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HHHHEEEELLLPPP! (twisting, turning, mask leaking)
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Stroppy Offline

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Posts: 32
Joined: Jul 2014

Machine: F&P Icon
Mask Type: Full face mask
Mask Make & Model: F&P
Humidifier: F&P
CPAP Pressure: 17cm
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Australia

Post: #1
Surprised HHHHEEEELLLPPP! (twisting, turning, mask leaking)
I bought my first machine yesterday! HOORAY!! It's an F&P ICON APAP with a Simplus full-face mask (necessary as I tend to mouth breath when sleeping on my back). The lady who helped me set up the machine tried the large mask and I found it just leaked too much so we went for the middle-sized one. Well and good. Got home...had dinner...watched tv and then got everything organised for bed. Set the machine up, filled the humidifier to the right level...mask on...in bed.

The technician set the unit up to ramp the pressure up slowly from a starting level of 4 then going up to 10 after twenty minutes, adjusting up to 20 as needed (my diagnosed pressure needs are between 10 and 20). So there was relatively little discomfort at the start of the night and all went well UNTIL...... At about 5am my dog barked to let me know she wanted out so she could go to the toilet (she generally wants to stay outside after that). I jumped up, forgetting I had the mask on almost toppled the machine. Realising I was about to have an expensive accident I stopped, pulled my mask off quickly and let the dog out.

Pulling off the mask was a silly mistake. In a sleepy befuddlement I reassembled it and had a devil of a time getting a good seal. Once everything seemed okay I nodded off again BUT within a half hour I woke up from a yucky dream, lying on my back, my jaw having gone slack, mouth wide open and obviously snoring. The jaw drop had defeated the mask seal and air was pouring out over my chin.

Seeing that I tend to twist and turn onto my back when sleeping how the devil am I going to stop the jaw from dropping down? I saw a special chin strap on Ebay designed to be used with CPAP/APAP masks. Will these do the trick or is there another way to stop this from happening? A friend told me to use pillows to stop me rolling onto my back but I've tried that in the past and it never worked...even the tennis ball in a pillow case didn't work.


HHHHHHEEEEELLLLLPPP!

Anyone have a solution??? Bigwink
(This post was last modified: 08-16-2014 05:19 AM by Stroppy.)
08-16-2014 05:18 AM
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JimZZZ Offline

Advisory Members

Posts: 370
Joined: Dec 2013

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: ResMed H5i (not using)
CPAP Pressure: 9 - 14
CPAP Software: ResScan SleepyHead

Other Comments: CareFusion PureSom Ultra Chinstrap

Sex: Male
Location: Western North Carolina

Post: #2
RE: HHHHEEEELLLPPP!
(08-16-2014 05:18 AM)Stroppy Wrote:  Anyone have a solution??? Bigwink
As you can see in my profile, I like the CareFusion PurSom Ultra Chinstrap worn under my Simplus harness. I fasten it firmly but not tight so that it suggests that I keep my mouth shut but is not an absolute lock.
08-16-2014 05:53 AM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #3
RE: HHHHEEEELLLPPP!
Falcon Sleeping Position
[Image: sleepingposmaskleft1b.jpg] [Image: sleepingposmaskright1b.jpg]

I find in this position don,t roll on my back

Welcome
08-16-2014 06:26 AM
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justMongo Offline

Monitors

Posts: 3,855
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #4
RE: HHHHEEEELLLPPP!
Stroppy: you are fortunate the machine didn't tumble or slosh water into the blower unit.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-16-2014 09:20 AM
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Stroppy Offline

Preferred Members

Posts: 32
Joined: Jul 2014

Machine: F&P Icon
Mask Type: Full face mask
Mask Make & Model: F&P
Humidifier: F&P
CPAP Pressure: 17cm
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Australia

Post: #5
RE: HHHHEEEELLLPPP!
(08-16-2014 09:20 AM)justMongo Wrote:  Stroppy: you are fortunate the machine didn't tumble or slosh water into the blower unit.
Yep! I was worried about that.

LOL! Zonk...I'm too fat for that position!

OK... So I guess I buy a chin strap. More money ... Sad wallet.Big Grin
08-16-2014 10:08 AM
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trish6hundred Offline

Advisory Members

Posts: 6,453
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: HHHHEEEELLLPPP! (twisting, turning, mask leaking)
Hi Stroppy,
Better luck tonight. Hang in there for more responses to your post.

trish6hundred
08-16-2014 10:27 AM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #7
RE: HHHHEEEELLLPPP! (twisting, turning, mask leaking)
I love sleeping on my back and I think it's worthwhile to work with the therapy until you can do that. But, lots of folks can't get there, so there is that too.

But there are a couple of things in your post that caught my eye: First, the ramp time. I do not know why some of the DME's insist on setting the ramp for such a long period. Most, or many, people end up turning it clear off once they're used to the machine anyhow. At 20 minutes the machine won't actually do everything it's designed to do for 20 minutes after you lay down. If it were me, I would change the ramp setting to not more than 5 minutes.

2nd, you mention when you got up with the dog you forgot you had a mask on. That's great! That says you are already comfortable with the process. Good job!

In regards to the chinstrap, I have gone through quite a few of them, including one I got from EBay that probably is the one you're looking at. It didn't fit at all, way too small, so it now lives in the puppies box.

Jimzzz turned me onto the Puresom Pro and I like it a lot. Follow his post on that. It's why we pay him the big bucks.

Good job Stroppy...
(This post was last modified: 08-16-2014 10:54 AM by retired_guy.)
08-16-2014 10:52 AM
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Homerec130 Offline

Advisory Members

Posts: 445
Joined: Mar 2012

Machine: Philips/Resperonics BiPAP auto SV Advanced System One (950P)
Mask Type: Full face mask
Mask Make & Model: ResMed Quatro FX
Humidifier: Philips Respironics System 1
CPAP Pressure: 6-16
CPAP Software: SleepyHead

Other Comments: But it is a dry heat.

Sex: Male
Location: Tucson, AZ

Post: #8
RE: HHHHEEEELLLPPP! (twisting, turning, mask leaking)
I still use the ramp for about 20 minutes as it helps me clear my mind and drift into la-la-land. I find if I don't, it will sleep for about 20 minutes and then be wide awake for the next 2 hours. Guess if is from my old flying days when I used to do 20 minute naps. If I get up during the night, I don't use the ramp. I talked to my DME about the ramp and his attitude is whatever you are most comfortable with.

I also use a hose buddy that brings my hose over the top of the headboard and down. I found that my numbers got a lot better once I got this setup. They are available from a majority of the suppliers on the list, or you can put a hook in the wall over the headboard and run your hose up and over. You can get a heavy duty elastic band, loop it around the hose and then over the hook.

Homer
(This post was last modified: 08-16-2014 01:52 PM by Homerec130.)
08-16-2014 01:50 PM
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Stroppy Offline

Preferred Members

Posts: 32
Joined: Jul 2014

Machine: F&P Icon
Mask Type: Full face mask
Mask Make & Model: F&P
Humidifier: F&P
CPAP Pressure: 17cm
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Australia

Post: #9
RE: HHHHEEEELLLPPP! (twisting, turning, mask leaking)
Thanks to all who replied and offered encouragement. Night two seemed to go a bit better, save for sleep taking a long time to arrive. When the doggy barked this time I remembered to just gently pull the hose free from the mask. I can't say I can remember waking up finding my jaw had slipped from the mask but my mouth was dry and the mask had moved up so it must have happened whilst I was in lala land. I am going to order a good chinstrap online. That should solve the problem.

As to the ramp time mentioned above, I tried using the machine with no ramp time and after initially feeling overwhelmed with the pressure within five or so breaths I was breathing okay. The tech has set the machine to vary between 10 and 20cm but after I have been lying still for a while I can't really notice the pressure change, thank goodness.

Two other things in the learning curve. Having an itch on or around your nose is pain when you are all masked off and ready for sleep and coughing with a mask on is yucky! Smile
08-17-2014 02:35 AM
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JimZZZ Offline

Advisory Members

Posts: 370
Joined: Dec 2013

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: ResMed H5i (not using)
CPAP Pressure: 9 - 14
CPAP Software: ResScan SleepyHead

Other Comments: CareFusion PureSom Ultra Chinstrap

Sex: Male
Location: Western North Carolina

Post: #10
RE: HHHHEEEELLLPPP! (twisting, turning, mask leaking)
(08-17-2014 02:35 AM)Stroppy Wrote:  Having an itch on or around your nose is pain when you are all masked off and ready for sleep...
I am insanely irritated by anything that tickles my nose so have become the poster boy for a roomy full face mask and well trimmed nose hair. If the air flow moves a nose hair, I will awaken and remove the mask for sure.
08-17-2014 05:43 AM
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