(09-02-2014, 06:48 PM)DeannaM Wrote: Dear friends, an interesting thing happened to me late this afternoon. A friend who knew I was having trouble has gifted me a nasal mask to try, since my DME absolutely will not give me another mask to try. So starting tomorrow I will be trying her mask out. I had to go to the hospital medical records department to get it, but I now have a copy of the script. My friend is putting me in touch with a different DME for getting masks and supplies. After seeing the script, it is clear that the DME did not set up the machine as instructed. So I can remedy this myself thanks to the clinicians manual you all have provided. This is so very disturbing that my treatment is being arbitrarily administered by an equipment sales lady. So again I thank you all. This not so grown up 50 year old lady does need someone to hold her hand.
Many of us here are willing and able to 'hold' your hand', if you want/allow us to do so.
It is always about choice, we have been give 'free will' to make our own choices. I will stress again, the degree of your OSA (as it is right now untreated) will determine what the effects will be of continuing to go untreated.
For me it is very simple - one, my untreated OSA created a heart issue that was going to kill me. Two - even a single night without my machine *can* kill me as my blood O2 drops into the low 60s, which *could* cause death. So really, I have no choice.
For many others, their untreated numbers "AHI" is one, lowest "blood O2 reading" is another - if those numbers are not so bad, then they may have a real choice - between the hassles and expense of CPAP vs the possible issues (both short-term, and long-term) of going untreated.
I am on a fixed income, and had no health care for the last five years until just recently. I well know the cost and expense of trying different masks, only to throw away $100s of bucks. So I feel for you~!
Please, regardless of what you end up choosing, do not go away, do not feel picked on - we do mean well, really we do! But even if you stop CPAP treatment, hang around - talk to us from time, to time.