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Headaches when using CPaP
#1
I have an automatically adjusting Fisher & Paykel Icon Auto. I visited my sleep clinic yesterday because of frequent headaches during the night while using the machine. The appointment was completely botched up and I didn't see the right doctor, so have left the clinic annoyed and dissatisfied and having to have my GP help with the problem now.

I do get migraine type headache if I do NOT USE the machine, but it's very debilitating waking with the headache as a direct consequence of using the machine. That happened again last night; I felt the headache around my nose and sinus area and had to turn it straight off. Nobody seems to be able to help; they keep passing me from pilar to post. The headaches last all day and my quality of life is reducing, with at least 2 episodes of this a week. I've been using a CPap since March, 2008, and I'm over 60.

Help!
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#2
How about writing a letter to the attention of the doctor you wanted, detailing what, when, where, how long, and how often you are having the problem, what makes it better and what makes it worse.

And maybe seeing a headache specialist/neurologist would be more useful than seeing a sleep doc? You could be having a specific type of headache that presents at night and you are attributing it to the CPAP. It might be something else.
                                                                                                                                                                                  
Please organize your SleeyHead screenshots like this.
I'm an epidemiologist, not a medical provider. 
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#3
Given the location of the headache, it might be the result of too much or too little humidity. An ENT doctor might be another good source of help.
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#4
Thank you; that's what I was thinking. The headaches are definitely caused BY the machine. I recently had an MRI following hospitalization with extreme vertigo and all was OK, so there's no other source of the problem.

Meanwhile, my GP will be very annoyed by the specialist doctor's surgery and its very bad mistake in referring me to the wrong doctor in the practice. At least they didn't charge me. The doctor I saw was a Thoracic specialist!!! What the? The referral was faxed across before the appointment was even made (they phoned me), with the right doctor's name on it - and they still couldn't get it right.

Meantime, I won't used the machine very much until I get to the bottom of the headaches (which last all day until about 3pm).
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#5
Hi Sleeping Beauty,
WELCOME! to the forum.!
I hope you can get your headaches and sleep problems straightened out.
Hang in there for more responses to your post.
trish6hundred
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#6
I don't know how to do it on your machine, but it is probably worth turning the humidity up a setting for a night and see what difference that makes. Then try a night with it a setting lower. If it is humidity related, that should show in which direction to go.
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#7
It's probably too much humidity.
I normally run alot of humidity now after my second polyp surgery as some bone was removed and my left sinus is pretty wide open now.
But before if it was too high it could give me those sort of headaches your describing.
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#8
Many thanks!!

And to the other two people for their advice, thanks also.

I'm not sure how to adjust the humidity; there's a temperature thingy for the air temperature and another for the tubing. I might ring the retailer on Monday and see what they say.

I've got fairly warm air coming at the moment and I have noticed in the past that when it's too cold I get the headaches!!
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#9
Sleeping Beauty,
You can order the Clinicians manual for your machine, which should help.
http://www.apneaboard.com/adjust-cpap-pr...tup-manual
OpalRose
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#10
(12-16-2016, 09:03 PM)Sleeping Beauty Wrote: ...I recently had an MRI following hospitalization with extreme vertigo and all was OK, ...

Just a note: extreme vertigo can be due to a vestibular migraine. An MRI will look fine.

Been there, have that. Now on a preventative Rx.

                                                                                                                                                                                  
Please organize your SleeyHead screenshots like this.
I'm an epidemiologist, not a medical provider. 
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