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General sleep apnea question
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cgarbiano Offline

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Posts: 2
Joined: Oct 2014

Machine: Remstar
Mask Type: Nasal mask
Mask Make & Model: unsure
Humidifier: unsure
CPAP Pressure: 6.0
CPAP Software: Not using software

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Sex: Female

Post: #11
RE: General sleep apnea question
(10-27-2014 03:51 PM)me50 Wrote:  
(10-27-2014 02:28 PM)cgarbiano Wrote:  Hi. My CPAP was set for 6.0. For no reason, its now at 5.0. what's wrong?

could be a few different reasons. Are you still dealing with compliance period? Do you have a modem on your machine that the RT/DME can do things remotely?

If you know how to and it is supposed to be at 6, you can change it back and watch for to see if it happens again? If you don't know how to change it, let us know and we can help with that. Also, What is your prescribed pressure?

I would recommend using software so you can watch what happens while you sleep. I don't know anything about your machine you have but sleepyhead works well with most machines. It would help us help you better if you give us more information about the machine you are using. If you have a brick, it won't serve you to download any software as you will only get compliance information.

I am sure you will get more ideas from other members.

Thanks for your reply. The doc set everything up. My prescribed pressure is 6, now its down to 5. I am looking you youtube on how to change pressure. I notice I've been sleepy in the a.m. again. I hope 5 is not such a big drop that it would cause me to be tired again
10-28-2014 07:14 AM
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cppoly Offline

New Members

Posts: 2
Joined: Oct 2014

Machine: none
Mask Type: Not using mask
Mask Make & Model: none
Humidifier: none
CPAP Pressure: none
CPAP Software: Not using software

Other Comments:

Sex: Male

Post: #12
RE: General sleep apnea question
Thanks for the replies so far! I’ve had three sleep studies done. All the doctors were all neutral and never felt I needed treatment. One picked up mild sleep apnea, another picked up mild upper airway resistance syndrome, and another said no treatment is required. It was only through my request that I’ve been through multiple sleeping medications, muscle relaxers, anti-anxieties (I’m not anxious), and anti-depressants (I’m not depressed). All of these had made my sleep worse. As a note, my minimum oxygen saturation levels of the sleep studies were 89%, 93%, and 89%. I’ve also tried CPAP for a week and it also made my sleep worse. I’ve tried several sleep apnea mouth pieces and they also made my sleep worse. Given all of this, I believe I don’t have sleep apnea and that in fact it is another medical condition that is causing my wake ups (I describe it below).

Just to give a brief summary:

I have no problem falling asleep, usually within 5 to 15 minutes.

The first four hours of the night, I mainly do not wake up. It is only the last four hours that are the most destructive and cause me to wake up about 30 times. I’m conscious of all of these 30 wake ups, then change sleeping positions and fall asleep in two seconds, only to have this cycle repeat again in another 5 – 10 minutes later until I get out of bed feeling completely unrested.

When I wake up, I am not choking or gasping for air. My sleep studies also indicated that my total snore time is around 1 to 2%. To the best of my knowledge, when I am waking up, it feels as if my neck is numb is numb (no pain) and I have to reposition my neck on the pillow and/or roll over to the other side.

I’ve been through about 20 different pillows ranging from $30 to $120 over the past 3 years.

I don’t really remember any of my dreams possibly because of the interrupted sleep.

Any and all sleeping aids including prescriptions have made my sleep worse.

I’ve read sleep books on proper sleeping hygiene and have tried them all. Nothing even remotely has helped.

I have absolutely no problems staying awake during the day, driving, or other activities. My “Epworth Sleepiness Scale” is generally very low like a 1 or 2. However, my major major major problem is that I cannot last beyond 9 pm. This has severely impacted my social life over the past five years because I can’t hang out with friends or family past this time. I am just too tired and have to go to bed. I cannot live a normal life like this and I am looking for help.

The reason I believe I am waking up is due to a medical condition called thoracic outlet syndrome. I was diagnosed with this recently and I will be having surgery hoping that this will hit the root cause of my sleep disturbances and my mysterious numb neck at night time. Unfortunately, when I go to sleep doctors and describe this condition and how it might cause sleep disturbances, they all look at me cockeyed. After further reading on the forum, it is my opinion that since I do not wake up choking or gasping for air and do not snore (less than 2% of sleep time), the 30 sleep disturbances that I’m conscious of are unlikely to be due to sleep apnea. I just wanted to see what everyone’s thoughts were to help rule out sleep apnea to make sure it is not the root cause of my sleep disturbances.

Thank you!
11-01-2014 09:54 AM
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