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Hello! New Member, Just Woke Up!!!
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scotty Offline

Members

Posts: 6
Joined: Oct 2016

Machine: Philips Dreamstation CPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit 10
Humidifier: Dreamstation Auto
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: Had to purchase own machine, still waiting on insurance

Sex: Male
Location: SE Idaho, at 4970 ft elevation

Post: #1
Hello! New Member, Just Woke Up!!!
Hi Guys,
New member here. Glad to find such a helpful place.
A little background. I am a 65 yo retired Pharmacist who suffered from severe sleepiness, mountain dew addiction, anxiety and depression for atleast 50 years....
I was too busy to learn about sleep apnea, thinking all my problems were "I must be real lazy dude". No MD or other provider suggested a sleep problem untill just recently.

Now I have focused my internet studies on Sleep apnea, between naps, and I have become obsessed with getting this situation worked on.

I have started an at home titration study on Oct 7 2016, using a loaner, Respironics System 1/ 160 which was provided for free by the Sleep MD's office.

I was starting to feel much better with more energy and focus.

Then it happened.... They took back to nice auto adjustable cpap and said I get my own machine.. I was delighted to finally get started on my own machine when I realized they were giving me the Dreamstation CPap "Brick" dumdum machine.

I used the brick last night, with a fixed rate of 12 cm and had a horrible night, couldn't keep either of my masks from leaking until I cranked down the straps so tight on the Dreamwear nasal I was having bad pain on my nasal septum??. the other device I tried was a Resmed Airfit F10 which i had previously purchased, having tried one during my titration loaner period. The new F10 was very difficult to get a good seal at 12cm and I cranked to straps so tight my neck hurt real bad.

I finally came here to read and research.

I did not like or want the brick Dreamstation CPAP with no auto.

The MD's office said that they will not provide a Dreamwear Auto or Pro, as was suggested as good machines in the your cpap wiki. The Sleep MD staff said They will give me a prescription for CPAP and I could shop around if I didn't like their offer.

They did say I could return the brick machine and not be charged for it.

I have Medicare with an Aetna Senior supplement, Plan G and was hoping to have a better machine covered.

Have any of you with medicare been able to get approval for an Auto CPAP for your first machine???

Will the DME providers try and bill for a better machine for me?

I can survive without the CPAP indefinately, since it is time for my winter nap!!! anyway.

Thank you in advance for any tips you may share on how to get a better machine covered.

Inhome test details follow:


I completed an inhome sleep study on 9/21/16 with scores of:
Total record time: 487 min
OA: 11
Mixed ap: 5
Central ap: 77
Hypop: 41
AHI: 17.1/hr
Mean heart rate: 63.5
avg O2 sat: 91%
Diagnosis: Moderate Central Sleep Apnea

Scotty
10-18-2016 03:52 PM
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Rcgop Offline

Advisory Members

Posts: 213
Joined: May 2016

Machine: Resmed AirSense 10 autoset
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: installed
CPAP Pressure: 6.0 - 10.0 / EPR 2
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Orlando Fl

Post: #2
RE: Hello! New Member, Just Woke Up!!!
I was lucky. I knew nothing when I started. I did not choose my PAP but I got the Resmed S10 auto set and Medicare pays 80%. My DME has the worst national reputation but locally, I have had nothing but good service. Like I said I was lucky. Don't accept anything but what you want. It is hard enough to get these things to work and you will fall madly in love with it so you should get something you like.

HuhDont-knowI am an accountant so any advice given here is not medical. If I give any financial advice, you can take it to the bank. However, you will have a hard time cashing it in. Okay
10-18-2016 05:46 PM
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justMongo Offline

Monitors

Posts: 3,851
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #3
RE: Hello! New Member, Just Woke Up!!!
They've given you an improper machine for your diagnosis. Central Apnea should be treated with an ASV machine.

Now, Medicare may require you to fail on CPAP (meet compliance, but not reach AHI goal) before approving a different machine.


BTW: Welcome

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(This post was last modified: 10-18-2016 06:12 PM by justMongo.)
10-18-2016 06:10 PM
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trish6hundred Offline

Advisory Members

Posts: 6,446
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: Hello! New Member, Just Woke Up!!!
Hi scotty,
WELCOME! to the forum.!
I wish you good luck as you start your CPAP journey.
Hang in there for more responses to your post.

trish6hundred
10-18-2016 06:39 PM
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scotty Offline

Members

Posts: 6
Joined: Oct 2016

Machine: Philips Dreamstation CPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit 10
Humidifier: Dreamstation Auto
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: Had to purchase own machine, still waiting on insurance

Sex: Male
Location: SE Idaho, at 4970 ft elevation

Post: #5
RE: Hello! New Member, Just Woke Up!!!
Thanks for your replies.
the machine they sent me home with isn't even listed for sale anywhere!
DreamStation DSX 200H11.

I fear this machine does not record any sleep statistics, only compliance.
Does that sound right? The manual says only the Pro and the Auto Modles record AHI, PB, and ???

How can they make any adjustments if there is no cpap sleep cycle data??? How can I prove I need to move to a better machine?

Scotty
10-18-2016 06:49 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,350
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #6
RE: Hello! New Member, Just Woke Up!!!
Scotty, unfortunately, the DSX200X11 is the bottom of the line fixed CPAP with no efficacy data. If at all possible, return the machine and ask for the Auto or Pro CPAP. The price of each of these is not much different, but the features and data are very different. You may need to ask your doctor to prescribe AUTO cpap to get what you want. Auto CPAP will track your success or problems, and changes pressure automatically to match your changing needs due to sleep stage, position or health. You deserve a better machine, and should not have to accept this to pad the profit of your supplier. Without data, if you have problems, you will need another expensive sleep study to troubleshoot what the auto CPAP can fix or report for free.

Talk to your doctor, and get the change. You could use a pressure of 10-14 and get much better treatment than a fixed pressure of 12 with no feedback. Lack of feedback and motivation is the biggest cause for failure in sticking with this therapy. Get it for the data. You will fail at any CPAP machine due to your complex apnea. You need the data to prove it is a failure and move toward what you really need, which is ASV.

It is possible you were given this piece of crap machine because they know you will fail on it. Don't wait to complain. You are having central apnea and are not treated on that machine. You should have been titrated for ASV from the beginning.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
(This post was last modified: 10-19-2016 09:44 AM by Sleeprider.)
10-18-2016 07:42 PM
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Ockrocket Offline

Advisory Members

Posts: 164
Joined: Jul 2016

Machine: Philips Dreamstation.
Mask Type: Nasal mask
Mask Make & Model: F&P Eson.
Humidifier: Philips Dreamstation.
CPAP Pressure: 7.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Windsor (near enough) NSW, Au.

Post: #7
RE: Hello! New Member, Just Woke Up!!!
Welcome Rip Van Winkle... glad you just woke up. Congrats

Welcome


Now, go back to sleep. Sleep-well

Cheers,
Steve Coffee
10-18-2016 11:43 PM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #8
RE: Hello! New Member, Just Woke Up!!!
Welcome to the forum scotty! Glad to hear you have educated yourself about the machines and their differences. If your sleep doc will write a script for an auto machine, even if all you need is a fixed pressure, go for the auto as it can also run in fixed mode. Good luck choosing your new machine and keep us posted!

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

-------------------------------------------------------------------------------------------------
EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
10-19-2016 06:29 AM
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richb Offline

Advisory Members

Posts: 532
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #9
RE: Hello! New Member, Just Woke Up!!!
Hi Scotty. Welcome to the Apnea Board. JustMongo and Sleeprider are sending you in the right direction. " return the machine and ask for the Auto or Pro CPAP", " You may need to ask your doctor to prescribe AUTO cpap to get what you want", "They've given you an improper machine for your diagnosis. Central Apnea should be treated with an ASV machine. Now, Medicare may require you to fail on CPAP (meet compliance, but not reach AHI goal) before approving a different machine". You are going to have to jump through some hoops to get the proper treatment for your diagnosis. The proper machine (ASV) will usually only become available when you fail using the best that Auto adjusting cpap machines can do. Get a proper prescription and find a new DME that you can work with. Talk with the DME about your diagnosis (Diagnosis: Moderate Central Sleep Apnea). Make sure that the DME understands the Medicare protocol for getting an ASV machine. By the way an ASV machine will also easily treat the Obstrutive Apneas that you have mixed in with your Centrals. On the other hand a standard CPAP madhine will usually make the Centrals much worse. Oh, and this one is most important. Find a new Sleep Doc. You may have to travel. I finally went to my University Medical Center to find a sleep Doc that understood Central Apnea. Finally, post your results once you get on a data capable machine. Good luck.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
10-19-2016 07:15 AM
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