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Frustated!!!
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jesseaarroyo Offline

New Members

Posts: 1
Joined: Sep 2012

Machine: Remstar Plus C-flex #DS250SR
Mask Type: Full face mask
Mask Make & Model:
Humidifier: #1056209
CPAP Pressure: 8.
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Whittier, Ca.

Post: #1
Gross Frustated!!!
Hello Everyone, I've been using my CPAP machine since Feb 2012, I can honestly say that it has not done a thing for me. I'm still waking up tired, sleepy and with no energy. I'm waking up congested, runny nose and coughing as if I have a cold. I'm ready to just turn it in and find other options. I'm wondering if the settings are correct and if so, what's taking so long to at least feel somewhat normal. Can someone please let me know if I'm doing something wrong. I've tried to explain this to my Dr. and all he says is to give it time. Hopefully someone can help and advise me. Thank you all for your time and have good nite.
09-19-2012 10:36 PM
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PollCat Offline
Apnea Board Polling Administrator
Monitors

Posts: 1,576
Joined: Feb 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #2
RE: Frustated!!!
Welcome jesse!

A lot of the newer recipients of this therapy tell me it takes time to become adjusted - I myself never had that problem. But the adjustment time in your case seems extreme. My experience with the machine you were given is not the best: I tried two of them for about 30 days total and couldn't get a decent night's sleep as the machines were too noisy! The DME and Respironics finally gave me credit for the 'bad' machines and i got the S9 instead.

As for your situation, some questions: Are you sleeping through the night - i.e. not waking up periodically? Are you a mouth breather? Are your nasal/sinus passages blocked? Is the humidifier heater turned on?


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.
INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-19-2012 11:35 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #3
RE: Frustated!!!
You have the REMstar Plus. That one doesn't record efficacy data such as how many times you stop breathing (AHI) just how many hours used each night. So we cannot to be sure if the machine is controlling your apneas. Now it would different scenario if the machine is data capable like the S9 AutoSet or PR System One Auto than it record efficacy data and through the software the doctor can check the data and figure out whats going on with your treatment. Play with the humidifier, too much can cause congestion but everyone is different. Talk to your doctor about the congestion, might prescribe some medication or just Neilmed Sinus Rinse which is recommended for CPAP users.
Not using CPAP is not good idea
09-20-2012 01:08 AM
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trish6hundred Offline

Advisory Members

Posts: 6,453
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: Frustated!!!
Hi jesseaarroyo, First of all, WELCOME! to the forum.! CPAP therapy can take LOTS of TIME and PATIENCE. Though it's very frustrating for you, I just encourage you not to give up and Hang tight for more suggestions.

trish6hundred
09-20-2012 12:48 PM
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Dawei Offline

Preferred Members-2

Posts: 342
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Other
Mask Make & Model: Respironics "FitLife"
Humidifier: H5i
CPAP Pressure: 10-20
CPAP Software: ResScan SleepyHead

Other Comments: Began CPAP in 2006; spent the first 6 years with a "brick"

Sex: Male
Location: Western North Carolina

Post: #5
RE: Frustated!!!
Welcome to the board, Jesse! Every time I visit my sleep doc, along with looking at my numbers, he always asks me how I've been feeling. So, even though your machine can't give either your sleep doc or you number info on AHI, leakage, etc., etc., my guess is that your sleep doc IS interested to know how you have been feeling. When you tell him how badly it's been going for you, that should catch his/her attention and lead to an investigation of what's going on with your congestion, tiredness, etc. One possible result could be that he/she might put you on a machine that adjusts pressure to your changing needs during the night. That will provide him/her (and you) with info that can aid in improving things. An idea that worked for me was to suggest to the doc that he put me on an S9 AutoSet machine as a loaner to get some sleep data. He agreed.
09-20-2012 03:28 PM
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Dawei Offline

Preferred Members-2

Posts: 342
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Other
Mask Make & Model: Respironics "FitLife"
Humidifier: H5i
CPAP Pressure: 10-20
CPAP Software: ResScan SleepyHead

Other Comments: Began CPAP in 2006; spent the first 6 years with a "brick"

Sex: Male
Location: Western North Carolina

Post: #6
RE: Frustated!!!
Jesse--You didn't mention when the last time was that you saw your doc, but it seems to me that the seven-plus months you have had your machine is certainly long enough for the initial adjustment (or lack thereof) to have taken place. One other thought that comes to mind is what type of doc you have been seeing? While, the sleep medicine sub-specialty is available to docs in seven different (main) specialties, my impression is that the best fit for a sleep doc is probably those who are pulmonologists. Just my opinion, of coarse.
09-20-2012 03:42 PM
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