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Getting worse - The Great Nap of Mutiny
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SuperSleeper Offline

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Post: #11
RE: Getting worse - The Great Nap of Mutiny
I merged your two threads LJones (since it's pretty much the same subject matter).

Thanks.

Coffee

SuperSleeper
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09-07-2014 08:50 PM
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LJones Offline

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Post: #12
RE: Getting worse - The Great Nap of Mutiny
Max IPAP 25
Min EPAP 4
Min PS 2
Max PS 8

I suspect that my CAs have been severe for some time. I have gained quite a bit of weight over the past 10 years and that has not helped with OAs I'm sure.

I called my brother whose apnea is very similar to my own and he said that he couldn't get a good report with such a high PS. So, I am just curious of how tonight will go. I do specifically remember the PA telling me at my last visit that they were "going to order me a machine that will automatically adjust according to my needs." I do think that having the auto in the "on" position was lost in translation somewhere. We'll see. Thanks for all the input everyone.
09-07-2014 09:06 PM
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vsheline Offline

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Post: #13
RE: Getting worse - The Great Nap of Mutiny
(09-07-2014 09:06 PM)LJones Wrote:  Max IPAP 25
Min EPAP 4
Min PS 2
Max PS 8

Then looks like SleepyHead is misreporting the settings for PS (SH says 21 in the nap report).

What is the setting for Max EPAP?

Your IPAP may automatically adjust as high as Max EPAP plus Max PS, unless limited by Max IPAP setting.

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 09-07-2014 09:49 PM by vsheline.)
09-07-2014 09:45 PM
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LJones Offline

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Post: #14
RE: Getting worse - The Great Nap of Mutiny
(09-07-2014 09:45 PM)vsheline Wrote:  
(09-07-2014 09:06 PM)LJones Wrote:  Max IPAP 25
Min EPAP 4
Min PS 2
Max PS 8

Then looks like SleepyHead is misreporting the settings for PS (SH says 21 in the nap report).

What is the setting for Max EPAP?

Your IPAP may automatically adjust as high as Max EPAP plus Max PS, unless limited by Max IPAP setting.

Yeah, that 21 is goofy. I would imagine since there is not a Max EPAP setting that the Max EPAP is 17 (Max IPAP - Max PS) as you suggested. If the doctor gives me the go ahead to leave it on Auto, I will ask about reducing that Max PS.
09-07-2014 10:14 PM
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vsheline Offline

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CPAP Pressure: 15 EPAP, PS 5-10
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Post: #15
RE: Getting worse - The Great Nap of Mutiny
(09-07-2014 10:14 PM)LJones Wrote:  Yeah, that 21 is goofy. I would imagine since there is not a Max EPAP setting that the Max EPAP is 17 (Max IPAP - Max PS) as you suggested. If the doctor gives me the go ahead to leave it on Auto, I will ask about reducing that Max PS.

Or, if there is no explicit Max EPAP setting then I would think Max EPAP may be Max IPAP minus Min PS = 23.

If doctor says you are free to reduce Max PS I suggest not lowering it unless you see that when the PS being used is high your AHI somtimes gets too high or the Central Apnea Index (CAI) sometimes gets too high. The machine only raises PS as much as it thinks it needs to, to more thoroughly eliminate FL.

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 09-08-2014 08:59 AM by vsheline.)
09-08-2014 01:10 AM
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LJones Offline

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Post: #16
RE: Getting worse - The Great Nap of Mutiny
Here are last night's results. Comments?

[Image: Sunday.jpg]
09-08-2014 06:34 AM
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vsheline Offline

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Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
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Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

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Location: California, USA

Post: #17
RE: Getting worse - The Great Nap of Mutiny
(09-08-2014 06:34 AM)LJones Wrote:  Here are last night's results. Comments?

Looks like CA apneas are minor and AHI is dominated by obstructive events. Highest EPAPs were 8 and 9. Highest PSs were around 6 and 7.

I suggest gathering data. (No changes for a at least a week.)

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
09-08-2014 09:20 AM
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LJones Offline

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Post: #18
RE: Getting worse - The Great Nap of Mutiny
Called Dr. As I suspected the machine was supposed to be set with the Auto function ON! and a Max IPAP of 9 and a Minimum EPAP of 4. Crazy mistake that could have wasted 2 months of treatment.
09-08-2014 12:03 PM
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LJones Offline

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Post: #19
RE: Getting worse - The Great Nap of Mutiny
So............. the tech (receptionist) from the Dr's office called back. It went something like this. (some parts have been under-dramatized for your reading sanity)Eat-popcorn

Tech: Mr. Jones I called the oxygen place and they said they set the machine at 9 over 4.
Me: Was it supposed to be set to auto?
Tech: Yes
Me: Well, it was on straight BiPap, Auto was off.
Tech: They set it right, it was supposed to be 9 over 4
Me: But you said the auto was supposed to be on, it was off
Tech: They set it right
Me: So, was the auto supposed to be on?
Tech: Yes
Thinking-about
Me: Then it wasn't set right
Tech: They set it right, you should call them
Me: Why should I call them?
Tech: So they can tell you that they set it right (this is a summary of her explanation)
Unsure
Me: But they didn't. You said the auto was supposed to be on. It was off. Was it supposed to be on?
Oh-jeez
Tech: Yes
Me: Can I talk to the nurse practitioner that I saw at my last appointment? She said that the machine would be on auto. The machine has 3 settings CPAP, straight BiPap and Auto Bipap. Which should it be set to?
Tech: You should call the Oxygen place
Huh
Me: I don't want to call the Oxygen place. I want to talk to the woman I saw at my last appointment in Las Cruces.
Tech: You want to talk to the Nurse Practitioner?
Me: Ma'am, I am not angry at you but I am frustrated... Yes, I would like to talk to the nurse practitioner...
Tech: I can have her call you when she is done with patients.
Me: That's fine
(NO CALL)

I so wanted to ask her "Who's on First" Dont-know

SIGH
(This post was last modified: 09-08-2014 07:54 PM by LJones.)
09-08-2014 07:51 PM
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retired_guy Offline

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Post: #20
RE: Getting worse - The Great Nap of Mutiny
So the question is: should it be set on CPAP, or BiPap, or Auto BiPap.......... .......and the answer is "Yes."
09-08-2014 08:05 PM
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