with your CPAP therapy and please do keep us postedon how things go as you search for a new dock and DME.

trish6hundred
02-06-2014 10:44 PM
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justMongo Offline

Monitors

Posts: 3,855
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #5
RE: Finding New Provider
I am fairly certain that my doctor and DME have an intertwined monetary arrangement. They are essentially co-located; and he gets paid to interpret their sleep lab results. That being said -- I have no complaints about my DME. They get me what I need as often as my insurance will pay for it. And, I am fairly certain that, if I asked, my doctor would not object to my using another DME. I'll not mention the name of either. The DME is a large national supplier.

I will add that I have only rarely run across healthcare professionals that do not treat me right; or keep me waiting without there being an extraordinary reason.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-08-2014 09:04 AM
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PollCat Offline
Apnea Board Polling Administrator
Monitors

Posts: 1,576
Joined: Feb 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #6
RE: Finding New Provider
You may want to use this website to locate another sleep doctor in your area:

Find-A-Sleep-Center

The site belongs to the American Academy of Sleep Medicine


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.
INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-08-2014 09:43 AM
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herbm Offline

Preferred Members-2

Posts: 852
Joined: Jan 2014

Machine: ResMed AutoSet S9
Mask Type: Oral
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: ResMed H5i
CPAP Pressure: 11-16
CPAP Software: ResScan SleepyHead

Other Comments: Backup Mask: Innomed Hybrid FFM -- Oral+Nasal Pillows

Sex: Male
Location: Austin, TX

Post: #7
RE: Finding New Provider
It's funny how people will spend more time and effort to pick an AUTO MECHANIC than a Doctor, and if the auto-mechanic doesn't treat them right they will never go back and just find another.

Doctors are people too, some are really good and some are really bad -- most are by definition MEDIOCRE, average, middle of the pack, not that great and not that bad.

The old joke:

What do you call the guy who finishes last in his medical school class?











Answer: Doctor.

Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
02-08-2014 11:49 AM
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ThatOtherGuy Offline

Preferred Members

Posts: 50
Joined: Dec 2013

Machine: RESMED S9 Autoset on APAP mode
Mask Type: Full face mask
Mask Make & Model: Phillips Amara + chinstrap
Humidifier: RESMED S9
CPAP Pressure: 5 to 17
CPAP Software: ResScan

Other Comments:

Sex: Male
Location: Brisbane, Australia

Post: #8
RE: Finding New Provider
herbm is right on the money. look around, ask others for opinions and find a doctor/practise you're comfortable with.
02-08-2014 06:21 PM
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GrammaBear Offline

Advisory Members

Posts: 381
Joined: May 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Air Fit P10
Humidifier: ResMed H5i heated humidifier
CPAP Pressure: 12.2 - 16.2
CPAP Software: SleepyHead

Other Comments: Type 1 diabetes - using Tandem T-slim insulin pump, Dexcom G4 CGM

Sex: Female
Location: northern Illinois

Post: #9
RE: Finding New Provider
If it is of any comfort to you, about a year ago I had to start all over again too with a new doctor and a new DME. The doctor I used to have was so sarcastic and answered any question I asked him with a huge attitude. He once told me that because I hadn't lost as much weight as he told me to, he didn't want to see me again for 2 years.

The new sleep doctor I have is respectful and has even given me several names for finding a new DME. Good Luck to you and I wish you the best. Try going back to your CPAP - it does benefit you even if your old doctor does not.
02-09-2014 09:32 AM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #10
RE: Finding New Provider
I,m intrigued with this discussion
How you spot a good sleep doctor vs bad sleep doctor
If all they do view the data and tell me, hours using the machine, AHI, leak and stuff like that which I already knew ... not rocket science
02-09-2014 01:05 PM
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