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Free software and conversing with Doctors
#1
Before I dive into this world of monitoring myself, I have a question.

I'd like to be able to talk apples to apples with my doctors office.

I have no idea what they use for software other than it's something Resmed makes available to them.

Sleepyhead seems to be pushed strongly here and elsewhere. Are the charts and info it creates analagous to those the doctors have so we can discuss the same metrics and data over the phone? They've spent a lot of time on the phone with me and that works well given I can't get in for an appointment and would rather not pay for that when a quick conversation will do.

Right now from what they say thinks are working well WHEN I am hooked up to the machine and sleeping. Might be able to up my pressure slightly. I'd like to be able to dive into the detailed data right before I wake up (which is usually just 2-3 hours after falling asleep) for a number of nights to see if there's a pattern. I know the mask I have leaks a bit though they claim it has a low leak rate--however, it sounds like that measure of leakage is one that takes an average and may not detect a small leak very well. Ended up confusing me, and I think I need to be looking at the same data they are to understand more about how it works.

Thanks for any advice.
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#2
You doctor is probably using ResScan which is Resmed's main analysis software. You can obtain a copy on Apnea Board here: http://www.apneaboard.com/forums/Thread-...hines-only

You can get SleepyHead from the link at the top of this page.

Both programs give basically the same information, and both can give the sort of detail you're looking for. ResScan has a bit of extra overhead for patient management in a clinic situation and I find it more complex and less intuitive than SleepyHead. Sleepyhead is pretty easy to use and gives nicely formatted charts and graphs. If you want to send them printouts ResScan probably has more credibility but really there's nothing much between them.

Regarding the leaks, I find that quite small leaks can be disturbing and don't necessarily show up in the records. These include leaks into the eyes and "face farts".
DeepBreathing
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www.ApneaBoard.com


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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#3
(which is usually just 2-3 hours after falling asleep)

Same for me, tried to explain this forcefully to the medicine man, he seemed unable to understand this was not right, no help, no advice, gave up in the end.

Then I saw the senior man, his suggestion for the 2-3 hour waking thing was to go to bed later.
Another waste of space.
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#4
I have found, as Deepbreathing indicated, that my pulmonologist relates immediately to ResScan software info but not to Sleepyhead, even though both programs include about the same data. So, in the past I have taken printouts from ResScan along with me on appointments with the doc.

David
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#5
I started on CPAP in January on the same day I got my sleep study results from the Sleep Specialist. I went back 2 weeks later and he downloaded the SD card from the machine, saw it was working and I came home having purchased my own machine the same day. I have a follow-up appointment in 6 months.
Not that I was going to wait that long to see how things were going..........downloaded Sleepy Head and check my outcomes almost daily.
Last week I needed to see my GP (general practitioner for you yanks.... my everyday doctor) and I took along a printed report from Sleepy Head. It was a great visit, we had a great discussion, and my Dr kept my report for my file ! Without my SH report, she would have had nothing but my own feelings of wellbeing to base our discussion on.
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