HI! New to Forum and CPAP...have questions
I have been suspicious that I had sleep apnea for years. After discovering that I had cancer earlier this year, I decided to deep dive into my health and get everything fixed. I'm having surgery for my cancer in mid-July. My surgeon suggested that if I thought I had sleep apnea, I should get it checked out an on therapy before the surgery so I would recover better.
My sleep Doc was referred to me by my PCP. I don't require referrals, however, this guy does a great job of getting me to competent specialty docs.
When I went to the sleep doc, he suspected that I have severe OSA and ordered a sleep study. The study was supposed to be a 2 night study/titration. however, the sleep tech woke me up about 2 hours into the study and said there was no question as to the severity of my condition and that she wanted to get the CPAP going ASAP.
The results came out at AHI=47 without CPAP, 4.6 with.
I have a deviated septum and sinus issues so I am a mouth breather
So, this is where things get interesting....Since the surgery time is getting closer and the surgeon wants me on therapy at least 3 weeks before the surgery, the sleep doc had me come in immediately to review the results and recommend the the therapy. I show up at the office and they tell me that I didn't have an appointment that day. The staff was nice enough but it took a few minutes to realize they had made a mistake in where they registered my appointment in their system. Their computer system was down and they had they did could not access my study. Instead of waiting for things to restore, they sent me home. Later in the day, they called and said due to the closeness to the surgery, they were not going to have me come back in. They would just go ahead and submit my prescription to a DME to cut down on the time to get going on therapy.
Four days go by and I hadn't heard from the DME co. So, I called them and they hadn't received the rx yet from the doc. I told the DME co that I was concerned because I had not had a conversation with the doc to discuss mask and machine options...or even know what they were ordering.
The DME co (AME) was very helpful. They also nagged the doc's office and got the rx in. They told me I had chosen a quatro FX mask when I had not made a decision on any mask. It turned out that the quatro fx was the mask they used in the study so they put it down as though I chose it. Fortunately, the rx said that patient was to receive mask of choice and the machine was to be autoset with humidifier.
Through a lot of research, I had settled in my mind that I wanted the ResMed S9. The DME said they did not carry the A10 and that I could have the S9. I got a call back from the late in the day before they were to come with everything and they said they got the A10 Autoset in...and did I want that instead. I said "sure"!
So, the tech that came was fine and she brought the AirFit full face mask. She said I could change the mask within 30 days if I wanted to so I went with that. I was told not to play with the settings unless the doc ok'd any changes.(I was thinking bwahhahaha...u just DON'T know me now do ya).
The machine was set to constant pressure of 10, ramp up of 15min starting at 4, ERP is on and at 3.
First night - AHI = 12.5, RERA=.07 (yes, this model checks RERA and it's not a for her model) Felt really good the next day and even skipped morning coffee. Lots of issues getting used to the mask. I know now I had it too night.
Second Night - AHI = 9.6 RERA=.01 0 Felt like crap the following day with huge brain fog. Decided I didn't like the ramp feature and after reading about ERP decided to turn it off the next night
Third Night - AHI=4.4 RERA=.06 no ramp or ERP. Felt great! Immediate results. Felt like running a marathon.
Fourth Night (which is last night)= AHI=8,4, RERA=4.2 ERP=1 - Feel like total crap today. One thing about last night...I started with CPAP before bed and felt like I would be going to the bathroom soon so I disconnected. Before I got up to go, I fell asleep. Didn't get the mask on until 3 hours later when I woke up to go. I think the high RERA result has to do with the mask being off for quite awhile.
My sleep doc's office is slow with responding to questions so here are a few ?s that I have.
1. Shouldn't I be getting better scores for AHI or does that take awhile.
2. I am going back to ERP to off tonight. Should I also try to put the machine on AUTO mode vs. constant?
I would appreciate any comments or suggestions based on this post.