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Greetings all
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REMember Offline

Preferred Members

Posts: 21
Joined: Sep 2012

Machine: Resmed S8, Devilbis IntelliPAP
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: Devilbis, Resmed
CPAP Pressure: 17.6
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: US Virgin Islands

Post: #1
Greetings all
Just wanted to introduce myself. I'm a new board member but a long time CPAPer. I was diagnosed with severe apnea in '96 with an AHI of 117. I've been using this glorified aquarium pump for the past 17 years.

It took 2 years to get consistent results. I've been doing pretty well since then...until this spring. Now I'm in trouble again so I'm here to look for help and offer what help I can.

Best wishes to you.
09-28-2012 07:32 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: Greetings all
Welcome
09-28-2012 07:39 PM
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SuperSleeper Offline

Administrators

Posts: 9,976
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #3
RE: Greetings all
Welcome REMember!

Glad you dropped by to say "howdy". Coffee

Nice avatar... always felt sorry for doggies in cones. Blowing-nose

Bigwink

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

09-28-2012 07:45 PM
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lonnieb Offline

Preferred Members-2

Posts: 113
Joined: Jul 2012

Machine: ResMed S9
Mask Type: Nasal mask
Mask Make & Model: Phillips ComfortGel Blue
Humidifier: ResMed H5i
CPAP Pressure: 7 - 13
CPAP Software: ResScan SleepyHead

Other Comments: I intend to live forever. So far, so good:Steven Wright

Sex: Male
Location: Tennessee

Post: #4
RE: Greetings all
Hi REMember and welcome to the forum!

Im sure you can get help with any questions you may have there are lots of knowledgeable people here and im sure as a 17 year cpap user you can help a lot as well glad you joined us.
welcome to the forum
Sleep-well
09-28-2012 07:46 PM
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cbramsey Offline

Advisory Members

Posts: 900
Joined: Mar 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: ResMed H5i with ClimateLine
CPAP Pressure: 6 - 12
CPAP Software: ResScan

Other Comments: Supreme Overlord of Web Darkness

Sex: Male
Location: NC, USA

Post: #5
RE: Greetings all
Welcome to the forum!!! We are glad you joined us!!! Welcome

What kind of trouble are you having?? Thinking-about

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-28-2012 08:12 PM
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REMember Offline

Preferred Members

Posts: 21
Joined: Sep 2012

Machine: Resmed S8, Devilbis IntelliPAP
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: Devilbis, Resmed
CPAP Pressure: 17.6
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: US Virgin Islands

Post: #6
RE: Greetings all
Many thanks for the warm welcome!

I'm looking through all the posts. There are some very knowledgeable members here! I'm so glad I found this forum.

I am too dain bread today (horrible night) to even begin to explain but I'm sure that I'll have quite a few questions tomorrow Smile

Thanks all!
09-28-2012 08:22 PM
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trish6hundred Offline

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: Greetings all
Hi REMember, First of all, WELCOME! to the forum.! What's going on, what kind of trouble are you having?

trish6hundred
09-28-2012 08:31 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #8
RE: Greetings all
(09-28-2012 08:22 PM)REMember Wrote:  I am too dain bread today
hope you feel better tomorrow .. in my meantime change your loaf Too-funny
[Image: images?q=tbn:ANd9GcT8ngnP3LrnjrEaBo_VXCg...FNVx4pq-n0]
09-28-2012 08:42 PM
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REMember Offline

Preferred Members

Posts: 21
Joined: Sep 2012

Machine: Resmed S8, Devilbis IntelliPAP
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: Devilbis, Resmed
CPAP Pressure: 17.6
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: US Virgin Islands

Post: #9
RE: Greetings all
Greetings all.

I have a few functioning brain cells today...LOL...so here we go...

My sleep has been seriously degraded since late April. The problem? It's a tangled mess. Heh heh, money (or lack thereof) is probably my biggest obstacle at the moment. I have no insurance, no money, and no data. Both of my APAPs have been taken out by lightning. My current machines are just glorified aquarium pumps. As a result, I have nothing but a subjective "I feel horrible" to go on.

I suspect that my apnea is raging again and is not being effectively treated. I am 100% compliant and don't have any significant leaks or mouth-breathing that I'm aware of. I spent the better part of '98 sitting in a chair - unable to run my company, unable to drive myself anywhere on most days, or even think clearly. My major complaint on another forum at that time was "the air doesn't seem to be getting past my nose." That's where I find myself once again. At 17.6 pressure, I don't feel like I am getting any air and it takes no effort whatsoever to exhale. Allergy meds gave me my life back in '98. This time, they are not helping.

I was diagnosed with extremely narrow airways. Any inflammation whatsoever closes them down and it becomes like trying to drink a milkshake through a straw. I've tried nasal steroids, antihistamines, on and on, each with short-term success and then I had to pay the price afterwards. Prednisone was the first break though in '98. I could breathe!! That led to allergy testing and, after 2 years of pure hell, freedom.

I also picked up a new buddy in April - insomnia. I've never had a problem falling asleep. I usually drop out quite quickly. Now, I flip and flop for hours every single night. Cute. Once I finally do fall asleep, I sleep soundly for 8 to 9 hours but I feel just awful on most days.

Anywho, sorry for writing a book. I'm here looking for help. Any suggestions for a prednisone-like anti-inflammatory? I'm also looking for recommendations for PAPs. I think I want to try a VPAP with full data capabilities this time given my pressure setting. The auto feature on the APAPs I had were never of much benefit to me. Oh! And do I understand correctly that new prescriptions must be written within 1 year of a sleep study? If so, I'm screwed. The online DME provider I've used destroyed my prescription record when the new owners wouldn't pay enough for them. Sleep medicine on this rock I live on is still in the dark ages...sigh...

I will be quite grateful for your help!
09-29-2012 03:16 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #10
RE: Greetings all
have you tried F&P Oracle
[Image: 1b17c355-307c-430c-a873-04f2f7df6501]
http://www.fphcare.com/products/oracle-oral-mask/

youtube
http://www.youtube.com/watch?v=TtnXuY7iQ...ature=plcp
09-29-2012 04:31 PM
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