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Getting worse..
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PaytonA Offline
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Posts: 3,013
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #41
RE: Getting worse..
Despite all of my razzing, I agree with Mongo and Sleeprider. I think it might be a great idea to have a polysomnography (lab sleep test) done and interpreted by someone very knowledgeable in both pulmonology and sleep medicine to figure out your sleep breathing patterns.

Best Regards,

PaytonA
12-28-2015 08:07 PM
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GTOdude Offline

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Posts: 94
Joined: Dec 2015

Machine: RemStar Auto APAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFIT P10
Humidifier: Unsure
CPAP Pressure: 7-14
CPAP Software: SleepyHead EncoreBasic

Other Comments: Other Dx: cabg x3 '94. Hypothyroid '15 and other maladies.

Sex: Male
Location: Central Valley, Left Coast

Post: #42
RE: Getting worse..
(12-28-2015 08:07 PM)PaytonA Wrote:  Despite all of my razzing, I agree with Mongo and Sleeprider. I think it might be a great idea to have a polysomnography (lab sleep test) done and interpreted by someone very knowledgeable in both pulmonology and sleep medicine to figure out your sleep breathing patterns.

Best Regards,

PaytonA
I'll see a different specialist on the 4th of Jan. Ill ask for a titration and spirometry. I had a sleep study a few months ago but in my opinion it sucked. Sad I cant get into my ENT till Feb. Guess he'll have to just understand..

My chest feels like i pulled a whole bunch of muscles. Ache constantly. Must be getting "used" to mask and snorkel..

Mark

I can take all the razzing you can give me lol
12-28-2015 08:21 PM
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vsheline Offline

Advisory Members

Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #43
RE: Getting worse..
(12-27-2015 06:03 PM)Sleeprider Wrote:  The RERA you are experiencing, would likely be significantly relieved with a bilevel machine, and it would also increase your tidal volume if setup right.

Yes.


(12-28-2015 11:47 AM)GTOdude Wrote:  Funny thing, the desat events only seem to occur when Im initially trying to fall asleep with the machine. Last night I woke up and went to the window to check out something outside. I laid back down and fell back asleep no prob.

First, I think you would find that continuing to gradually raise the Min Pressure toward 10 or 11 would reduce Flow Limitation and obstructive Hypopnea/Apnea while first falling asleep.

Second, I have found it helpful when sleeping on my side to use just a small "neck" pillow, roughly cylindrical, approximately 1 foot long, 4" or 5" in diameter, which I place lengthwise under my neck and head (not crosswise as usually used) so the pillow supports my head without touching the mask.

Third, when we take off the mask and lay back down and fall asleep without using CPAP (unintentionally, or intentionally because already achieved 4 hrs, or nose hurts or whatever) we are very likely to wake up feeling poorly.


(12-28-2015 05:51 PM)Sleeprider Wrote:  A professional should interpret this for you. The multiple peaks in each individual inhale, especially after the hypopnea, suggests flow limitation and are series of effort increases during the inhale. The jagged top of the inhale looks like a snore, but could just be fluctuations in effort to complete the inhale. Not only that, but each exhale has two steps as well, a small one followed by the rapid main inhale.

I think this breathing pattern holds the reason why you continue to be tired, sore and have felt a lack of relief from CPAP. ... you appear to struggle to inhale, and rapidly exhale to start the next breath.

You may benefit greatly from bilevel (BiPAP/VPAP) therapy that would help you breath more effectively by increasing inhale pressure, and decreasing exhale pressure.

Double Yes.

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 12-28-2015 08:54 PM by vsheline.)
12-28-2015 08:53 PM
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GTOdude Offline

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Posts: 94
Joined: Dec 2015

Machine: RemStar Auto APAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFIT P10
Humidifier: Unsure
CPAP Pressure: 7-14
CPAP Software: SleepyHead EncoreBasic

Other Comments: Other Dx: cabg x3 '94. Hypothyroid '15 and other maladies.

Sex: Male
Location: Central Valley, Left Coast

Post: #44
RE: Getting worse..
The attempt at the FFM was a royal failure. I couldn't get it to quit blowing in my right eye or leaking around the chops. Tried everything. Looser, tighter, adjust at bridge of nose, all of it. I gave up and went back to the P10 with my mouth taped. At least I slept. I did have some leaks.

Appears to me the machine scores any/every breathing aberration as an event. If I snort or cough or anything. Like I woke at 0130 and then fell back asleep. And I awoke at 0600 and there then are groups of centrals and RERAs etc cuz im fidgeting. I feel my heartbeat in my side and am still kinda short of breath, so I get a lousy reading on the machine. Bummer. The report looks ridiculous.

Trying to see cardio again today.

Mark
   
12-29-2015 10:32 AM
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PaytonA Offline
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Monitors

Posts: 3,013
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #45
RE: Getting worse..
Other than your after 6:00 AM sleep/wake junk, you had a good night. You can ignore the sleep wake junk. Do not obsess about the numbers. Yes, we all like to get good numbers but they are only numbers and since the machine can not tell if we are asleep or awake, it just keeps on counting.

Best Regards,

PaytonA
(This post was last modified: 12-29-2015 12:08 PM by PaytonA.)
12-29-2015 12:07 PM
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GTOdude Offline

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Posts: 94
Joined: Dec 2015

Machine: RemStar Auto APAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFIT P10
Humidifier: Unsure
CPAP Pressure: 7-14
CPAP Software: SleepyHead EncoreBasic

Other Comments: Other Dx: cabg x3 '94. Hypothyroid '15 and other maladies.

Sex: Male
Location: Central Valley, Left Coast

Post: #46
RE: Getting worse..
(12-29-2015 12:07 PM)PaytonA Wrote:  Other than your after 6:00 AM sleep/wake junk, you had a good night. You can ignore the sleep wake junk. Do not obsess about the numbers. Yes, we all like to get good numbers but they are only numbers and since the machine can not tell if we are asleep or awake, it just keeps on counting.

Best Regards,

PaytonA
Wish I felt like I had a good night. Gonna see the cardio at 1500 (3pm for you non Mil types). See what he has to say. Also still can be the thyroid. Only been on the meds like 2 weeks. Got up this AM like I was freezing to death but the heater was on..

Mark
12-29-2015 12:18 PM
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justMongo Offline

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Posts: 3,853
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #47
RE: Getting worse..
(12-29-2015 12:18 PM)GTOdude Wrote:  Wish I felt like I had a good night. Gonna see the cardio at 1500 (3pm for you non Mil types). See what he has to say. Also still can be the thyroid. Only been on the meds like 2 weeks. Got up this AM like I was freezing to death but the heater was on..

Mark
It was a cold night last night. It's 54F down here @10:00. I'm freezing.

Payton doesn't feel it. He's got all that fur...
[Image: bigeyes5.jpg?dateline=1388178336]

Glad you're seeing your cardio doc today.

Mongo

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(This post was last modified: 12-29-2015 01:14 PM by justMongo.)
12-29-2015 01:12 PM
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GTOdude Offline

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Posts: 94
Joined: Dec 2015

Machine: RemStar Auto APAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFIT P10
Humidifier: Unsure
CPAP Pressure: 7-14
CPAP Software: SleepyHead EncoreBasic

Other Comments: Other Dx: cabg x3 '94. Hypothyroid '15 and other maladies.

Sex: Male
Location: Central Valley, Left Coast

Post: #48
RE: Getting worse..
(12-29-2015 01:12 PM)justMongo Wrote:  
(12-29-2015 12:18 PM)GTOdude Wrote:  Wish I felt like I had a good night. Gonna see the cardio at 1500 (3pm for you non Mil types). See what he has to say. Also still can be the thyroid. Only been on the meds like 2 weeks. Got up this AM like I was freezing to death but the heater was on..

Mark
It was a cold night last night. It's 54F down here @10:00. I'm freezing.

Payton doesn't feel it. He's got all that fur...
[Image: bigeyes5.jpg?dateline=1388178336]

Glad you're seeing your cardio doc today.

Mongo
Mongo, it was about 34 up here in the Central Valley. But at least our gas prices are more bearable. My son lives in Torrance and when we were there visiting, I got sticker shocked. Thankfully the wife's car is a Prius. Id never take the Pony down there. lol

Mark
12-29-2015 01:25 PM
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GTOdude Offline

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Posts: 94
Joined: Dec 2015

Machine: RemStar Auto APAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFIT P10
Humidifier: Unsure
CPAP Pressure: 7-14
CPAP Software: SleepyHead EncoreBasic

Other Comments: Other Dx: cabg x3 '94. Hypothyroid '15 and other maladies.

Sex: Male
Location: Central Valley, Left Coast

Post: #49
RE: Getting worse..
Ok so I saw my cardio dr today and after telling him the whole spiel, he believes it has nothing to do with my heart. Said it sounded beautiful and all that. Welcome news. Did want me to go see the pulmo dr for which I have an appointment on 1/4/16. Now the chest and back pain and all else seems to be me fighting to breathe on the damn machine and it not working for me plus the damn anxiety I was having. I am going to not use it tonight and sleep on my tummy with a shirt with a ball in it or even a damn backpack on to make sure I dont flop over on my back.

Medicare puts you between a rock and a hard place. Makes you use the machine 4 or more hours a night even if it isnt working for you and in my case it isnt. I dont care. I'll hopefully get a titration study and a BiPAP from the dr i see on the 4th and then try and work with Medicare..

We shall see.

Mark
12-29-2015 08:26 PM
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Sleeprider Online
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Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
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Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

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Sex: Male
Location: Where they make Respironics

Post: #50
RE: Getting worse..
Mark, one of the criteria for qualifying for bilevel is a failure at CPAP. That can be compliance or efficacy. You really need to alert the pulmonologist to your unusual sleep breathing pattern with inhale/exhale time of 3:1 and the really ragged inhalation. These are symptoms that do respond well to bilevel, and perhaps ASV. I never associated your respiratory issues with the cardio issues, but you show a lot of indications of upper airway resistance or flow limitation. Your doctor is best equipped to figure this out and get you on-track with the sleep therapy you need. Please consider taking in some printouts of the flow rate charts for him to see. Ideal would be to use EncoreBasic waveform printouts.

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12-29-2015 10:29 PM
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