Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

Having Centrals but not Diagnosed with Centrals, also having CSR's
#91
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
(08-10-2020, 12:15 AM)BB63 Wrote: I am curious though.....whether the cause of your issues is not treatable with a CPAP though? In other words, do you have other health related issues that could be at the root cause of your breathing anomalies during your sleep? 

I would argue that a question is like "what comes first, the chicken or the egg?"

Short answer; yes; that there are issues that affect my health - and therefore my sleep - but then that low quality sleep, then affects my day and the cycle of low quality sleep and health continues. But yes, I am a complicated case - the short list includes Fibromyalgia, Chronic widespread pain, PTSD / Depression / Anxiety & Gastro-oeophageal reflux and... no that is enough... except - I last had a CRP test on the 9/9/2019 and at that stage my CRP was 2.1 mol/L; that's close to the beginning of using CPAP so I haven't had it recently.

so that's a yes...

Eating: I know that eating keeps me awake, unless I want to stay awake I don't eat after 7pm, a few cups of tea (Lemon & Ginger usually) doesn't count imo

I'm am also pretty good with my Sleep Hygiene, however due to issues with insomnia, my sleep schedule is rotten and I don't think my body remembers what a Circadian Rhythm is anymore.

[attachment=25461]

(08-10-2020, 12:15 AM)BB63 Wrote: Stress/depression from life situations, family issues or other causes?

Family? 

Mum died in 2014 from Motor Neurone Disease, and Dad died 4 months later due to Heart Disease. so yeah no family.

I haven’t worked since then (2014) other than when I used to teach yoga but that stopped after dad passed (2015), I couldn’t be the motivational teacher that I believe a class deserves... I haven't "recovered".

So yes...

(08-10-2020, 12:15 AM)BB63 Wrote: Digestion issues, which might be caused by weak stomach acid-our stomach acid gets much weaker as we age. The signs are there if you recognize them. And, you can evaluate this condition at home without a doctor's input. BTW, avoid PPI's (Proton Pump Inhibitors) like the plague, unless you absolutely need them, ditto antiacids! They do far more harm than good!

I have a dietitian (I thought of that myself) and I don’t believe its that. I have GORD and they tried to put me on a PPI but I refused it, I have been through 2 gastroenterologists :

- 2016 Endoscopy, colonoscopy, HIDA scan, Celiac test, MRI, CT scans, blood tests… and other tests both blood and urine that I won’t bother listing, I was bleeding from the walls of my stomach and bowels but no other noticeable biological cause for my symptoms.
- 2017 Second gastroenterologist; Endoscopy, colonoscopy, blood tests, microbiome mapping, long story short, he wanted to do a poop transplant that would mean I would be out of pocket for $12K that "has no guarantee to resolve your issues" - so that never happened and he sent a letter to my GP saying he diagnosed me with IBS (I was originally diagnosed in 1998 with IBS after a endoscopy when I was in high school)
- 2018 Neurologist - who said it was all conversion disorder "“Hypochondria, psychosomatic illness [and] all-in-your-head"

So I still have pain in the upper right quadrant of my abdomen and there is no biological reasons currently found that explains it - at the moment they think its Fibromyalgia.

but... I guess that's a yes...

(08-10-2020, 12:15 AM)BB63 Wrote: When we go to a sleep clinic or to our General Practitioner, most (if not all) are not aware of the sleep cycle physics and it's importantance. In fact, I don't believe a Sleep Specialist (that does interpretations of sleep studies) take into account anything other than the data retrieved during the sleep study. I might be wrong-if so, please advise.

I agree with that statement, for my sleep doctor, if its not in the test it doesn't exist.


.
.
.

But none of that really explains the symptoms I have; Sleep Apnea covers a bunch, Fibromyalgia is just a catch all so... yeah there is nothing there as my GP said I am the most investigated person she knows.
#92
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
(08-10-2020, 01:34 AM)kappa Wrote:
(08-09-2020, 09:58 PM)Primalyogi Wrote:  I grabbed the F30 and quickly slid it on to ensure that I didn't wake my partner - for the rest of the night.

Definitely looks like way more variable breathing and CA's with the F30 compared to the Dreamwear Full Face mask.

F30 has 34 vent holes in the mask host connector, F30i has 25 vent holes in the cushion and an additional 14 at the top of the head (have both of these). Don't have one, but it looks as if the Dreamware has 17 in the cushion and 16 at the top. Assuming these are similar gauge (hard to tell) you would likely re-breathe more expired air with the Dreamware.

Thats what I was thinking; i'll pull out the Dreamwear Full Face for the night and see what happens. 

I have 2 examples of the F30 on 8-13 EPR 2 - so I will use the same settings with the Dreamwear full face tonight and see what the difference is.

[attachment=25463]

[attachment=25462]

[attachment=25464]
#93
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
I think both masks exhaust most if not all expired air. The Dreamwear has vent holes in the mask and connector so does not really act as EERS, but may have some residual expired air. This mask has been used in EERS by plugging the expiratory vents in the mask and connector and installing a Whisper swivel and a couple sections of Corr A Flex.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
#94
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
Being honest; I’m not handy or creative so, I’m going to struggle to make anything &
I’ve had the power go out and woke up struggling to breathe just in a normal mask (was probably an apnea that woke me), so there’s a part of me worried about doing something wrong blocking holes and stuff.

In the mean time, while I read and discuss it with my partner, I’ll keep playing with pressures and work on another lab study one day - & try the Dreamwear just in case.
#95
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
Update:

I have had a hiccup in my journey;

Sunday I realised I had a sore throat; I sent a photo to the ENT that did my Septoplasy & my GP; my GP got back to me Tuesday and said my throat looks infected & I was put on on antibiotics; today my ENT called and asked me to come in tomorrow - which has me concerned (hopefully unnecessarily), but apparently, a change in voice, one tonsil being twice the size of the other and my breathing being impact; is probably something to get it checked. I had to have a COVID-19 test first (which is not fun) but it was negative so, it’s not that (silver lining).

... but anyway, because it’s partially blocking my throat at the moment, I’ve just opened up the CPAPs range to allow for higher pressures than I’d like with my Centrals; but Last night I was getting several OSA’s on a pressure of 16 (set at 8-16 EPR 2).

Sleep study:

I received a call today to book a titration sleep study, that’s been put off until next week because of the COVID-19 test & whatever’s going on in my throat; I’m sure it’s just a throat infection and abscess, it’s never more sinister with me... *knock on wood*.

All going to plan, tomorrow, I’ll be back saying there is nothing wrong & that I’ll be back to my testing and trialing 6-9 EPR 2 on my F30 & Dreamwear & comparing the results as I’m still trying to find a place where CA=OSA by lowering the pressure.

On the topic of continuing CPAP vs stopping CPAP;

I had one night that pain kept me up, I ended up falling asleep on the couch - but without setting myself up in the correct position - I just fell asleep. What stood out to me is the stress it put on my heart compared to when I use the CPAP.

The night on the couch (5hrs), I had over 201 pulse change events (>5%); my pulse rate, for 1hr, was as high as it is now when I am sitting on the couch writing this post at ~82bpm (normally ~54bpm while asleep), that alone is a little disturbing...

In addition, add that to the fact that the heart rate fluctuations aligned with 22 oxygen drops of > 6% (average of 10% per drop) and a period of <90% desaturation that lasted for an hour (as mentioned above with my heart rate >80bpm).

It was a reminder how much the machine - even though it’s not perfect; helps my body achieve a better state of rest compared to when I sleep “naturally”. It was startling.
#96
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
Interesting... 6 hours of sleep using the dreamwear full face mask... started on my back and then woke up on my side, lowest score ever, fewest desaturations ever... fascinating considering how sore my throat is...

AHI of 1.95 
 
CAI = 1.63
OSA + HA = 0.32


Pulse rate was up by an average of 8bpm, but best O2 saturation results to date.

[attachment=25530]

I have a feeling a number of event weren't flagged nearing the end of the night when my saturation dropped a bit again, but anyway interesting result

[attachment=25532]

Subjectively; that wasn't a good night sleep, Fitbit gave me a 72 and 5hrs sleep ... I feel more like that...
#97
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
WOW, what a difference!!! Congrats.

I am curious if what your impression of your sleep was at the end of the day? I often get up and do ok for awhile, then drop like a rock in the early evening!

I notice most of your events were shortly after starting the recording, is it possible that you were awake until 2:15? I get similar clustering of events before I actually get to sleep and if I try to go back to sleep after waking, I seem to get many similar clusters of events. I'm not why I try to go back to sleep, it usually doesn't succeed!

It also looks like your pressure didn't ramp up as the night proceeded! The full face mask is a keeper.

GL

AB
#98
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
(08-12-2020, 06:20 PM)BB63 Wrote: WOW, what a difference!!! Congrats.

I am curious if what your impression of your sleep was at the end of the day? I often get up and do ok for awhile, then drop like a rock in the early evening!

I notice most of your events were shortly after starting the recording, is it possible that you were awake until 2:15? I get similar clustering of events before I actually get to sleep and if I try to go back to sleep after waking, I seem to get many similar clusters of events. I'm not why I try to go back to sleep, it usually doesn't succeed!

It also looks like your pressure didn't ramp up as the night proceeded! The full face mask is a keeper.

GL

AB

Short answer is that the numbers are good, but I’m already exhausted and it’s only 12pm  and yesterday I fell asleep on the couch in the afternoon. I’m only getting 5 & 5.7 hours sleep with the mask so getting use to it’s an issue.

The night before last; the same mask & settings my AHI was 4.93AHI (CI:3.9); again not to bad.

So, a couple of additional nights before I sing hallelujah.
#99
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
That's my problem too. My stats are very favorable (but vary some), but I still feel very much exhausted during the day.

My flow rate is very variable and it looks like there are hundreds of anomolies in the flow rate when I zoom in on it. And, the spacing (duration) of each intake/exhale cycle is very inconsistent, but no events are shown during these periods of variability.
I am suspecting arousals, which keeps me from getting into deep sleep. But, my cpap doesn't test for those. Oh-jeez

I hope you can improve as you adapt to the full face mask!

I'm curious, when you zoom in on your flow rate that doesn't include a bad event, does it show the same irregularity and inconsistency? Attached are a few examples from yesterday's sleep session.

GL.

AB


Attached Files
.pdf   argh.pdf (Size: 61.25 KB / Downloads: 4)
RE: Having Centrals but not Diagnosed with Centrals, also having CSR's
I can definitely find RERA’s in the wave form, as well as frequent breathing abnormalities. My partner also tells me about times she watches me wake up after a choking breath - but they aren’t recorded by Australia Airsense 10’s. I’ve been considering getting the Philips DreamStation out again to see the differences but historically I haven’t had a good result with the DreamStation; but I didn’t know about flex then so; who knows now.

I still have the chance of a new sleep study next week if I take it up, so that might be a way to have a professional go through the motions if I can get over being worried about the COVID treatment facility next door / let alone sleep in hospital; I’ve never been able to lol, I usually leave After surgury against medical advice. Anyway; something silly I have to work through.

Good luck with your search for answers


Possibly Related Threads...
Thread Author Replies Views Last Post
Smile Questions for newly diagnosed Schernenk 22 370 1 hour ago
Last Post: UnicornRider
  Just Diagnosed - Advice Required on What to Purchase Dazkd1969 0 59 Yesterday, 12:06 PM
Last Post: Dazkd1969
  ASV not catching onset / transitional centrals Boodmaster 14 387 03-26-2024, 05:30 PM
Last Post: SarcasticDave94
  Suddenly my Centrals got a lot more disruptive tcinoz 64 1,801 03-26-2024, 07:24 AM
Last Post: tcinoz
  Are these centrals likely to be treatment induced? thesingingchef 2 121 03-21-2024, 12:36 AM
Last Post: thesingingchef
  Diagnosed with SA 70AHI Newbie2024 16 386 03-19-2024, 09:12 AM
Last Post: Newbie2024
  Only CAs on Oscar but diagnosed with OSA - 2 months CPAP and no improvement 444zane3 4 292 03-07-2024, 02:06 AM
Last Post: Deborah K.


New Posts   Today's Posts


About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.