Post Reply 
Help, DME is asking why I enabled Auto when I was prescribed a set pressure
Author Message
OpalRose Offline

Monitors

Posts: 3,167
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #21
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
cotrik2001,
My advice is to talk to your doctor, and get his blessing on perscription changes, and then tell DME what you are doing. Play their game until compliance period is up.

OpalRose
05-07-2016 08:49 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Mosquitobait Offline

Advisory Members

Posts: 746
Joined: Apr 2015

Machine: Resmed AirSense 10 For Her
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: integrated, Climate line tube
CPAP Pressure: 9-12
CPAP Software: ResScan SleepyHead

Other Comments: RLS and Bradycardia

Sex: Female
Location: Minneapolis

Post: #22
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
Change it to what you want it at. If the DME calls, tell them that it is not an accidental change. Remind her that while SHE is required to have a doctor's order to change pressures, you are not under such a requirement. Finally, just say that if your 'fiddling' doesn't substantially improve your situation, you will contact your doctor for recommendations.

My PA (and doctor) were fine with my making my own changes. They just wanted to be notified if I had to up it beyond 12.
(This post was last modified: 05-07-2016 09:49 AM by Mosquitobait.)
05-07-2016 09:48 AM
Find all posts by this user Post Reply Quote this message in a reply
drgrimes Offline

Preferred Members-2

Posts: 235
Joined: Sep 2013

Machine: S9 Resmed Autoset
Mask Type: Nasal pillows
Mask Make & Model: Philips Dreamwear
Humidifier: resmed
CPAP Pressure: 5-15
CPAP Software: ResScan

Other Comments:

Sex: Male
Location: Texas

Post: #23
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
You know it's really nice when the sleep doctor actually cares enough to get involved. I get the impression that many on this forum feel as i do, in that there is little help from the doctor. I have said this before but i have never met my sleep doctor. His name is on my RX and i was assured that he thoroughly analyzed my data before making the RX. I have only been able to talk to the technicians. Funny, but the last one, was petite, very attractive, and i caught myself thinking, "you don't even know what it's like to do cpap". Then i thought she probably worked at Jenny Craig previously and couldn't figure out why people are fat. I know, i'm drifting, but that's what we do when oxygen deprived. Not really.

By the way i had to beg by sleep doctor (technician) to give me an RX for variable pressure. Only when i mentioned the feeling of suffocating did i get any reaction. Probably just to shut me up. Well......it worked.
05-07-2016 02:19 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
GP49 Offline

Preferred Members

Posts: 33
Joined: Apr 2015

Machine: ResMed S9 Adapt
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H51
CPAP Pressure: 8-20
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: USA

Post: #24
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
(05-05-2016 06:30 PM)OMyMyOHellYes Wrote:  Just tell them it is a sexual thing. Say nothing else...

I actually did that once with TSA airport security in Washington DC. I had a big handcuff key on my key ring that the TSA drone took an interest in. He asked what it was. I told him. He scuttled off to consult with another drone. The two of them called over a supervisor and consulted. I was getting pissed. Supervisor came over and asked what it was. I confirmed what it was. He then wanted to know why I needed it, what it was for, why I wanted to take it on the airplane, etc. Rather than school him on the legality of carrying keys or even cuffs onboard, I just stood straight up and in a loud tone, but short of shouting, I said "IT IS A HANDCUFF KEY. I CARRY IT BECAUSE I MAY NEED IT. IT IS A SEXUAL THING!" He dropped my keyring and I made my flight.


LOVED IT!

Just this one post made it worth reading up on the forum tonight! Laugh-a-lot
05-08-2016 11:52 PM
Find all posts by this user Post Reply Quote this message in a reply
SideSleeper Offline

Advisory Members

Posts: 226
Joined: Oct 2015

Machine: PR DS560HS REMstar Auto-A Flex+ +
Mask Type: Nasal mask
Mask Make & Model: Wisp & Dreamwear
Humidifier: Respironics System One
CPAP Pressure: APAP 11-11
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Western Oregon, USA

Post: #25
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
I guess I lucked out--a sleep doctor (Internal Medicine) and DME that I can work with. I see my DME every three months (Medicare) and on last visit he asked if my doctor knew I was changing my settings. I told him his assistant did the first change on doctor's OK--CPAP 11 to APAP 10-14. I made several small adjustments--never over 14--no lower than 9. DME was concerned I didn't get too wild with my changes--which I haven't--and was supportive. According to SH 95% (or is it 90% on PR machines?) 11 was pretty close to good. I ran it 10-12 for awhile. Didn't see a lot of difference--AHI usually under 3 at most settings. Had to consider I changed masks from DreamWear back to Wisp, used a chin strap with Wisp, had knee replacement surgery and then had to deal with pain killers (not strong ones) and sleeping on my back. Pretty much maintained a 3 or a little lower. Went back to 11-11 APAP to get all the SH info before seeing my sleep doctor for a re-cert for my drivers license. I told him about SH and it was obvious I had been playing around for many months--he seemed impressed. I'm a pretty happy camper with both doc and DME!
05-08-2016 11:57 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #26
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
(05-08-2016 11:52 PM)GP49 Wrote:  
(05-05-2016 06:30 PM)OMyMyOHellYes Wrote:  Just tell them it is a sexual thing. Say nothing else...

I actually did that once with TSA airport security in Washington DC. I had a big handcuff key on my key ring that the TSA drone took an interest in. He asked what it was. I told him. He scuttled off to consult with another drone. The two of them called over a supervisor and consulted. I was getting pissed. Supervisor came over and asked what it was. I confirmed what it was. He then wanted to know why I needed it, what it was for, why I wanted to take it on the airplane, etc. Rather than school him on the legality of carrying keys or even cuffs onboard, I just stood straight up and in a loud tone, but short of shouting, I said "IT IS A HANDCUFF KEY. I CARRY IT BECAUSE I MAY NEED IT. IT IS A SEXUAL THING!" He dropped my keyring and I made my flight.

You're all lucky.
I have to wear the mask then have my Teddy bear and a Rainbow Dash plush toy under each arm to be able to sleep properly!

Haahaahaa!

Big Grin
LOVED IT!

Just this one post made it worth reading up on the forum tonight! Laugh-a-lot

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
05-09-2016 02:33 PM
Find all posts by this user Post Reply Quote this message in a reply
PsychoMike Offline

Advisory Members

Posts: 551
Joined: Aug 2013

Machine: ResMed S9 AutoSet
Mask Type: Other
Mask Make & Model: Varies with mood, ResMed F10 is my primary
Humidifier: ResMed H5i
CPAP Pressure: 12-17
CPAP Software: SleepyHead

Other Comments: asthma, cyclist upgraditis, just a little crazy (honest :D )

Sex: Male
Location: Alberta, Canada

Post: #27
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
Although a sleep doctor's blessing would be nice to shut the DME's sleep / respiratory therapist up, and any MD trumps them...so even if you have a good relationship with your GP and discuss it with them (who may have a better head in his/her shoulders than the DME and sleep doc) that may be all you need.

Personally, my former DME's RT thought anything 5 or less was perfect. Well, I have UARS (basically my body reacts faster to the stoppages in breathing....still wakes me up, but doesn't score apnea events...my at home test only had an AHI of 6, but an RDI of 50+, so sleep interruptions were a factor of 9-10x the AHI) and the RT's "Oh, it's under 5, you're fine" meant I was still having 40+ sleep disruptions an hour....under her "okie dokie" view, I was not getting any better.

I talked a bit to my GP and brought in a Sleepyhead plot. We discussed it a bit and a methodology to revise my settings (i.e. go to the 95% pressure number +/- a little and try it for 1-2 weeks, see what it did to the AHI and 95% number again, making small changes along the way). She was game and I got down to an AHI of <0.2...with the right mask, I managed to get an average AHI ~0.05 (which is absolutely ***** fantastic and I know that I'm one heck of a lucky guy to get there).

I was prepared for a fight with the DME and RT, but they didn't give a rat's rear end....they thought *they* were doing so good when, in fact, they hadn't done anything. In my mind, it was just one more example of how the DME sees you as a profit, rather than a patient.

My new DME and RT are much better....I told him when I first met him that I would either be his best patient or his worst (i.e. well informed, knows what is working or isn't, able to actively participate in my treatment vs. know when it isn't working / something is wrong and won't settle for less than optimum or put up with BS). Finding the right DME and learning for myself more about my condition and how to get the optimum treatment has made a huge difference. Don't give up on this one....it's your health and your body, you have every right to getting the most out of your treatment so don't settle for someone else's "good enough."
05-12-2016 11:32 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
justMongo Offline

Monitors

Posts: 3,844
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #28
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
redacted
(This post was last modified: 05-12-2016 11:52 AM by justMongo.)
05-12-2016 11:51 AM
Find all posts by this user Post Reply Quote this message in a reply
Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #29
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
Indeed. The DME does not have the training, experience or license to prescribe *anything* or offer advice. Yes it's ok to tell them to jam it. I have before
and have taken my business elsewhere. They can't make any money by over charging my insurance company and then try to make me feel like I'm wasting THEIR time.
A good DME will instead be offering you lavish customer service since they ARE in essence leeching off your stream of cash so I
remind them of it if need be.
(I didn't get this grouchy by myself, The last DME helped a lot!)

Smile

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
05-12-2016 02:59 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
FrankNichols Offline

Advisory Members

Posts: 714
Joined: Mar 2016

Machine: AirSense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed F10 and/or P10
Humidifier: Builtin
CPAP Pressure: 17-19
CPAP Software: ResScan SleepyHead Other Software

Other Comments: I've figured out how to get my AHI down to 5, I quit sleeping!

Sex: Male
Location: Live Oak, Florida

Post: #30
RE: Help, DME is asking why I enabled Auto when I was prescribed a set pressure
(05-12-2016 11:51 AM)justMongo Wrote:  redacted

I didn't see where you had dacted in the first place? Big Grin

I am not a Medical professional and I don't play one on the internet.
Started CPAP Therapy April 5, 2016
I'd Rather Be Sleeping
05-12-2016 03:09 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  ResMed Airsense 10 Auto Set...Runaway Pressure Abnormal86 14 527 11-22-2016 11:39 PM
Last Post: sonicboom
  Which disturbs sleep most? High Pressure or Changing Pressure Rcgop 7 1,249 11-10-2016 07:37 PM
Last Post: Sleep2Snore
  [CPAP] AirSense 10 Auto Set Pressure duffer54 5 305 11-03-2016 09:06 PM
Last Post: duffer54
Question [Pressure] Dream Station Auto Bi pap configuration of pressure support function dangood_47 6 471 10-27-2016 04:37 PM
Last Post: OpalRose
  airsense10 auto cpap(for him) VS DreamStation Auto CPAP DSX500T11 w/HT humid rookiepom 5 851 10-09-2016 07:52 AM
Last Post: stephennic
  Auto-Trial –delivers CPAP therapy adjusting pressure 30days ICEMAN 8 1,230 09-24-2016 12:34 PM
Last Post: green wings
  Low pressure auto button off question Lanco 1 228 09-21-2016 04:42 AM
Last Post: Lanco

Forum Jump:

Who's Online (Complete List)