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Having a hard time
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jpr Offline

New Members

Posts: 3
Joined: Aug 2012

Machine: REMstar Pro C-Flex+
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: System One Heated
CPAP Pressure: 11
CPAP Software: Not using software SleepyHead

Other Comments:

Sex: Male
Location: NE Indiana

Post: #1
Having a hard time
A little background on my issues. I had a sleep test done on July 3 2011 and was diagnosed with OSA with an AHI of 29.1 and pressure of 11. The day after the sleep test I felt great, even with being woken up to have the mask put on. I was prescribed a machine and mask and had the lady from a local hme give me the run down.

My first mask was a full and I just couldn't get the hang of it. They changed me to a Swift LT nasal pillow. I started using it and was doing ok but still not sleeping through the night and still not feeling rested. I called the hme to see if I could try a different mask and found out they were out of business and I was being serviced by Lincare. Could get nothing out of them. It was so bad I told them to come and get the machine. They wouldn't do that so I basically just stopped using it after about 6 months of getting no relief. I didn't know about this forum then.

I purchased a mouthpiece and it seemed to work. At least it stopped my snoring so my wife could get some rest. But now it doesn't seem to be helping and I am walking around in a fog.

Last night I decided to try the swift LT again. Now we get to the real problem. I put the mask on for about half an hour to get used to it. I was starting to doze off but would arouse with the feeling I couldn't breath. I did finally fall asleep but woke up with the same feeling about an hour later, feeling like I couldn't breath. This was the issue before when I gave up the machine. After these episodes I usually just turn the machine off for the night.

Sorry for the long post but any suggestions would be appreciated so I can start to feel better. I do have sleepyhead downloaded but don't have any data to enter yet.
12-12-2014 01:15 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #2
RE: Having a hard time
Even if you haven't been able to sleep with the mask yet you do have some results that could help. Give them to Sleepyhead and verify what your pressure readings are actually doing. Your sidebar says 11, which is certainly high enough that you shouldn't be having a problem feeling like you can't breath, so perhaps something else is going on. In Sleepyhead you will see if you have had any events during that "twilight" time when you think you're going to sleep but you end up waking back up thinking you can't breath. It could be you are not breathing, which could be caused by excessive CA events.

But the name of the game is you need some stats.

So............... Use the machine, make sure it's running at your prescribed pressure, make sure you are not sleeping on your back, and feed the results to Sleepyhead so you can begin to find out what's going on.

Finally, the one thing I absolutely know that will not cure sleep apnea is to quit using the machine. So make up your mind to not entertain that as an option. You can figure this thing out even if it takes different masks, a different machine or whatever.
12-12-2014 05:49 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,820
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #3
RE: Having a hard time
I am new to cpap and while some of these guys think 11 isn't much, when my out pressure gets up there (would be 13 for me since I am using an epr of 2) I feel like I can't breath OUT. This makes me feel like I can't breathe. Now, my sleep doc (who is himself a hosehead) said not to be so fast to think it is the pressure too high, but maybe not high enough to keep you breathing, so bear that in mind, but I am fairly certain it is the sensation of breathing against that 11 and I am just not accustomed to it. Could be that you would do much better on an APAP with some EPR.
12-12-2014 06:00 PM
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DeepBreathing Offline
Wiki Editor
Moderators

Posts: 2,295
Joined: Sep 2013

Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Perth, Western Australia

Post: #4
RE: Having a hard time
Hi JPR, welcome to the forum.

I think Daria is on the money. It's a sensation I describe as drowning in air. There's plenty coming in, but you can't exhale. You might find EPR or Flex will help - it lowers the pressure a few points during exhalation and overcomes that feeling that you can't breathe.

Have a look at the clinicians manual to see how to set it for your machine. There's a link for CPAP setup manuals at the top of each page in this forum. There are dozens of different manuals available, so Just make sure you follow the instructions to get the right one.

I second what Retired Guy said - download and install SleepyHead to give you a highly detailed look at what's happening with your breathing. There's a link at the top of the page.

Nobody ever said CPAP therapy was easy - it takes some work to get it right but the results are worthwhile. And it's the only guaranteed treatment for sleep apnea.

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-12-2014 07:45 PM
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jpr Offline

New Members

Posts: 3
Joined: Aug 2012

Machine: REMstar Pro C-Flex+
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: System One Heated
CPAP Pressure: 11
CPAP Software: Not using software SleepyHead

Other Comments:

Sex: Male
Location: NE Indiana

Post: #5
RE: Having a hard time
Thanks for the replies. I am thinking the biggest issue maybe sleeping on my back. I will continue on but go to my side tonight and see how it goes.
12-12-2014 07:59 PM
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gondolabob Offline

Members

Posts: 15
Joined: Dec 2014

Machine: Respirionics System One Auto CPAP With Humidifier
Mask Type: Full face mask
Mask Make & Model: Resmed Quatro
Humidifier: Respitionics System One
CPAP Pressure: 8 to 20 Auto
CPAP Software: Other Software

Other Comments: Started Therapy November 2007

Sex: Male
Location:

Post: #6
RE: Having a hard time
I thought a CFLEX would reduce the exhale pressure but evidently not. You would be amazed how much difference that makes. Here's another idea for what it's worth. Lower your pressure to where you are comfortable and then gradually increase it.

When I had a constant pressure machine that worked for me.
12-13-2014 06:09 PM
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Ghost1958 Offline

Advisory Members

Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #7
RE: Having a hard time
Cflex on it max setting will decrease the pressure by 3 cm. However unlike Aflex it doenst smooth the transition from drop in pressure rise pressure. Nor does it drop the pressure of slightly nearing the end of inhaltion as Aflex does.

Tried my wife on Cflex but the constant pressure all the way up on inhale made her feel like the machine was making her take a deeper breath than she intended.

On the flip side of that Aflex set for to much relief made her feel as if she had to pull the last part of her inhale thru the machine.

Theres a sweet spot with either Flex type for most folks and some like none at all.
12-13-2014 09:27 PM
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vsheline Online

Advisory Members

Posts: 1,907
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #8
RE: Having a hard time
(12-12-2014 07:59 PM)jpr Wrote:  Thanks for the replies. I am thinking the biggest issue maybe sleeping on my back. I will continue on but go to my side tonight and see how it goes.

(12-31-2014 03:40 PM)jpr Wrote:  My sleep study was the on the night of July 3/4th. They woke me up about 6 am and I felt great and haven't felt that good since.

Hi jpr,

You have a fully data-capable CPAP machine. If we look at the data together we may be able see what's going on, so you and your doctor can make small adjustments weekly or monthly, to optimize the settings.

Perhaps it would help to post some screenshots/data from Sleepyhead, so we can better see what may be happening.

At the very top of the forum, in the (extra) Important Threads section, the first one is the thread for discussion of SleepyHead. If you have any questions about how to install and use SH, that would be a good thread to post questions in.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
01-01-2015 12:49 AM
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Mr. Van Winkle Offline

Advisory Members

Posts: 257
Joined: Nov 2014

Machine: Resmed Airsense 10 Autoset
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: Airsense
CPAP Pressure: 9 -15
CPAP Software: ResScan SleepyHead Other Software

Other Comments:

Sex: Male
Location: Minnesota

Post: #9
RE: Having a hard time
jpr, You describe the same issue I went through when I started therapy, Now everyone handles things differently for sure , but for me it was the EPR setting on my machine, it was set on 2 and when I changed it to a 3 I could sleep through the night, I also went a step further and changed my mask. the main thing is to keep with it, make some changes and give it time, I still have up's and downs mainly for me it's getting used to the equipment, but on a rough night I still feel better in the morning.

Mr. Van Winkle
01-01-2015 12:21 PM
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