RockABye, congratulations on kicking the Big C! You are so right about having to be our own advocate. It definitely has been a necessity along the way. Good luck to you with getting the right equipment and quickly adapting.
Last night I didn't get much sleep and two nights ago at the sleep lab not much either. So now after cooking a large meal for a house full, I am pretty tired and ... hopefully tired enough to sleep.
The sleep lab had two generic masks to try. Small area I live in and small hospital. It was explained to me they only had two types available for titration, but that the therapist would be in to see me first thing in morning with machine and several other masks to try. Fot titration, tried a nasal mask and wasn't real comfortable with it. But the whole idea if covering my breathing parts is intimidating any way. The air just seemed so restricted and not like I had a whole big room of air to breath, but just that little bit in the nose piece and it felt pretty stingy with the amount available. I tried the full face mask next and was a little better but after a few minutes was hurting my head. I tried to shift the straps and managed to start feeling trapped in it and panicked. I think because the technician put it on and tightened it and I didn't exactly know how to take it off. Finally the technician said they had a few free samples of another smaller nasal mask and asked if I wanted to try a Philips Wisp minimal contact mask. Of the three I managed through the night with the free sample. I mentioned I just feel like I could not get enough air and had to keep breathing deep to satisfy my lungs with all three masks. She turned the pressure up for me and it became tolerable to get through the night. They told me I could keep it as a backup even if I chose another from the therapist. Just couldn't sleep well all wired up and the new sensation of something covering my nose in the lab. The therapist arrived in my room with my machine and asked if I wanted to try the nasal pillows and commented on the red mark on bridge of my nose from the other. I have the small sized nasal pillows as my nostrils are tiny according to therapist. Pillows is the most comfortable of all the masks so I will stay with that for now.
The therapist suggested that I start out wearing it for a while at home and get through as much of the night as I can. If I get tired and not sleeping he said it is ok to remove it and sleep without it for remainder of night and then do it again the next night and keep trying to work up longer each night. My spouse on the other hand got it in his head that it would be miraculous and immediate.
When I took it off finally after 3.5 hours, my husband became quite emphatic that I put it back on. Ugh! I tried to explain I wasn't giving up but needed a break. He let me drift off for about an hour without it then woke me up to put it back on. I decided I am not a fan of the ramp or at least the setting and had to read how to adjust it and cosequently wide awake again. After another hour wide awake with it on and pretty frustrated thinking of the day I had ahead with cooking Thanksgiving dinner, hubby conceded and mentioned taking it off to get a couple hours more sleep.
Hoping tonight is a better night. I explained to my husband again today of the therapists suggestions.