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Help Needed [am I doomed?]
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jennie54 Offline

Members

Posts: 8
Joined: May 2015

Machine: Philips Respironics System One
Mask Type: Full face mask
Mask Make & Model: Philips Respironics
Humidifier: REMstar Pro DOM System One
CPAP Pressure: 12
CPAP Software: ResScan

Other Comments: Other conditions include nasal allergies, acid reflux, mitral valve prolapse and overweight

Sex: Female
Location: Louisville, KY

Post: #1
Help Needed [am I doomed?]
My pressure setting was just upped to 13. It started out at 9, then upped to 10, 11 and 12 over the course of 6 years that I've been using CPAP therapy. Before CPAP my AHI was about 20 events per hour, now I still have 8-9 AHI's per hour. I would think that after all these 6 years using CPAP nightly that my AHI's would have improved significantly. I also use the Fisher & Paykel Simplus full face mask and I seem to be up half the night adjusting it as I move around continuously during the night. I probably get only 2-3 actual hours of sleep at night even though I may be in bed 7 hours! Never have any quality sleep and unlike you am still very tired during the day with little energy. Everyone I know that has sleep apnea and using CPAP have raved about what a difference it's made in that they feel so refreshed and rested during the day now and don't feel like they need a daytime nap. I get so tired during the day that when I'm driving I close my eyes and rest every time I'm at a traffic light just to get a few seconds of rest. My insurance company rarely pays for new equipment for me but I'd like to be able to have a machine like you have that adjusts the pressure automatically when you sleep. I have a very difficult time breathing out (exhaling) against the air and that also keeps me awake a good part of the night. Am I doomed or do you think I should just continue to fight through the discomfort I have with my mask and my extreme lack of sleep???
10-11-2016 05:44 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,991
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #2
RE: [split] Help Needed
(10-11-2016 05:44 PM)jennie54 Wrote:  Am I doomed or do you think I should just continue to fight through the discomfort I have with my mask and my extreme lack of sleep???

I think that you could be doomed if you give up!

There are some things you can do.

1. Software. Sleepyhead is good, especially for your machine. Your profile says you're using ResScan, but that can't work with your PRS1 machine. Software will help you determine whether pressure increases really were the right thing to do, and help you get your AHI lower. It will also let you know just how bad the leaks are.

2. Better-fitting mask. Work with your equipment provider to get a better fitting mask. Why are you wearing a full face mask instead of nasal pillows?

3. Craigslist. Keep your eye out for a better machine. An auto-adjusting bi-level machine will help you exhale against the pressure.

(Note that I moved your post to a new thread to help others see it.)

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-11-2016 07:05 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,333
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #3
RE: [split] Help Needed
I recently saw new Philips Dreamstation machines for $427 and new Resmed Airsense 10 Autoset for $650 on Amazon. Good deals are also available from Supplier #2. If your insurance is high deductible or you can't get something from them, have your prescription in hand and save for a better machine.

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10-12-2016 12:44 PM
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PaytonA Offline
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Monitors

Posts: 3,005
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #4
Help Needed [am I doomed?]
Jennie54,

I had the same problems with having to readjust the Simplus mask through the night. I found a simple fix for me. After I have the mask adjusted properly and with the machine on, I gently pull the mask away from my face slightly so air is escaping from all around the perifery of the mask. Then let the mask back down onto my face. This ensures that all of the cushions get inflated and will be effective.

Another thing to pay attention to is the tightness of the upper straps. Most people get the best results with the forehead stabilizer not quite in contact with their forehead. This depends on how much drop there is from your forehead to your nasal bridge. You want it so that the roll-seal at your nasal bridge is about in the middle of its travel so that it has the best chance of doing its job.

I hope some of this might help you. I know it helped me.

Best Regards,

PaytonA
10-13-2016 04:04 PM
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