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Full body jolt or jump while dozing off?
#11
RE: Full body jolt or jump while dozing off?
I've experienced this infrequently throughout my life.

As a kid, I also had a quick dream when it happened - a dream of falling into a hole in the road.

As an adult, I no longer have the dream coinciding.

My spouse does these sorts of jerks *many times* in his early sleep stages. He's unaware of them, as they don't wake him.
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#12
RE: Full body jolt or jump while dozing off?
(05-16-2018, 03:14 PM)Fats Drywaller Wrote:
(05-16-2018, 02:56 PM)ronlecroy Wrote: I told my doctor my goal for all of 2018 is to sleep more than 2 hours continuously and be able to watch a movie without having to leave to hit the restroom.  Is that too much to ask?  I'm depressed.

Have you got any more specific diagnosis from your docs recently?  Are you sure that the main problem is sleep apnea?  Are you using your machine consistently, every night, and if so, is it helping?

From what you said in other threads, it sounded like maybe it's an undiagnosed (so far) mystery condition for which CPAP might not do any good.  (???)  But if sleep apnea is a big part of your problem, then you have to use the machine (consistently) to control it and reduce the symptoms.

And if you're really at a loss and your doctors are too, then is it feasible to find some other doc and/or clinic from which you can get better help?

Thank you Fats.  You are correct that this is somewhat mysterious.  I've pretty much reached the limits of the local docs.  They are well intentioned, but the combination of sudden, strange (i.e. vocalizing a sound due to vocal cords closing) sleep issues combined with overactive bladder seems to be a bit more than they can process.  It has been suggested that the root is something neurological.  No one wants to bother with the sleep study because I'm constantly having to get up to pee.  The urologist has me on Myrbetriq (latest and greatest treatment) and it only slightly improves the situation, day or night.  So, I'm planning to contact the sleep docs at the Medical University or South Carolina. They are very well equipped and it's a team of docs instead of one stressed out doc.  They are equipped to do sleep endoscopy (fiber scope camera in airway while sleeping) so they can actually see what structures are causing issues.  Also the university has neuro specialists for autonomic dysfunction.  An autonomic disease like Parkinson's can start with the things I've got going on.  So, the plan is to get my foot in the door with the sleep people then expand the evaluation to see if there is a common failure that is resulting in my symptoms.  As for the CPAP is does help but I still have to pee a lot (sometimes more than 10 times!) and my sleep is just weird and disturbed lately.  I'm only productive 8-9 hours a day and there it takes short naps to keep me going.  I'm not the same guy I was 6 months ago.  Something has changed and, to be honest, I'm a little worried about things like Parkinson's, ALS, and other neurodegenerative disorders.
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#13
RE: Full body jolt or jump while dozing off?
(05-16-2018, 09:18 PM)ronlecroy Wrote: I'm not the same guy I was 6 months ago.  Something has changed and, to be honest, I'm a little worried about things like Parkinson's, ALS, and other neurodegenerative disorders.

This is not the right forum for me to go much into detail and offer ideas regarding an infectious disease, so I'll just keep this as short as I can...

Have you been bit by a blood-sucking bug in the last 6 months?  Or potentially have you had a new sexual partner in that time?  Lyme disease can be contracted like HIV, as well as through bug bites; and it can cause the issues like you're mentioning.  Also, it can lie dormant in the body until awakened by trauma (physical, emotional, etc.). Unfortunately Lyme tests are hugely inaccurate (with a rate of over 50% false negative), so if you want a reliable Lyme conclusion (yay or nay) you must see a Lyme Literate dr (Google ILADS).
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