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Help needed with VPAP III ST-A treating Central Sleep Apnea
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DariaVader Offline
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Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #11
RE: Help needed with VPAP III ST-A treating Central Sleep Apnea
Not sure about Canada's programs, but the ASAA does *not* deal with ASV machines. Won't accept donation of one, anyways...

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
02-09-2016 02:59 PM
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Mike.Somerville Offline

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Posts: 5
Joined: Feb 2016

Machine: Resmed VPAP III ST-A
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: unsure
CPAP Pressure: 4-13
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Mississauga

Post: #12
RE: Help needed with VPAP III ST-A treating Central Sleep Apnea
Thanks for the comments, this has been an interesting week.

I found out a few things this week.

1) No place has been able to pull the data off my VPAP III, even the places the 'Ventilator Equipment Pool' told me would be able to do it. In fact they have never seen or heard of this model before. And the ResScan software has no option to access data through a serial com port as previous version have.

2) Ontario's Assistive Devices Program explicitly excludes ASV, so the Ventilator Equipment Pool will never issue them.

3) My new employer's insurance will actually cover 100% everything I need, even a $5000 machine. All they need is a prescription

4) After playing phone tag with a 3rd party my doctor's message was
- As of last July I was not compliant with using the Bilevel machine
- Use it consistently then call back for an appointment.
- The sleep study suggested BiLevel was effective
- I can't have an ASV

5) My doctor knew I was moving away when I last saw her and requested that I send the data for her to analyze. But I cannot access the data. I told them I can't take a whole day to drive halfway across the province and back again for a 10 minute appointment, especially if the machine provides no information.

Pretty pissed. I have no way of knowing if the treatment is working
02-12-2016 02:16 PM
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richb Online

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Posts: 537
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #13
RE: Help needed with VPAP III ST-A treating Central Sleep Apnea
(02-12-2016 02:16 PM)Mike.Somerville Wrote:  Thanks for the comments, this has been an interesting week.

I found out a few things this week.

1) No place has been able to pull the data off my VPAP III, even the places the 'Ventilator Equipment Pool' told me would be able to do it. In fact they have never seen or heard of this model before. And the ResScan software has no option to access data through a serial com port as previous version have.

2) Ontario's Assistive Devices Program explicitly excludes ASV, so the Ventilator Equipment Pool will never issue them.

3) My new employer's insurance will actually cover 100% everything I need, even a $5000 machine. All they need is a prescription

4) After playing phone tag with a 3rd party my doctor's message was
- As of last July I was not compliant with using the Bilevel machine
- Use it consistently then call back for an appointment.
- The sleep study suggested BiLevel was effective
- I can't have an ASV

5) My doctor knew I was moving away when I last saw her and requested that I send the data for her to analyze. But I cannot access the data. I told them I can't take a whole day to drive halfway across the province and back again for a 10 minute appointment, especially if the machine provides no information.

Pretty pissed. I have no way of knowing if the treatment is working

You need a new Sleep Doc and probably will require a new sleep study. It took me 5 sleep studies to finally get an ASV machine. As far as compliance it is your word vs theirs since they have no data. Start over. I was directed to my University Medical Center (teaching hospital). I found a Sleep Doc who was familiar with Central Apnea. I still had to undergo 2 sleep studies to get my ASV machine. It works. There are lots of people on this Board using ASV machines. It is the only real non-medication treatment for Idiopathic Central Apnea not associated with Congestive Heart Failure.

RichB
02-12-2016 02:56 PM
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Mike.Somerville Offline

Members

Posts: 5
Joined: Feb 2016

Machine: Resmed VPAP III ST-A
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: unsure
CPAP Pressure: 4-13
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Mississauga

Post: #14
RE: Help needed with VPAP III ST-A treating Central Sleep Apnea
I finally have an update.

A manager from Medigas came to my house and got the data for me. It turns out that I have zero AHI when I use the VPAP III ST/A for Central Sleep Apnea.

My next step is to find a new machine. My current machine is huge, very noisy, with a panel so bright I have to cover it, and it is difficult to get data.

I can get a prescription for a new Bilevel ST plus all accessories at no cost through my work.

What is the best Bilevel ST machine on the market?
04-05-2016 02:07 PM
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justMongo Offline

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Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #15
RE: Help needed with VPAP III ST-A treating Central Sleep Apnea
IMHO, it would be the ResMed AirCurve™ 10 ST. I'm sure Phillips-Respironics makes a fine machine is this class too.

For CSA, I wonder why they are not providing Cadillac of machines for CA -- an ASV.
That would be the ResMed AirCurveTM 10 ASV.

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04-05-2016 02:56 PM
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richb Online

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Posts: 537
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #16
RE: Help needed with VPAP III ST-A treating Central Sleep Apnea
(04-05-2016 02:56 PM)justMongo Wrote:  IMHO, it would be the ResMed AirCurve™ 10 ST. I'm sure Phillips-Respironics makes a fine machine is this class too.

For CSA, I wonder why they are not providing Cadillac of machines for CA -- an ASV.
That would be the ResMed AirCurveTM 10 ASV.

I agree with JM. I also use the Aircurve 10 ASV.

Rich
04-05-2016 03:01 PM
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tmoody Offline

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Joined: Mar 2016

Machine: PR System 1 BPAP AutoSV
Mask Type: Nasal pillows
Mask Make & Model: Swift FX nose pillows
Humidifier: PR System 1 attached
CPAP Pressure: 8-25
CPAP Software: SleepyHead

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Sex: Male
Location: Philadelphia

Post: #17
RE: Help needed with VPAP III ST-A treating Central Sleep Apnea
And to think I was discouraged after a process of referral/consult/study <waiting> that lasted only five months or so. You've been through the wringer and still don't have what you need! I hope the final step to ASV is faster!
04-05-2016 04:45 PM
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