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Getting worse..
#11
RE: Getting worse..
Well, everybody else did, so I'll toss in my own two cents. 8-)

You're leaking like crazy. It's difficult or impossible for the machine to do it's job with leaks that size. Also the leaks are disturbing even with no other problems.

I'm with JustMongo and Ghost. If you can get your leaks under control and bump up the upper limit and the lower limit I think you'll be feeling a lot better.

Smaller pressure changes and few leaks will give you a better night's sleep.

Also, everybody feels like crap sometimes, so don't give up.
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#12
RE: Getting worse..
Keeping in-mind it's a PR machine, there are two leak traces on the graph. One is total leak and the lower is the true unintended leak.
The 95% unintended leak rate is 23 LPM at which the machine can still provide adequate pressure for therapy.

Now, I cannot stand leaks because they disturb me. My full-face mask does the "face-fart" thing; and it wakes me.
It's just that I have managed to tame the FFM and get essentially a zero leak rate.
Admin Note:
JustMongo passed away in August 2017
Click HERE to read his Memorial Thread

~ Rest in Peace ~
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#13
RE: Getting worse..
On the Pr machine it will flag a large leak at the point it cant accuately pick up events or maintain full pressure.

That happens at about 70.
His large leak while it needs serious improvement is only .42 or something of his night.
The machine can deal about all the time but like Mongo says the lwaks themselves could be disturbing.
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#14
RE: Getting worse..
(12-26-2015, 05:00 PM)justMongo Wrote: Keeping in-mind it's a PR machine, there are two leak traces on the graph. One is total leak and the lower is the true unintended leak.
The 95% unintended leak rate is 23 LPM at which the machine can still provide adequate pressure for therapy.

I'm probably just reading it wrong, but it looks like a bunch of leaks way above 40 LPM.

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#15
RE: Getting worse..
(12-26-2015, 10:51 PM)Terry Wrote:
(12-26-2015, 05:00 PM)justMongo Wrote: Keeping in-mind it's a PR machine, there are two leak traces on the graph. One is total leak and the lower is the true unintended leak.
The 95% unintended leak rate is 23 LPM at which the machine can still provide adequate pressure for therapy.

I'm probably just reading it wrong, but it looks like a bunch of leaks way above 40 LPM.

That's the total leak line which includes the mask venting.
Admin Note:
JustMongo passed away in August 2017
Click HERE to read his Memorial Thread

~ Rest in Peace ~
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#16
RE: Getting worse..
(12-26-2015, 11:52 PM)justMongo Wrote:
(12-26-2015, 10:51 PM)Terry Wrote:
(12-26-2015, 05:00 PM)justMongo Wrote: Keeping in-mind it's a PR machine, there are two leak traces on the graph. One is total leak and the lower is the true unintended leak.
The 95% unintended leak rate is 23 LPM at which the machine can still provide adequate pressure for therapy.

I'm probably just reading it wrong, but it looks like a bunch of leaks way above 40 LPM.

That's the total leak line which includes the mask venting.
I only used the machine for just over 3 hours last night. Woke up with a sore nose. Took it off and slept on my tummy rest of the night. Still feel like hell. Gonna get in the cardio hopefully tomorrow. Here's the print out. Still dealing with leaks, but a better looking AHI?

Mark
[attachment=2007]


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#17
RE: Getting worse..
Goat Boy Big Grin (GTOdude),

You are reacting too quickly to the data. On the other hand, the way you are feeling needs investigation but, as it looks like you are beginning to suspect, it needs to be investigated with your doc and not your CPAP.

The first set of graphs in this thread (the day that your AHI was 5.03) was a good night's sleep. All of the events after 5:00 AM look like sleep/wake junk to me and should be ignored. Most of that night you had a good one going.

As for your leaks, are you using a chin strap? It looks to me like you may be getting some mouth leaks. Your leak rate on the first chart was actually fine. Not quite as good on the second one but not bad.

It is like restoring an old GTO. You ain't going to do it in one day.

Best Regards,

PaytonA

Admin Note:
PaytonA passed away in September 2017
Click HERE to read his Memorial Thread

~ Rest in Peace ~
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#18
RE: Getting worse..
(12-26-2015, 11:57 AM)Crimson Nape Wrote: It appears that the pressure changes are disturbing you. Have you tried a straight pressure? I have a problem with variable pressure and setting it to a single value greatly improved how I feel. This is just a WAG but since your 50% is 8.7cm, it'd set the pressure at 9 and give her a try. If nothing else, this would give you a proof of concept.

Hi Crimson Nape,

When changing from APAP mode to fixed pressure CPAP mode, conventional wisdom is to find the 90% or 95% pressure, and set the fixed pressure to that.

To find the 90% or 95% pressure (the pressure which the machine was at or below at least 90% or 95% of the time) the Max Pressure setting needs to be high enough that the pressure does not reach (or rarely reaches) the Max Pressure, and the Min Pressure should not be much lower than the median (50 percentile) pressure. Preferably, a long term average (for a month or at least a week) of the nightly 90% or 95% pressures is used.

For some patients, this might be uncomfortably high or might cause excessive air swallowing or other problems, but a few patients do even better with a fixed pressure slightly higher than the 95% pressure, giving them an AHI near zero most nights.

But if a patient is having a bothersome amount of RERA (Respiratory Effort Related Arousal) events, bilevel therapy (or preferably bilevel Auto therapy) is the best.

RERA events are caused by the pressure being too low during Inhalation (during IPAP). Obstructive Apnea events are most commonly caused by the pressure being too low at the End of Exhalation (during EPAP or at EEPAP).


The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies.  Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
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#19
RE: Getting worse..
(12-27-2015, 01:49 PM)vsheline Wrote: But if a patient is having a bothersome amount of RERA (Respiratory Effort Related Arousal) events, bilevel therapy (or preferably bilevel Auto therapy) is the best.

RERA events are caused by the pressure being too low during Inhalation (during IPAP). Obstructive Apnea events are most commonly caused by the pressure being too low at the End of Exhalation (during EPAP or at EEPAP).

Very clear and succinct! like
Sleeprider
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www.ApneaBoard.com

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#20
RE: Getting worse..
For those of you wondering, the GTO was sometimes referred to as the Goat.
Admin Note:
JustMongo passed away in August 2017
Click HERE to read his Memorial Thread

~ Rest in Peace ~
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