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First of what I am sure will be many questions
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dontwantapnea Offline

Members

Posts: 11
Joined: Jul 2016

Machine: DreamStation Auto CPAP (500X110)
Mask Type: Nasal pillows
Mask Make & Model: F&P Eson
Humidifier: DreamStation Humidifier
CPAP Pressure: 12
CPAP Software: SleepyHead

Other Comments: I may not want it but I am in it to win

Sex: Male
Location: United States

Post: #1
First of what I am sure will be many questions
Hello all,

I am new. Not completely thrilled with the idea of having this challenge but I will make the best of it. I have researched everything I can and it appears that I may be in the minority and not have OA but mostly CA type events, which if I understand correctly is more difficult to treat since positive pressure keeping the airway open doesn't seem to be my major issue. My untreated AHI was 40+ so the CPAP is certainly making a difference.

Three questions for the group.

1) my DreamMapper IOS app says all is fine and reports 100% Mask Fit, 1 Disconnect, 0:01hrs Large Leak, Large Leak 0.3% but SleepyHead says "You mask is leaking way to much...Talk to your CPAP Advisor"

2) It seems like something needs to change. I was going to try a full mask?

3) Do I need to consider a different type of machine?

   

Thanks
07-11-2016 06:39 PM
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DariaVader Offline
Apnea Board Facebook Editor
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Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #2
RE: First of what I am sure will be many questions
Welcome

You have a low level of CA now, but most of what is labeled CA is right at the beginning of your sleep schedule, and is likely what we call "sleep/wake junk" You certainly have OSA, and it is largely mitigated by the CPAP. If you subtract out the CA events that occur in the first hour there, you have a treated AHI

How long have you been using the machine? Some of this may subside as you become accustomed to it.

You are on a constant pressure of 12. Your profile says you have an APAP, so I am guessing you had a in-lab titration and that they saw CPAP induced CA when you had pressure changes and they put you on 12 as a tradeoff --- although that is a guess

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
07-11-2016 06:50 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #3
RE: First of what I am sure will be many questions
also, I would guess that you are mouth breathing... try the technique in my sig Smile pillows are more comfy than ffm - but if you can't, then, yeah try the ffm!

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
07-11-2016 06:52 PM
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dontwantapnea Offline

Members

Posts: 11
Joined: Jul 2016

Machine: DreamStation Auto CPAP (500X110)
Mask Type: Nasal pillows
Mask Make & Model: F&P Eson
Humidifier: DreamStation Humidifier
CPAP Pressure: 12
CPAP Software: SleepyHead

Other Comments: I may not want it but I am in it to win

Sex: Male
Location: United States

Post: #4
RE: First of what I am sure will be many questions
Thanks Daria,

They said I was a "shallow breather" so I assumed it was HA events. I have a follow up appointment the 28th to get more information.

I had a sleep study they woke me up put a pillow mask on me and I assume tirtated me for the rest of the night.

After the test they said I didn't mouth breadth during the study.

Once I got an in home unit I noticed my throat and mouth were extremely dry even without humidity. I went back and asked for a chin strap, that seemed to help alot and my AHI dropped almost in half but 2 or 3 times a night I still experience dry teeth and gums and have to drink water.
07-11-2016 07:13 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: First of what I am sure will be many questions
Hi dontwantapnea,
WELCOME! to the forum.!
CPAP therapy takes some getting used to but just stick with it, it does get better.
Hang in there for more answers to your question, good luck to you on your CPAP journey.

trish6hundred
07-11-2016 07:13 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #6
RE: First of what I am sure will be many questions
if it isn't mouth breathing, it could be just a mask that doesnt fit well enough. the right mask is 85% of the battle, I think!

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
07-11-2016 07:43 PM
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dontwantapnea Offline

Members

Posts: 11
Joined: Jul 2016

Machine: DreamStation Auto CPAP (500X110)
Mask Type: Nasal pillows
Mask Make & Model: F&P Eson
Humidifier: DreamStation Humidifier
CPAP Pressure: 12
CPAP Software: SleepyHead

Other Comments: I may not want it but I am in it to win

Sex: Male
Location: United States

Post: #7
RE: First of what I am sure will be many questions
I assume my oxygen level drops and my HR increases...

Is this normal if the therapy is working?


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07-11-2016 07:47 PM
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eseedhouse Online

Advisory Members

Posts: 878
Joined: Dec 2014

Machine: ResMed Airsense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: SimPlus
Humidifier: ResMed
CPAP Pressure: 7-10
CPAP Software: SleepyHead

Other Comments: Also on supplemental O2 at 3L/min. while sleeping.

Sex: Male
Location: Victoria, British Columbia

Post: #8
RE: First of what I am sure will be many questions
Your heart rate will vary quite widely during REM sleep (dreaming). It's quite normal and yours never goes above 100 which is well within the normal range. Your heart rate does go quite low, though, although not abnormally low if you are exercising a fair amount.

Ed Seedhouse
VA7SDH

I am neither a Doctor, nor any other kind of medical professional.

Actually you know, it is what it isn't.
07-11-2016 08:43 PM
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chill Online

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Posts: 850
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #9
RE: First of what I am sure will be many questions
DreamMapper can be optimistic, but I think your SleepyHead configuration might be wrong. In SleepyHead, go to Preferences - CPAP. "Flag leaks over threshold" should be 24 L/Min for your machine. I think.

You do seem to have more leaks than you should. You might need a different mask, or might just need to adjust the mask that you have.

With the leak rate and your newness to the therapy, I will guess that you don't need a Bi-level or ASV machine. I had a number of CA's when I started and they have disappeared.

You said, "my throat and mouth were extremely dry even without humidity". I assume you meant with not without. Otherwise you are adjusting in the wrong direction. More humidity should help with this. If it does not, you are mouth breathing.
07-11-2016 11:34 PM
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