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Frustrated
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Roxy Offline

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Posts: 63
Joined: Aug 2012

Machine: ResMed S9 Autoset H5i
Mask Type: Full face mask
Mask Make & Model:
Humidifier: H51
CPAP Pressure: 14-20
CPAP Software: SleepyHead

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Sex: Female
Location:

Post: #1
Frustrated
Neither the DME who tracks data remotely or my "sleep doctor" bother looking at resmed graphs. The sleep doctor and respiratory therapist just look at the general info on the machine and say "all is fine" even though I still wake three to four times a night and am tired in the morning after 3 1/2 months of cpap use.

My ent had me get a fatigue pannel (bloodwork). Of course the sleep doctor didn't think of thatDont-know

Is this typical?

The good news is that my blood pressure is back down, my morning headache is gone and I usually have more energy.
11-25-2012 08:59 PM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: Frustrated
(11-25-2012 08:59 PM)Roxy Wrote:  The good news is that my blood pressure is back down, my morning headache is gone and I usually have more energy.
congrats. its a good indicator ... therapy is working
don,t get frustrated .. my doc too doesn't look at the graphs just basic info and tell me .. all good see you in a year
Sleep-well
11-25-2012 09:03 PM
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Roxy Offline

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Posts: 63
Joined: Aug 2012

Machine: ResMed S9 Autoset H5i
Mask Type: Full face mask
Mask Make & Model:
Humidifier: H51
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location:

Post: #3
RE: Frustrated
[/quote]
congrats. its a good indicator ... therapy is working
don,t get frustrated ..

If the therapy is working, why am I still tired and waking a few times a night despite having AHI's under 4Thinking-about I have been using the cpap machine since the end of August except when we had no power for four nights due to hurricane Sandy.
11-25-2012 09:13 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #4
RE: Frustrated
(11-25-2012 09:13 PM)Roxy Wrote:  If the therapy is working, why am I still tired and waking a few times a night despite having AHI's under 4Thinking-about I have been using the cpap machine since the end of August except when we had no power for four nights due to hurricane Sandy.
me not a doc just going by what you,re saying that you've more energy and morning headache gone which is a sign that apnea been treated
maybe you need to find another sleep doc who can look at the data more closely and try to pin point whats going on
also could be more to the story than just sleep apnea
11-25-2012 09:42 PM
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2Tim215 Offline

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Posts: 283
Joined: Oct 2012

Machine: S9 ResMed AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX Nasal Pillow - Medium
Humidifier: ResMed H5i w/Climate Hose
CPAP Pressure: 6cm-12cm
CPAP Software: ResScan SleepyHead

Other Comments: OSA, Fibromyalgia, Rheumatoid Arthritis, Osteoarthritis, Gout, PTSD, & Meralgia paresthetica.

Sex: Male
Location: Finger Lakes Region, NY

Post: #5
RE: Frustrated
Not knowing any history here are a few things to consider. Therapy was working, any new medications, any other health issues, etc.? Not asking you to share them but maybe consider it might not be the CPAP. Keep your treatment going and ask a lot of questions! Hope you find the answers soon!

Tim
Finger Lakes Region, NY
11-25-2012 09:43 PM
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Roxy Offline

Preferred Members

Posts: 63
Joined: Aug 2012

Machine: ResMed S9 Autoset H5i
Mask Type: Full face mask
Mask Make & Model:
Humidifier: H51
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location:

Post: #6
RE: Frustrated
I don't have other health issues or changes in health. I am curious to see what if anything the fatigue profile uncovers
11-25-2012 09:46 PM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: Frustrated
Hi Roxy, If your sleep Dr. is so unattentive, maybe finding another one is in order, I know that can be difficult though. Sometimes it takes quite a while to really notice the benefits of CPAP therapy but if your blood pressure is down and you have more energy, it sounds like something is working for you, but I understand your frustration when you don't feel like you are getting enough rest.
I just encourage you to continue on and stick with it.
Best of luck to you.

trish6hundred
11-25-2012 09:52 PM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #8
RE: Frustrated
Many PAPers feel they have to manage their own therapy.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
11-25-2012 09:52 PM
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jgjones1972 Offline

Preferred Members-2

Posts: 516
Joined: Nov 2012

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: ResMed H5i
CPAP Pressure: 18 - 20
CPAP Software: ResScan SleepyHead

Other Comments: CMS50I PulseOx

Sex: Male
Location: Ohio - USA

Post: #9
RE: Frustrated
Getting them to look at the graphs is easy, just tell 'em there's a credit card number hidden in there. Too-funny

Sorry for that.
11-25-2012 09:52 PM
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2Tim215 Offline

Preferred Members-2

Posts: 283
Joined: Oct 2012

Machine: S9 ResMed AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX Nasal Pillow - Medium
Humidifier: ResMed H5i w/Climate Hose
CPAP Pressure: 6cm-12cm
CPAP Software: ResScan SleepyHead

Other Comments: OSA, Fibromyalgia, Rheumatoid Arthritis, Osteoarthritis, Gout, PTSD, & Meralgia paresthetica.

Sex: Male
Location: Finger Lakes Region, NY

Post: #10
RE: Frustrated
(11-25-2012 09:46 PM)Roxy Wrote:  I don't have other health issues or changes in health. I am curious to see what if anything the fatigue profile uncovers

Hopefully the results will provide the answers you need. Mine came back with a very low Vitamin D deficiency but I also have some other issues that make me tired. I just take them one at a time!

Tim
Finger Lakes Region, NY
11-25-2012 09:56 PM
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