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Grid Down and Your CPAP
#11
(02-27-2017, 09:39 AM)Phill Wrote:
(02-25-2017, 06:57 PM)Beej Wrote: If I slept without the CPAP, I'd do it on my side since I have data showing the issue is less extreme then.

The data you have showing the issue as being less extreme if you sleep on your side is your own, or industry published data?

I ask because my home sleep test consisted of strapping a cigar box sized data recorder to my chest, which I contended(forcefully) would not allow a representative nights sleep, giving a falsley high reading, as I was more or less forced to sleep on my back.


I have the same "dispute of test result" for the same reason, I'm a side sleeper (have been all my life) so the test didn't replicate my normal sleeping routine. 

The results came back that I have mild SA, and that I snore.... however, my wife says I don't snore and I don't stop breathing during the night (she has a tendency to lay awake beside me for hours at night when work issues are bothering her, which is often  Sad )

I still maintain that my work accident was the result of ten years of sleeping less than 5 hours per night, I fell asleep and crashed my work vehicle purely from extreme fatigue. 

The biggest upside of CPAP for me is that it has forced me to get 8 hours of sleep most nights to now stay compliant to my commercial driver's licence status requirements.... so I'm happy to be using mine. 


It has been known for decades that side sleepers snore less, or not at all, compared to sleeping on your back.. as a side note, there is evidence to suggest that reflux is reduced by sleeping on your left side for those of us that suffer from GORD or reflux, and I have found that to be the case for me personally.
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#12
"I have the same "dispute of test result" for the same reason, I'm a side sleeper (have been all my life) so the test didn't replicate my normal sleeping routine".

Yes, exactly the point I made to the medics, basically I was told that this was an industry standard test, given of course with a hint of sarcasm.

8 hours sleep! luxury, I am lucky to get the 4 hours required for private car licence, and even then I was told to falsify the results if not hitting the 4.

I have to go in for my annual checkup next week, should be good for another dose of condescension and incompetence.
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#13
Lucky to get four hours? Oh man...how do you survive on that. I would be a total zombie after a couple of days.
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#14
Once I have hit the four hours I take the mask off and get 2 hours or so of decent sleep, usually end up with a total of 6-6.5 hours sleep in the end.
Not that bad, other than the waking up bit caused by the worthless CPAP treatment.
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#15
Your CPAP therapy shouldn't be that way.  I would encourage you to download the Sleepyhead software onto your computer (if your machine has a memory card.)  Get the data from it and post some screenshots on the main section of the forum.  The more experienced people should be able to help you out.

Also, you may have the wrong size of mask or even the wrong type of mask for your face.  I found experimenting with different masks until I found the right one invaluable.  Finding a comfortable mask made my therapy much easier and actually pretty comfortable after a few nights. 

Don't give up and resign yourself to discomfort.  You will get a lot of help here.  Just work with the fine folks here and eventually you won't have so much trouble with your therapy.
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#16
"Yes, exactly the point I made to the medics, basically I was told that this was an industry standard test, given of course with a hint of sarcasm."

An industry standard test... because it ensures all who are sent for testing will fail and therefore have to buy a CPAP machine.... says the cynic in me.  Thinking-about


BUT, there are definitely those who do need CPAP to improve their health.. it is just a shame the tests aren't done to truly represent the way an individual "normally" sleeps at home. 

One day technology and specialists will come up with a better method, in the meantime we are stuck with what they do at present. 
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#17
(03-14-2017, 12:10 PM)Marillion Wrote: Your CPAP therapy shouldn't be that way.  I would encourage you to download the Sleepyhead software onto your computer (if your machine has a memory card.)  Get the data from it and post some screenshots on the main section of the forum.  The more experienced people should be able to help you out.

Also, you may have the wrong size of mask or even the wrong type of mask for your face.  I found experimenting with different masks until I found the right one invaluable.  Finding a comfortable mask made my therapy much easier and actually pretty comfortable after a few nights. 

Don't give up and resign yourself to discomfort.  You will get a lot of help here.  Just work with the fine folks here and eventually you won't have so much trouble with your therapy.



I had a meeting with the medic yesterday, informing her forcefully that I considered the treatment to be an utter and complete waste of time, and that the only reason I bothered to continue was to maintain my driving licence, and I was covered insurance wise should I have an accident and they checked back on my medical records.

Needless to say we did not part on the best of terms, the only positive outcome was that I got a new mask, oh and I said that next year I would send my memory card in by mail saving me the effort paying them another visit.
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#18
(03-14-2017, 10:56 PM)Ockrocket Wrote: "Yes, exactly the point I made to the medics, basically I was told that this was an industry standard test, given of course with a hint of sarcasm."

An industry standard test... because it ensures all who are sent for testing will fail and therefore have to buy a CPAP machine.... says the cynic in me.  Thinking-about


BUT, there are definitely those who do need CPAP to improve their health.. it is just a shame the tests aren't done to truly represent the way an individual "normally" sleeps at home. 

One day technology and specialists will come up with a better method, in the meantime we are stuck with what they do at present. 

I believe we both sing from the same hymn sheet, basically, sleep test, force you to sleep in an unnatural position, and hey you have high readings, you need CPAP.

Main difference with us would be that no actual cash changes hands, they just complain, constantly, that the government does not give them enough money.
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