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Greetings from New Member!
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Dione Offline

New Members

Posts: 3
Joined: May 2016

Machine: Philips DreamStation
Mask Type: Nasal pillows
Mask Make & Model: DreamEear
Humidifier: Philips
CPAP Pressure: 8-16
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #1
Wink Greetings from New Member!
Hi all! Dione from Indiana, USA. I have a family history significant for sleep apnea related to these small airways! Interesting to me! I thought we were just a bunch of snoring fools!
I just got my CPAP this week and have 3 nights with it so far. That first night was rough trying to get used to it! Unsure I even tried a sleeping pill doc prescribed- don't think I will do that again. I was even more tired than usual all day!
I have the Dream Station CPAP machine that does some automatic adjustments, fancy stuff! Then I asked for, am wearing, and I'm already pretty comfortable in the DreamWear nasal pillows. My husband says it looks like a cross between the breather they use in the Star Wars movie when they go underwater to Jaja Binks home... And a Snork- 80s cartoon character.
In my sleep study I had 97 episodes in the 6 hour time, a drop in oxygen several times, and zero REM sleep. This funny thing is that I had taken some Benadryl to make sure I fell asleep and I thought I had a pretty good night's rest! I would hate to see what my "normal" night of sleep was! The average of 16+ episodes per hour and they diagnosed me with moderate obstructive sleep apnea. My machine averages for me too and when wearing mask I am already down to 5-6 episodes in the first week! I'm saying that is good results!
Let me tell you some features I like so far-
Ramp option has been very helpful. It cuts the pressure all the way to minimum and gradually increases over 20 minutes. I understand that is programmed in by RT and can be adjusted. It just helps me because I get startled and pretty anxious when it turns on to full prescribed pressure!
Humidifier is good plus the tube even has some warming to it so there isn't condensation in the tube. I am a nurse and see plenty of the water in tubes- it doesn't hurt anything but I cannot tolerate seeing it there or the noise it makes bubbling around. Thinking-about
I like the nasal pillows- they do not go up my nose, they are soft, it doesn't fit tight and still has 100% fit. My uncle and brother have the whole mask and I felt like That would be more chlaustraphobic for me (just me!). I like the reassurance that I could breathe thru my mouth- my anxiety is not rational because the masks are removable so it is not like I would suffocate but there is a bit of insight to an anxious brain! Oh-jeez
I am looking forward to a day that I wake up feeling refreshed after a good night sleep!
05-20-2016 11:05 AM
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OpalRose Offline

Monitors

Posts: 3,163
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Greetings from New Member!
Dione,
Welcome to Apnea Board!
It sounds like you are adapting to therapy quite well.

Don't forget to download the free SleepyHead software. http://sleepyhead.jedimark.net/
It's a hugh help in allowing you to follow your progress.

Also, you can get the Clinicians manual for your machine. This will help you in time to be able to adjust your own pressure if needed.
http://www.apneaboard.com/adjust-cpap-pr...tup-manual

Just want to say I understand that whole claustrophobic issue. That's the main reason I started with a nasal pillow mask.

Good luck and keep us posted.
Sleep-well

OpalRose
(This post was last modified: 05-20-2016 11:23 AM by OpalRose.)
05-20-2016 11:21 AM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: Greetings from New Member!
Hi Dione,
WELCOME! to the forum.!
You have a good attitude and that will go a long way with your CPAP therapy.
I used to use nasal and pillows masks and the cursed chinstrap, (Ha-Ha,) but I now use a full-face mask, (FFM,) I was able to work through claustrophobia, so don't rule them out. Hopefully you will be able to stick with the nasal mask.
Hang in there for more responses to your post and much success to you as you start your CPAP journey.

trish6hundred
05-20-2016 12:04 PM
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justMongo Offline

Monitors

Posts: 3,840
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #4
RE: Greetings from New Member!
Hi Dione. Welcome to ApneaBoard.
Sounds like you are off to a good start.

FYI -- full-face masks have an anti-asphyxia valve.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-20-2016 12:48 PM
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green wings Offline

Advisory Members

Posts: 544
Joined: Feb 2016

Machine: Respironics System One RemStar Pro (460)
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: integrated humidifier
CPAP Pressure: 13.0 cm
CPAP Software: SleepyHead

Other Comments: using CPAP since Jan. 2016

Sex: Undisclosed
Location: US

Post: #5
RE: Greetings from New Member!
Hello, Dione. Welcome to Apnea Board. It sounds like you have a great set-up, with an auto-adjusting machine and the nasal pillows mask design.
05-20-2016 02:26 PM
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JWR Offline

Monitors

Posts: 455
Joined: Sep 2013

Machine: DreamStation DSX700 , PR 760 bipap auto
Mask Type: Nasal mask
Mask Make & Model: Resmed mirage FX
Humidifier: DreamStation DSXH , system one
CPAP Pressure: min EPAP = 17.5max IPAP = 21
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: .

Post: #6
RE: Greetings from New Member!
Welcome and glad your off to a good start. Welcome

05-20-2016 02:26 PM
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Dione Offline

New Members

Posts: 3
Joined: May 2016

Machine: Philips DreamStation
Mask Type: Nasal pillows
Mask Make & Model: DreamEear
Humidifier: Philips
CPAP Pressure: 8-16
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #7
RE: Greetings from New Member!
Thanks
05-20-2016 03:19 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,988
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #8
RE: Greetings from New Member!
You are off to a good start, Dione. My wife refers to me as Darth Vader when I'm all masked up! Dielaughing

You really need to install the free SleepyHead software on your computer so you can monitor your therapy. You could easily be leaking air out your mouth, for example, for enough time that it interferes with your sleep quality but not enough time that your machine issues a warning about it.

This will help you get closer to that good night's sleep you're looking for.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-20-2016 04:31 PM
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richb Online

Advisory Members

Posts: 525
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #9
RE: Greetings from New Member!
Hi Dione,

Welcome to the Apnea Board.
See, you are already getting advice. Do try to use the Sleepyhead software. It will help you be in charge of your therapy.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
05-20-2016 05:40 PM
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pupcamper Offline

Advisory Members

Posts: 399
Joined: Nov 2015

Machine: PR DreamStation CPAP Pro
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 Pillows; Quatro Air FFM
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 10.5 cmH2O; no ramp; no C-Flex
CPAP Software: SleepyHead EncorePro

Other Comments: Lung cancer survivor since 11/2004; CPAP since 11/2015

Sex: Male
Location: Van Buren, Arkansas, USA.

Post: #10
RE: Greetings from New Member!
Hello Dione,

Welcome to the board. Congratulations on a great start.

"....respiration,—a troublesome practice, but one which custom has rendered necessary to our easy existence...." Oliver Twist, Charles Dickens- 1837

I use FlashPAP to load data from a FlashAir III wifi sd card in my machine to my computer and display it with SleepyHead .
robysue's Beginner's Guide to SleepyHead
05-20-2016 09:21 PM
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